Update 4/9/26
Good evening,
Due to complications with reflux that are affecting her oxygen saturation levels, she has been admitted to the hospital once again for further evaluation and close monitoring. To bypass her stomach, they will place a feeding tube through her nose into her small intestines. This will allow them to test if the reflux will stop. Other tests will follow, but we don’t know what they will be yet. This is trial and error right now. The doctors believe that close observation will help us get some rest and not stress throughout the night because of her possible aspiration. This is a major concern because of her other conditions she’s been diagnosed with since being released from the NICU and PICU.
Her conditions include:
- Congenital heart condition (post-surgery care)
- Chronic lung disease of prematurity
- Feeding challenges (G-tube dependent)
- Ongoing therapies and medical care
We genuinely appreciate the love and support you’ve shown us during this incredibly difficult time. Initially, we thought surviving the NICU and PICU was the most challenging aspect, but the ongoing challenges and stresses associated with her conditions have proven to be even more taxing.
GoFundMe: https://t.co/zAo4tH02N1
Zelle: 5613359222
Cash App: https://t.co/a3Q5cQvxNI
@GatorsBreakdown@hightopsport@ali_peek@CoachJonSumrall@JoshPateCFB@MylesGraham2_@GatorsFB
Anything helps a share means the world please and thank you. 🙏🏻
So, after considering all options going forward with Nickaulus Miami medical team. We are going to start the process of starting over from the beginning. Removal of the G/J tube and begin further testing to find out what exactly is the next step in the right direction. Thank you 🙏🏻
Update: June 9th, 2026
After two months of trying to figure things out, we’re still not sure what’s going on.
She’s vomiting about 10 to 15 times a day, even after the procedure to bypass her stomach into her small intestine. We’ve been giving her an antacid every day, along with another medication to help speed up her stomach’s passage of the liquid. We’re having a tough time getting answers and feeling overall like we’re struggling. We’re working every day to give her the best support and opportunity to live a good life.
It’s been a continuous battle with insurance, day in and day out, with the doctors, medications, pharmacy, and medical supply company.
GoFundMe: https://t.co/zAo4tH02N1
- Zelle: 3868372501
- Cash App: https://t.co/a3Q5cQvxNI
@GatorsFB@GatorDave_GB@Hightop_Dave@ali_peek@Hightop_Prof@hightopsport@CoachJonSumrall
For those of you following along throughout this journey and sharing thank you 🙏🏻 means so much to us.
Update: June 9th, 2026
After two months of trying to figure things out, we’re still not sure what’s going on.
She’s vomiting about 10 to 15 times a day, even after the procedure to bypass her stomach into her small intestine. We’ve been giving her an antacid every day, along with another medication to help speed up her stomach’s passage of the liquid. We’re having a tough time getting answers and feeling overall like we’re struggling. We’re working every day to give her the best support and opportunity to live a good life.
It’s been a continuous battle with insurance, day in and day out, with the doctors, medications, pharmacy, and medical supply company.
GoFundMe: https://t.co/zAo4tH02N1
- Zelle: 3868372501
- Cash App: https://t.co/a3Q5cQvxNI
@GatorsFB@GatorDave_GB@Hightop_Dave@ali_peek@Hightop_Prof@hightopsport@CoachJonSumrall
For those of you following along throughout this journey and sharing thank you 🙏🏻 means so much to us.
Update: June 9th, 2026
After two months of trying to figure things out, we’re still not sure what’s going on.
She’s vomiting about 10 to 15 times a day, even after the procedure to bypass her stomach into her small intestine. We’ve been giving her an antacid every day, along with another medication to help speed up her stomach’s passage of the liquid. We’re having a tough time getting answers and feeling overall like we’re struggling. We’re working every day to give her the best support and opportunity to live a good life.
It’s been a continuous battle with insurance, day in and day out, with the doctors, medications, pharmacy, and medical supply company.
GoFundMe: https://t.co/zAo4tH02N1
- Zelle: 3868372501
- Cash App: https://t.co/a3Q5cQvxNI
@GatorsFB@GatorDave_GB@Hightop_Dave@ali_peek@Hightop_Prof@hightopsport@CoachJonSumrall
For those of you following along throughout this journey and sharing thank you 🙏🏻 means so much to us.
@GatorsBreakdown@hightopsport@Hightop_Dave
Thank you all for the continued support and shares. #gogators@CoachJonSumrall
Update: We were admitted to the hospital 15 days ago for a simple gastrostomy tube procedure, as they had said. However, we had to go back and forth with the medical supply company and the doctors on release. Two days ago, we were supposed to be released with a pulse oximeter and an oxygen portable that only lasted for 3/4 hours. Unfortunately, it was only 1 1/2 hours from home, and we ended up being readmitted 4 hours later because her oxygen saturation dipped into the 70s.
There seems to be a mix-up with orders from the hospital to the medical supply company. We’ve never used the oxygen before, and we didn’t have anyone to show us how to use it. Even the hospital didn’t know how to teach us because the medical supply company’s equipment is different. The medical supply company told the case manager that it would take 1-2 days for someone to come see us.
To make matters worse, the 3/4 hours of oxygen weren’t enough for us to make it home in case we needed to stop or if we encountered traffic. So, they had to place additional orders for a portable oxygen concentrator. Now, the medical supply company is playing phone tag with the case manager.
In addition to all of this, she’s been vomiting repeatedly, throwing up stomach acid, and has been experiencing continuous diarrhea.
GoFundMe: https://t.co/zAo4tH02N1
- Zelle: 5613359222
- Cash App: https://t.co/a3Q5cQvxNI
Update post surgery
We can’t see her yet.
Started the procedure they were able to complete the procedure. They had to put her under sedation.
desaturation during anesthesia caused for her to be intubated to stabilize her for the procedure to be finished. She now is under close observation in the ICU they are worried if they try to extubate her she may desat again. They called a code blue for the procedure room during. They told us it wasn’t her so we wouldn’t rush in asking questions. Very overwhelming. Thank you all for everything things are so difficult right now for us.
@GatorsBreakdown@CoachJonSumrall@Hightop_Dave@hightopsport@ali_peek
GoFundMe: https://t.co/zAo4tH0ACz
- Zelle: 5613359222
- Cash App: https://t.co/a3Q5cQw5Dg