3CF

We are the Cork Centre for Cystic Fibrosis (3CF) at the Cork University Hospital. Updating our patients, the public, and researchers on our work

[CF Ireland @cf_ireland]

📢 Calling all people with CF, and carers & families of pwCF!
Can you give 8 to 10 short minutes to anonymously tell Tamara Vagg at @3CF_ie what electronic tools you are using to support CF care, and if there are any skills or training you need to use these tools confidently?

[3CF @3CF_ie]

We want to hear from #cysticfibrosis #careteam members with experience using #telehealth on what #digitalCompetency proficiency levels are needed, to use telehealth safely and effectively. To find out more, click here: https://t.co/nYDvsvIIwj

[3CF @3CF_ie]

We are interested in learning about the experiences of the #Irish #CF #community with using electronic tools to support their care. We are especially interested in what digital skills the Irish #CysticFibrosis community have and may need. https://t.co/CU30C3WVnv

[THCF @THCF_ECFS]

The THCF have 3 surveys currently out exploring #telehealth within #CysticFibrosis. If you are a member of a #CF Registry, Patient Association, or CF Unit - please consider answering one of our surveys. All opinions and insights welcomed: https://t.co/gwgMuNZ221

[CF Ireland @cf_ireland]

And that's a wrap! The #INCFC2025 is now closed. Thank you to every speaker, every delegate and the organising committee - Prof Barry Plant, Prof Barry Linnane, Prof Ed McKone, CFRI and CFI for making this an insightful and informative meeting.

[3CF @3CF_ie]

Wooohooo, congratulations to Mairead O'Donnell for receiving third place at the #INCFC2025 conference last week. Well done Mairead! #research #CF #CysticFibrosis 👏👏🥳🎖️

[3CF @3CF_ie]

Well done to our pharmacist Sarah, physio Fiona, and research fellow Tamara on their poster presentations last week at #INCFC2025 #CF #CysticFibrosis 👏

[3CF @3CF_ie]

Well done to our consultants Kevin + Hisham, and our Regs Noreen, Mairead and Seamus on their poster presentations last week at the #INCFC2025 👏

[3CF @3CF_ie]

Delighted to the have Irish National CF meeting back in Ireland #INCFC2025 with our own Prof Barry Plant opening the meeting #CysticFibrosis #CF

[European Cystic Fibrosis Society @ECFSConference]

Le groupe ECFS Telehealth for Cystic Fibrosis organise des réunions d'échange de réflexions et d'expériences concernant la télésanté pour les personnes vivant avec la mucoviscidose. Prochaine réunion le 17/12 à 19h - Pour plus d'informations, consultez https://t.co/Ad3PWaXJ2t

[3CF @3CF_ie]

Delighted to share that our #realworld #ETI study has been accepted to #ERJOpen. This study looks at #ULD #CT, Inflammatory Markers, and #PROMS in 61 #PWCF and is #OpenAccess, check it out here: https://t.co/wpMn05QXsZ #CysticFibrosis #CF

[3CF @3CF_ie]

Such a great initiative! For anyone attending Cork who are registered and have any questions about the registry or would like to know more, please share your questions below:

[CF Ireland @cf_ireland]

👀 CFI Signpost❗

Do you want to know more about the Cystic Fibrosis Registry in Ireland @CFRegistryIE?

Some of the aims of the CFRI are to:

👉 Provide CF specific info to the public
👉 Use data to help assess and plan health services for pwCF

[CF Ireland @cf_ireland]

👀 CFI Signpost❗

Do you want to know more about the Cystic Fibrosis Registry in Ireland @CFRegistryIE?

Some of the aims of the CFRI are to:

👉 Provide CF specific info to the public
👉 Use data to help assess and plan health services for pwCF

[THCF @THCF_ECFS]

We are running a global survey for #cysticfibrosis units to share their experience of #telehealth. The results will be used to create best practice guidelines for telehealth in #CF care. Open to all CF units, even those not using #telehealth. https://t.co/gbIscaLRTz

[HSE Technology and Transformation @HSETandT]

Julie Bellew and the #Telehealth team shared a live demo of how a virtual ward works in the patients own home.

#DigitalForCare #Virtualward

@Jcwemyss @bellew_julie @frthompson

[CF Ireland @cf_ireland]

CFI are proud to have been able to support our member Alice Ward & her incredible team, in making 'SALT' - a film exploring the role salt & the ocean have played in Alice's life. 'SALT' premiers tonight at the @LonSurfFilmFest & we wish Alice and her team the best of luck! 📽️🌊💜

[CF BDA Specialist Group, CF Dietitians @bda_cf]

Ready set book!

The webinar will be covering the below bitesize hot topics:  
•PERT shortage update – Kerry-Lee Watson
•Overview of UK CF Trust Standards of Care – Elizabeth Owen
•Highlights of North American CF Conference 2024 – David Proud

https://t.co/Rbbx7gAIdc

[European Cystic Fibrosis Society @ECFSConference]

Is Telehealth taking over regular face to face consultations? - Free registration webinar on Wednesday 27 November 2024 at 12-00-13:00 CET - 11:00-12:00 UK time. More information on https://t.co/XrmceAFDTg

[Tamara Vagg @TamaraVagg]

Thanks to Anna Scanlan and the @iEdHub for hosting this podcast. Loved the conversation with Laura Sahm and Sarah Robinson— always so much to learn from their inspiring expertise! #digitalHealthLiteracy #healthLiteracy #DigComp2_2 https://t.co/cX70TC7RgB