CysticFibrosisGalway

We are a group of volunteers aiming to improve resources & services for 91 Cystic Fibrosis patients in Galway University Hospital.

[CysticFibrosisGalway @CFGalway]

Please RT:

Today is #65roses day!

To support please text Fight CF to 50300 💜 to donate €4

@gbayfm @galwayad @CTribune @56central @GalwayRose_ @ClaytonGalway @totalhealthIRL @bigotaxisgalway

[CysticFibrosisGalway @CFGalway]

Hopefully by the 21st June we will be able to go outside and practice together for International Yoga Day!

Donations on the day, if you can to @CFGalway 💜

[CysticFibrosisGalway @CFGalway]

Yoga fundraiser in Galway ^hopefully^

[Saibh 👽 @Saibh200]

Hopefully by June 21st we will all be able to practice yoga outside together.

#galway

[CF Ireland @cf_ireland]

CFI are seeking clarification on guidance for people who are cocooning but whose area of work is due to reopen on Monday. Should they continue to cocoon or are they expected to return to work?
@susmitchellSBP could you raise this question at the briefing?

[CF Ireland @cf_ireland]

Remembrance walks were due to take place nationwide today, but because of COVID-19 had to go virtual.

While we can't be together today, we can come together to remember those with CF no longer with us.

Light a candle, Say their name, Share their photo,

Remember them 💜

[CysticFibrosisGalway @CFGalway]

Thank you @thehandmadesoap 💜💜💜

[CF Ireland @cf_ireland]

CFI would like to say a big thank you to @thehandmadesoap for their amazing support during the COVID-19 pandemic.

The Handmade Soap company made a donation of over 280 litres of hand sanitiser which has been distributed to the CF Community nationwide through our branches.

[Saibh 👽 @Saibh200]

Thanks to everyone who shared and donated this weekend to @cf_ireland and @CFGalway I'm gutted my fundraiser was canceled but the online buzz is great! 💜

#galway #cfireland #cfgalway #65roses

[CysticFibrosisGalway @CFGalway]

Please RT:

Today is #65Roses day!

To help us help people living with CF in Ireland, please text Fight CF to 50300 to dotange just €4 💜

#cfgalway #galway #cfireland

@Fitttrain @SnapGalway @galway_now @JCIGalway @networkgalway @GalwayChamber @OConnellsGalway

[Saibh 👽 @Saibh200]

Todays the Day! #65Roses Day!

Please text FIGHT CF to 50300 to donate €4

@CFGalway @CFGalway

[RTÉ Nationwide @RTENationwide]

This coming Friday is the annual fundraising day for Cystic Fibrosis, known as 65 Roses Day, which has now gone online as a result of Covid-19 & on tonight's show we meet a young woman who has CF on #RTENationwide Wednesday 8th April @RTEOne 7pm & RTE+1 8pm @rte
@cf_ireland RT

[RTÉ Nationwide @RTENationwide]

As #65RosesDay takes place on April 10th we see how a graceful art form encompassing acrobatics & dance can be good for someone living with Cystic Fibrosis at Ariel Cirque Studio, Dublin on #RTENationwide Wed 8th April @RTEOne 7pm & RTE+1 8pm @rte @cf_ireland @HealthyIreland RT

[CysticFibrosisGalway @CFGalway]

@cf_ireland @RTENationwide Well done Nicola!

[CF Ireland @cf_ireland]

Tune into @RTENationwide tonight where PWCF Nicola Richardson will be showcasing her aerial cirque skills & discussing how important exercise is in maintaining her health. Also CEO Philip Watt will be talking about the impact of COVID-19 on the CF Community ahead of #65RosesDay

[Saibh 👽 @Saibh200]

Text Fight CF to 50300

To donate €4 to @cf_ireland and @CFGalway 💜

#rtenationwide
#galway
#65roses

[CysticFibrosisGalway @CFGalway]

Amazing work from @totalhealthIRL

[CF Ireland @cf_ireland]

This Friday April 10th is #65RosesDay. Unfortunately, we've have had to cancel our collections due to COVID-19. This is our national fundraising day and was targeted to raise €200k to help fund essential supports and services needed more than ever by people with CF at this time.

[CysticFibrosisGalway @CFGalway]

65 Roses Day Goes Virtual 💜 We are sorry to announce that we have taken the decision to move our 65 Roses Day street collections that were scheduled for April 10th online, and are asking the public to support the campaign through online donations at https://t.co/0DTn1wwAJn

[CysticFibrosisGalway @CFGalway]

65 Roses Day Goes Virtual 💜 We are sorry to announce that we have taken the decision to move our 65 Roses Day street collections that were scheduled for April 10th online, and are asking the public to support the campaign through online donations at https://t.co/0DTn1wwAJn

[CysticFibrosisGalway @CFGalway]

Look folks! We've been included in the @TescoIrl blue token fundraising campaign !
Please consider us when you're donating your tokens!

#galway
#cfgalway
@cf_ireland

[CF Ireland @cf_ireland]

A huge thank you and a massive well done to our 40 Malin2Mizen Cycle4CF cyclists who all arrived safely at Mizen Head yesterday with fantastic help from the Support Team!