CJD Foundation

Our mission is to support families and loved ones touched by CJD.

[CJD Foundation @CJDFoundation]

Thanks to the researchers, experts and families who convened in Chicago for the CJD Foundation Family Conference! #CureCJD #CurePrionDisease
#CJDFoundation

[CJD Foundation @CJDFoundation]

The CJD Foundation’s strong financial health and commitment to accountability and transparency have earned it a 5th 4-star rating from @CharityNav, America’s largest independent charity evaluator. https://t.co/dofHtId43P

[CJD Foundation @CJDFoundation]

The drug development panel at the @CJDFoundation Family Conference will share the status of drug development pipelines from Nobelpharma, Regeneron, Sangamo Therapeutics, Broad Institute of MIT and Harvard, Gate Bioscience, and Ionis Pharmaceuticals.
https://t.co/cnuLJ0wIKb

[CJD Foundation @CJDFoundation]

Don't miss these upcoming deadlines for the Family Conference!
> Friday, May 22nd at 11:59pm ET: Early Bird Registration Deadline
> Monday, June 15th: Hotel Reservation Deadline
Register now: https://t.co/cnuLJ0wIKb

[CJD Foundation @CJDFoundation]

The Family Conference Early Bird Registration Deadline is Friday, May 22nd at 11:59pm ET.

Registration costs will increase to $250 on Saturday, May 23. Register today at: https://t.co/cnuLJ0waUD

[CJD Foundation @CJDFoundation]

Jeremy Flowers was just 49 years old when CJD took his life—only 43 days after his diagnosis. Behind every diagnosis is a family forever changed.
Read Jenny’s story and learn how the CJD Foundation supported them during their most difficult days: https://t.co/kWz2EJSeQx

[CJD Foundation @CJDFoundation]

There are 2 more virtual support groups this month:
May 12 @ 7pm ET: Current Caregiver Virtual Support Group
May 19 @ 6pm PT: Western Region Virtual Support Group

To register, email [email protected] or call our Helpline at 1-800-659-1991.

[CJD Foundation @CJDFoundation]

The CJD Foundation is proud to announce our 2026-27 Research Grant and Fellowship Applications are now open!
💰 Research Grants: Up to $100,000
🎓Fellowships: Specialized training for the next generation of prion disease experts.
🗓️ LOI Deadline: July 16, 2026

[CJD Foundation @CJDFoundation]

Get the latest updates from leading CJD experts and researchers 📷at the CJD Foundation Family Conference. Knowledge empowers. Join us in July in Chicago.
#CJDResearch #CJDFoundation
📷 Register now: https://t.co/cnuLJ0waUD

[CJD Foundation @CJDFoundation]

Please see the @broadinstitute's Community Statement on their first-in-human clinical trial to evaluate an investigational drug called PrP-siRNA in patients diagnosed with prion disease. https://t.co/XuDxOZNHFi

[CJD Foundation @CJDFoundation]

This has been a year of promising progress and deep engagement by our prion disease/CJD community. Please keep the momentum going!
You can help us continue this work in 2026 by donating to the CJD Foundation Annual Fund. https://t.co/wdMKPEsZKn

[CJD Foundation @CJDFoundation]

On 11/10 Rep David Valadao (R-CA-22) introduced a bipartisan resolution supporting the goals and ideals of Creutzfeldt-Jakob Disease Awareness Day in the House. On 11/12, Sen Jon Husted (R-OH) introduced a resolution in the Senate. https://t.co/HVtxjNg4uT
https://t.co/IPooq0f0qk

[CJD Foundation @CJDFoundation]

Kicking off day 2 of the family conference with the Keynote Address in Honor of Dr. Pierluigi Gambetti by Glenn Telling, PhD, Director, Prion Research Center @ColoradoStateU #CJDFoundation

[CJD Foundation @CJDFoundation]

Join us today, Monday, June 9 at 7PM Eastern for an important meeting about the Fiscal Year 2026 budget and the new proposal to eliminate funding for the National Prion Disease Pathology Surveillance Center. To register email [email protected] or call [phone].

[CJD Foundation @CJDFoundation]

Join us tomorrow, Monday, June 9 at 7PM Eastern for an important meeting about the Fiscal Year 2026 budget and the new proposal to eliminate funding for the National Prion Disease Pathology Surveillance Center. To register email [email protected] or call [phone].

[CJD Foundation @CJDFoundation]

Join us Monday, June 9 at 7PM Eastern for an important meeting about the Fiscal Year 2026 budget and the new proposal to eliminate funding for the National Prion Disease Pathology Surveillance Center. To register email [email protected] or call [phone].

[CJD Foundation @CJDFoundation]

If you would like to learn more about #priondisease, please join a Q&A webinar led by Dr. Appleby, Medical Director, CJD Foundation, & Director, National Prion Disease Pathology Surveillance Center. To register, please call 800-659-1991 or email [email protected].

[CJD Foundation @CJDFoundation]

We've got an inspiring and educational weekend planned for this year's Family Conference. Register by this Friday, May 23 to lock in the early bird rate.

[CJD Foundation @CJDFoundation]

We are pleased to announce a Call for New Grant Applications for research projects relating to human prion diseases.

The deadline for receipt of Letters of Intent is July 17, 2025. Learn more at: https://t.co/QOHRwmXNYC #cureCJD #priondisease #cjdresearch

[CJD Foundation @CJDFoundation]

Lock in the lowest registration price for the 2025 Family Conference by registering by Friday, May 23. https://t.co/QtLv9QqbXR