CML AdvocatesNetwork

CML Advocates Network: Network of 128 chronic myeloid leukemia patient groups in 93 countries.
#CML #Leukemia #CureCML #PatientAdvocacy

[CML AdvocatesNetwork @cmlnet]

🌍 More languages now available for the 2025 ELN CML Recommendations!

CML Advocates Network has expanded access to the 2025 ELN Recommendations for the Management of CML, with Portuguese, Chinese and Arabic translations now available on our website, alongside the Quick Patient Guide.

Making trusted, up-to-date CML information available in more languages helps more patients understand the latest recommendations and take an active role in conversations about their care.

👉 Explore the 2025 ELN resources and share them with your CML community: https://t.co/o9htPabjGZ

#CML #CMLAdvocatesNetwork #ELN2025 #CMLGuidelines #PatientEducation #PatientAdvocacy

[CML AdvocatesNetwork @cmlnet]

📊 Do you understand your PCR results? Patients should not just receive their results — they should be supported to understand what they mean and use them in conversations about their care. 💬

🔗 https://t.co/ClOkQenANX

#WCMLD26 #LeavingNoCMLPatientBehind #CureCML #KnowYourResults

[CML AdvocatesNetwork @cmlnet]

🧬 Why does regular PCR testing matter in CML? It helps show how treatment is working over time and can flag an unfavourable response early. ⏱️ The right test, at the right time, matters.

#WCMLD26 #LeavingNoCMLPatientBehind #CureCML #PCRTesting

[CML AdvocatesNetwork @cmlnet]

🧪 Good CML treatment needs good CML monitoring. Regular, reliable testing helps patients and healthcare teams understand how treatment is working. 💙 Access to treatment matters — and access to monitoring matters too.

🔗https://t.co/ClOkQenANX

#WCMLD26 #LeavingNoCMLPatientBehind #CureCML #CMLMonitoring

[CML AdvocatesNetwork @cmlnet]

🌍 The #WCMLD26 Toolkit is READY! 📣

World CML Day – 22 September – is getting closer, and it’s time to get our global CML community involved! 💙

We’ve prepared a #WCMLD26 Toolkit to make it easy for CML patient organisations and advocates around the world to join the campaign.

📅 Social Media Calendar
Ready-to-use content to help you plan your posts leading up to 22/9.

🎨 Editable Social Media Visuals
Customisable visuals focusing on CML monitoring, understanding PCR results and empowering patients to ask questions about their care.

📸 #WCMLD26 Photo Frame
Add your photo, share it on social media and tell us:

💬 What does equal access to CML care look like in your country?

💬 What barriers still prevent CML patients from accessing the care they need?

📣 Let your voice be heard!

Use the toolkit, adapt the materials for your community, share your photos and stories, and tag CML Advocates Network so we can amplify your message.

Together, let’s show what equal access to CML care looks like around the world — and highlight where change is still needed. 🌎

👉 Explore the #WCMLD26 Toolkit and start sharing: https://t.co/ClOkQenANX

#WCMLD26 #LeavingNoCMLPatientBehind #CureCML #CML #WorldCMLDay #PatientAdvocacy #CMLAdvocates

[CML AdvocatesNetwork @cmlnet]

Have you explored the updated 2025 ELN recommendations for CML?

CML Advocates Network has developed a patient-friendly summary to help people living with CML better understand what the latest recommendations could mean for their treatment and care.

And if German is your preferred language, our German translation is already available on our website.

The 2025 recommendations include important updates around treatment decisions, monitoring, side effects, dose optimisation, treatment-free remission and more.

📖 Read the recommendations and choose your language on our website: https://t.co/bSEBa7DpPP

#CML #ELN2025 #CMLAdvocatesNetwork #PatientEducation #Leukemia #ChronicMyeloidLeukemia

[CML AdvocatesNetwork @cmlnet]

Have CML and thinking about getting a tattoo? Here are some things to consider before getting inked: https://t.co/orbFr8Klao

#CMLLIFE #cml #patientadvocacy

[CML AdvocatesNetwork @cmlnet]

📢 Registration for CML Horizons 2026 has RE-OPENED!

We're excited to welcome the global CML community to Tbilisi, Georgia, from 13–15 November 2026 for the 24th Annual CML Horizons Conference.

Join patient advocates, leading experts, researchers, and partners for three days of learning, collaboration, and networking, featuring the latest advances in CML care, advocacy, access, and patient support.

⚠️ Important: If you registered for the previous conference dates, you must register again to confirm your attendance for the November conference.

🎤 World-renowned speakers
🤝 Best Practice & Poster Sessions
🌍 Global networking
💡 Inspiring advocacy and medical programme

✈️ Already changed your flights? Please send your updated itinerary to [email protected].

👉 Re-register today: https://t.co/1KUZ20j8jp

We look forward to welcoming you to beautiful Tbilisi this November!

#CMLHZ26 #CMLAdvocates #CML #PatientAdvocacy #Hematology #GlobalHealth #Tbilisi #CMLCommunity

[CML AdvocatesNetwork @cmlnet]

Nausea is one of the top challenges for people living with cancer. These 7 tips can help keep you healthy even when you don't feel like eating.

Read more: https://t.co/vRTlgRGV4C

#CMLLIFE #patientadvocacy #cml #nausea

[CML AdvocatesNetwork @cmlnet]

👏 Congratulations to @BahijaGouimi and the entire @Bc2Nabd team!

We are delighted to see this important milestone for patient advocacy in Morocco with the presentation and validation of the country's first national digital map of associations supporting people affected by cancer.

This initiative, led by the Ministry of Health and Social Protection, through the Directorate of Epidemiology and Disease Control (DELM), with support from the World Health Organization (WHO), is a significant step towards strengthening the meaningful engagement of patients and patient organisations in shaping health policies and improving cancer care.

A special congratulations to Bahija and to Ms. Ikram Eseghir, President of NABD-BC2, whose dedication and leadership have been instrumental in this achievement.

At the CML Advocates Network, we celebrate initiatives that recognise the vital role of patient organisations in improving outcomes and ensuring that the voices of people living with cancer are heard in healthcare decision-making.

Congratulations on this well-deserved achievement—we look forward to seeing its positive impact across Morocco! 🌍💙

#PatientAdvocacy #CancerAdvocacy #CMLAdvocates #PatientVoices #MeaningfulEngagement #Morocco #CancerCare @

[CML AdvocatesNetwork @cmlnet]

Despite the progress made in the treatment of CML, expert Dr. Dennis Kim says there is still a lot of room for improvement.

Read now: https://t.co/voyc2sOinR

#CMLLIFE #CML #PatientAdvocacy

[CML AdvocatesNetwork @cmlnet]

Why should patients read the updated 2025 ELN recommendations?
Because CML care continues to evolve.
The new recommendations include updated thinking on:
✔️ treatment goals
✔️ side effect management
✔️ dose optimisation
✔️ treatment-free remission
✔️ newer treatment options
✔️ personalised care
💡 Even if you already read the 2020 version, the 2025 update contains important changes that may affect conversations with your healthcare team.
📘 Read the patient summary here in English and German: https://t.co/o9htPabjGZ
#CML #ELN2025 #PatientEmpowerment #LeukemiaAwareness

[CML AdvocatesNetwork @cmlnet]

📅 SAVE THE DATE! 🌍💛 World CML Day 2026 | 22 September

🧡 From Access to Monitoring: 25 Years Forward for Every CML Patient

This year marks 25 years of progress since the first targeted therapy transformed the lives of people living with CML—but our work is far from over.

Together, we're calling for a future where every person living with CML has equitable access to diagnosis, treatment, molecular monitoring, education, and support—no matter where they live.

💬 Share your story. Raise your voice. Help us ensure that no CML patient is left behind: https://t.co/9AQggodhcw

#WCMLD26 #WorldCMLDay #CML #AccessToMonitoring #25YearsForward #KnowYourPCR #PatientAdvocacy

[CML AdvocatesNetwork @cmlnet]

🇩🇪 Now Available: ELN Recommendations 2025 in German

Access to reliable, evidence-based information should never be limited by language.

The German translation of the ELN Recommendations 2025 is now available on the CML Advocates Network website, making this key resource more accessible to healthcare professionals, patient advocates, and the CML community across German-speaking countries.

The ELN Recommendations continue to shape CML care worldwide, supporting informed treatment decisions and improving patient outcomes.

📥 Download the German version today and share it with your colleagues and community.

🔗 NEW – ELN Recommendations 2025 (German): https://t.co/o9htPabjGZ

Together, we’re making trusted knowledge available to more people, in more languages.

#CML #ChronicMyeloidLeukemia #ELN2025 #Hematology #PatientAdvocacy #CMLAdvocatesNetwork #Leukemia #EvidenceBasedCare

[CML AdvocatesNetwork @cmlnet]

Living with CML is about more than milestones.
The 2025 ELN recommendations place stronger emphasis on:
💙 long-term tolerability
💙 side effects
💙 patient preference
💙 quality of life
This reflects an important reality: many people with CML may stay on treatment for years — so how treatment affects daily life matters.
📘 The updated patient summary helps explain these changes in accessible language:
https://t.co/o9htPabjGZ
#CML #QualityOfLife #PatientAdvocacy #ELN2025

[CML AdvocatesNetwork @cmlnet]

One important change between the 2020 and 2025 ELN recommendations is the language used to describe treatment response.
The 2020 summary used:
➡️ Optimal
➡️ Warning
➡️ Failure
The 2025 summary now uses:
➡️ Favorable
➡️ Warning
➡️ Unfavorable response
💬 Words matter.
For many patients, this change may feel more patient-friendly and less discouraging while still helping guide treatment decisions.
📘 Compare the summaries yourself:
2020: https://t.co/Kmfqfv7eyq
2025: https://t.co/o9htPabjGZ
#CML #PatientLanguage #ELN2025 #Leukemia

[CML AdvocatesNetwork @cmlnet]

📚 Stay up to date with the latest developments in hematology from #EHA2026!

The EHA2026 Perspectives on Hematology report is now available, bringing together key scientific advances and clinical insights presented during this year's European Hematology Association Congress.

For the CML community, the report includes updates on Chronic Myeloid Malignancies, alongside highlights from other important areas of hematology, making it a valuable resource for healthcare professionals, patient advocates, and anyone interested in the latest research.

If you want to catch up on the most significant findings from #EHA2026, we encourage you to explore the report.

📖 Read the EHA2026 Perspectives on Hematology here: https://t.co/BKAj3lKIso

#CML #Hematology #EHA2026 #PatientAdvocacy #MedicalEducation #Leukemia #CMLAdvocatesNetwork

[CML AdvocatesNetwork @cmlnet]

✨ When was the last time you visited our CML Life website?

You might be surprised by what you’ll find.

From reliable CML information and patient experiences to practical tools and resources, CML Life is here to support you every step of the journey.

Visit today—you may discover exactly what you need: https://t.co/9kJBxxygGp

#CML #PatientSupport #LivingWithCML

[CML AdvocatesNetwork @cmlnet]

Did you know?
The 2025 ELN recommendations reinforce that treatment decisions should not rely on a single PCR result alone.
Instead, doctors should consider:
📈 trends over time
📊 response patterns
🧑 individual patient circumstances
💡 Why this matters:
A single result can create anxiety. The updated recommendations encourage looking at the bigger picture before major treatment decisions are made.
📘 Read more in the 2025 ELN summary:
https://t.co/o9htPabRwx
#CML #PCRMonitoring #PatientEducation #ELN2025

[CML AdvocatesNetwork @cmlnet]

📍 Learning, connecting, and growing together at @WECANadvocate Academy 2026!

Yesterday marked the start of an inspiring few days at the WECAN Academy in Gdańsk, bringing together patient advocates, researchers, and healthcare leaders from across Europe and beyond.

The first day was filled with engaging discussions, practical learning, and meaningful conversations on strengthening patient advocacy, research engagement, communication, and community building. With participants representing more than 21 countries, the diversity of experiences and perspectives is truly isnpiring.

Thank you to WECAN Foundation and everyone making this academy such a valuable experience.

#WECANAcademy #PatientAdvocacy #CMLAdvocatesNetwork #CancerAdvocacy #PatientLeadership #CapacityBuilding #Collaboration #CancerCommunity #HealthPolicy #StrongerTogether