Comend

The operating system for patient groups

[Comend @comendcare]

Check out our Instagram for more highlights from today's event! @comendcare

[Comend @comendcare]

Day 2 at @GlobalGenes #WeekInRare, and we’re feeling so empowered by the incredible sessions and conversations from leaders, advocates, and changemakers in the rare disease community!

#RAREAdvocacySummit

[Comend @comendcare]

We're so happy to be at @GlobalGenes #weekinrare!🦓 Ready to listen, learn, and connect with caregivers, patient advocates, and YOU!

✨Find us for a free sticker, and let’s connect!

[Comend @comendcare]

This year, @OsmosisMed is running "Year of the Zebra". Every week will focus on educating the public on a unique rare disease, including a video on their YouTube channel. I guarantee they talk about at least one rare disease you haven't heard of.

https://t.co/Q65LxkZHlQ

[Comend @comendcare]

@rarediseaseuk @GeneticAll_UK A couple more harder to find stats: Every year, we discover a couple hundred more rare diseases based on publishing data. Also 1 in 2 rare diseases don't have a foundation or a support group! Thanks for raising awareness on #rarediseaseday💙

[Comend @comendcare]

@NHSEngland Sending love and best wishes to Ruben and his family!

@rarediseaseday
#RareDiseaseDay #RareDiseaseDay2023 #RareDisease #RareDiseases

[Comend @comendcare]

@M4RareDiseases For those curious, the Zebra is a mascot for rare disease because “Doctors are taught 'when you hear hoofbeats, think horses not zebras'". Occam's razor is useful to avoid misdiagnosing a patient, but sometimes the explanation for a symptom or condition is indeed a rare disease!

[Comend @comendcare]

@Niamhofsynnott @NoonanSyndrome1 Raising awareness for you and yours!

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@ashgrayfussell Go Carlee! Wishing you and yours the best :)

[Comend @comendcare]

It's Rare Disease Day!

“Doctors are taught 'when you hear hoofbeats, think horses not zebras'". But Sometimes the explanation for a condition is indeed a rare disease. Retweet if you believe Zebras DO exist!

#rare #awareness #rarediseaseday #caregiving #raredisease

[Rare Disease Day @rarediseaseday]

It is now #RareDiseaseDay across the globe 🌍

📌 Organise and post your event: https://t.co/sJVn3Abluk

✨ Join the Global Chain of Lights & #LightUpForRare: https://t.co/S0PNzbafDo

📖 Share your story: https://t.co/2rRw6PkmA1

🔥 Share our resources: https://t.co/Z7orXgz02q

[Comend @comendcare]

DEI In clinical studies is a great first step in moving towards a more equitable healthcare system. We'll see how this might mitigate measurement bias, design more culturally aware studies, and regain some trust in our institutions.

https://t.co/ARxDADg9Gk

#Equality #healthcare

[Comend @comendcare]

To learn more and get involved, check out:

https://t.co/5VTlG54nJK

https://t.co/dka5Xcle8i

#WorldCCADay #PledgeforCCA
(3/3)

[Comend @comendcare]

Tonight, we saw a green CN Tower for World Cholangiocarcinoma Day (February 16th). 🧵(1/3)

[Comend @comendcare]

Cholangiocarcinoma, or bile duct cancer, is a rare condition affecting nearly 500 thousand individuals globally.

New targeted therapies are coming to market but accessibility poses a barrier - especially here in Canada. Read more here: https://t.co/0FIVw6jkel
(2/3)

[Comend @comendcare]

According to the CDC, there are about 7 potential caregivers per adult. By the year 2030 that will drop to 4. @gpbnews

https://t.co/vDHiJuaU49

#caregiver #caregiving #Disability #DisabilityTwitter #DisabilityRights #Georgia

[Dylan Ogline @DylanOgline]

Caregivers are real-life heroes.

They tend to our sick and elderly, a physically and emotionally draining job, and rarely get the appreciation they deserve.

I've seen this myself and can tell you without a doubt: we owe them our admiration and gratitude.

(PS Love you mom)

[Comend @comendcare]

Pfizer cutting development of a few orphan drugs sucks, especially amidst record profits from the pandemic. But let's see if their reinvestment strategies pay off!

https://t.co/u52mW4p6Ev

#RareDisease #RareDiseaseTruth #rarediseases #Pfizer #Caregiver #caregivers #Caregiving

[Comend @comendcare]

Comend Caregiving -- The Caregivers Behind: Stephen Hawking https://t.co/tyBpP52ra9

[Comend @comendcare]

E-caregivers are a thing! Time will tell if they really take off, but @ElectronicCare has launched a caregiving avatar for remote patient monitoring.

https://t.co/3ROlsD3r01