CureARS

Our mission is to spread awareness, connect and provide support to affected families and fund research for the ultra-rare mtARS genes.

[CureARS @cure4ars]

@cure4ars and @chocchildrens will be hosting the Mitochondrial ARS Genes Scientific Symposium February 7th virtual!

Register here:

https://t.co/OifedaW9pW

[CureARS @cure4ars]

GivingTuesday Shirt Fundraiser 👚

Taking pre-orders until November 17th! Shirts will start shipping on Nov. 28 #GivingTuesday !

Google Form:
https://t.co/11AFjHGyrJ

#mitochondrialdisease #research #givingtuesday #shirt #fundraiser #justcureit

[Daphne's Lamp @daphneslamp]

2nd Annual CureARS Golf Classic 2023: Registration is OPEN!
https://t.co/XAHjPXLePo
#mitochondrialdisease #mito #researchingrare #fundingacure #golf https://t.co/HMwK1Px6aL

[CureARS @cure4ars]

CureARS was in the news today!

Race to Find A Cure: Mom Continues Fight for 4-Year-Old in Somerset County

Read More ➡️ https://t.co/WR4yteDHml

#mitochondrialdisease #run4rare2023

[CureARS @cure4ars]

Run4Rare is funding research for a group of ultra rare types of Mitochondrial Disease known as the ARS genes 💚💪🏼

Join us for Run4Rare Mother’s Day 5k/1k ➡️
https://t.co/2iuJtNlaHm

#runlikeamother #mitochondrialdisease #raredisease

[CureARS @cure4ars]

One week left to register ➡️ https://t.co/2iuJtNlaHm

#run4rare2023 #runlikeamother

[Engineering + Research + Medicine🔍🔬🌱 @Engineer_Health]

I am so happy and excited to support @cure4ars

A non-profit started by rare parents.

Thank you @RareDiseases

#healthcare

[National Organization for Rare Disorders (NORD) @RareDiseases]

We are pleased to announce four patient advocacy orgs have been awarded the chance to join our IAMRARE Program and implement a natural history study to be included in the #RDCADAP! They are @cure4ars, @FamilieSCN2A, @NationalCMV
& @RRPFORG1.

Learn more: https://t.co/xLZ3FmUHci

[CureARS @cure4ars]

🏃Registration Open!🏃‍♀️

Run4Rare Mother’s Day 5k/1k
May 13, 2023 at 9am
Duke Island Park
Bridgewater, NJ

Register here ➡️ https://t.co/2iuJtNlaHm

Sign up now with our early bird pricing before rates jump on April 1, 2023!

#run4rare2023 #curears #mitochondrialdisease #research

[CureARS @cure4ars]

We are selling the below bracelets in honor of rare disease day (Feb 28). 100% of proceeds go to fund research! Please complete the below order form and payment can be made to Venmo handle @curears

https://t.co/PYSHq7yqNp

#raredisease #showyourstripes #mitochondrialdisease

[CureARS @cure4ars]

Have you ever wondered how common are the ARS genes ⁉️

Dr. Renkui Bai from GeneDx will be discussing this topic during the CureARS Symposium on February 10, 2023 at 11:55am EST.

To register: https://t.co/q1q7i8AGWT

#mitochondrialdisease #ars2science2023 #raredisease

[CureARS @cure4ars]

Panel Highlight: Mito Cocktail as a Therapeutic

Please join us for this panel discussion on Friday, Feb 10, 2023 at 2:15pm EST.

To register: https://t.co/wCcFMPsw6f

#ars2science2023 #mitochondrialdisease

[CureARS @cure4ars]

Join us for an update on our ongoing research project❗️

Register here: https://t.co/wCcFMPsw6f

For more information on this project visit: https://t.co/oLXp6T2hnS

#ars2science2023 #mitochondrialdisease

[CureARS @cure4ars]

⭐️Panel Highlight⭐️

Natural history studies in rare disease follow a group of patients over time to better understand and characterize the disease.

To register: https://t.co/wCcFMPsw6f

#ars2science2023 #mitochondrialdisease

[CureARS @cure4ars]

Special thank you to Dr. Jose Abdenur and @chocchildrens for sponsoring our annual symposium!

Dr. Abdenur will be speaking about his ongoing #research into the #DARS2 gene. Join us on February 10th, 2023 ➡️ https://t.co/wCcFMPsw6f.

#ars2science2023 #mitochondrialdisease

[CureARS @cure4ars]

We are very excited to have the support of @chocchildrens and @RareDiseases for this wonderful Scientific Symposium highlighting the 19 Rare Mitochondrial ARS2 genes!

#ars2science2023 #mitochondrialdisease #Curears
#research #researchingrarefundingacure #arsgenes

[CHOC @chocchildrens]

Please join CHOC at the Mitochondrial ARS (Mt-aaRS) Genes
Scientific Symposium 2023 with @cure4ars on 2/10! CHOC's Metabolic Disorders program will share the latest developments from the lab and clinic in the battle against diverse disorders. #Research https://t.co/0JatzDnHbw

[CureARS @cure4ars]

⭐️New Speaker⭐️

Meet Dr. Jennifer Yang, a Child Neurologist at Rady Children’s Hospital / University of San Diego (UCSD). @radychildrens

#ars2science2023 #mitochondrialdisease #research

To view our full agenda and register ➡️ https://t.co/wCcFMPt3VN

[CureARS @cure4ars]

✅ Register here: https://t.co/wCcFMPsw6f

#mitochondrialdisease #mito #raredisease #arsgenes #knowledgeispower #mitoresearch #research #choc #AARS2 #CARS2 #DARS2 #EARS2 #FARS2 #GARS #HARS2 #IARS2 #KARS #LARS2 #MARS2 #NARS2 #PARS2 #RARS2 #SARS2 #TARS2 #VARS2 #WARS2 #YARS2

[CureARS @cure4ars]

12 Days of IMPACT! 👊

How it works:
💚Text "FLASH" to 90412 to sign up or visit https://t.co/aPA8RcWNK0
💚Choose CureARS and give your opinion (up to $2 for a quality opinion)
💚Create up to $150 of impact (75 opinions max)

[CureARS @cure4ars]

Thank you to all our donors for #GivingTuesday! Special message from Daphne, the daughter of our co-founder, Desiree Magee!

#mitochondrialdisease #ears2 #ltbl #everylifematters #raredisease #brave #hero #spreadkindness #awareness #bethechange #thankyou