Thank you @GHLForg@CreakyJoints for including the patient, caregiver and providers perspective on this episode.
Shared decision making matters!
#Looms4Lupus
Lupus isn’t one-size-fits-all — and neither is treatment.
The 2025 ACR lupus guidelines reinforce something patients have long known: care works best when decisions are shared and tailored to the individual. Your concerns, experiences, and goals belong in the conversation. Learn how patient voices shaped these guidelines in our new episode of Remission Possible.
Tune in: https://t.co/IPMKNjOZJG
@estelamata@Looms4Lupus
#Lupus #PatientAdvocacy
People 50 years of age and older face higher risk from COVID-19 this summer. Don’t spoil a sunny day getting vaccinated now can help protect against severe illness. Learn more: https://t.co/YzvquDVj7E
🌞😎
Las personas de 50 años o más enfrentan un mayor riesgo por el COVID-19 este verano. Sigue haciendo lo que amas: vacunarte ahora puede ayudarte a protegerte contra las enfermedades graves. Más información: https://t.co/YzvquDVj7E
Have exciting summer plans? Don’t let COVID-19 get in the way. Adults 50+ are at increased risk for severe illness. Keep your summer on track — it’s not too late to get vaccinated. Learn more with https://t.co/YzvquDVj7E
¿Tienes grandes planes para el verano? No dejes que el COVID-19 se interponga. Los adultos de 50 años o más tienen mayor riesgo de contraer enfermedades graves. Mantén tus planes de verano en marcha: aún estás a tiempo de vacunarte. Más información:https://t.co/YzvquDVj7E
How Vaccines Help Keep You Healthy
Vaccines don’t just help protect against illness, they help protect your lifestyle. Fewer sick days, fewer medical bills, and more time doing what you love. @cveepsocial illustrates how staying up to date on your vaccines can support your long-term health and goals.
Las vacunas no solo protegen contra las enfermedades, también protegen tu estilo de vida. @cveepsocial te muestra cómo estar al día con tus vacunas puede ayudar a tu salud y tus metas a largo plazo.
Respiratory illnesses can lead to longer lasting health issues. The good news? Vaccines are the best protection against long-term effects. Learn more @cveepsocial: https://t.co/YzvquDVj7E
La enfermedad no siempre termina cuando no quedan más síntomas. Las enfermedades respiratorias pueden causar efectos prolongados. ¿La buena noticia? Las vacunas son la mejor protección contra esas secuelas. Infórmate con @cveepsocial https://t.co/YzvquDVj7E
We’re proud to share that @estelamata, President of @Looms4Lupus , has been serving as a civic leader on the Measure BP SOC Committee for the @BaldwinParkCA_ representing the nonprofit sector and helping ensure that Measure BP funds are used to uplift and empower our community.
This month, those dollars supported the Tuff Kidz Wrestling Club, a youth sports organization dedicated to building strength, discipline, and opportunity for Baldwin Park’s youth.
Estela’s continued service reflects a deep commitment to transparency, equity, and making sure local resources directly benefit the families and constituents of Baldwin Park.
#Looms4Lupus #MataSisters #civicduty #community
Every month @Looms4Lupus iLOOMinates patient and caregiver stories of hope! This month we’re iLOOMinating Leslie’s story, she was diagnosed with lupus at 21, she’s faced multiple health challenges with strength and grace. Now a full-time caregiver, Leslie’s journey is one of resilience and hope. #Looms4Lupus #iLOOMinatingStories #PatientStories
Why COVID-19 is a Year-Round Threat
•While some respiratory viruses usually surge in colder months, COVID-19 doesn’t follow a seasonal pattern. COVID-19 is a year-round threat and staying protected means staying up to date on vaccination. Learn more with @cveepsocial https://t.co/YzvquDVj7E
oEl verano es una época para reunirte con quienes más quieres. Si tienes 50 años o más, mantenerte al día con tus vacunas contra el COVID-19 ayuda a proteger tu salud y tus planes de verano. Más información con @cveepsocial https://t.co/YzvquDVj7E
•Ever wonder why COVID-19 continues to surge beyond respiratory season? @cveepsocial explains how new variants, indoor environments, and fading protection can increase your risk of infection even during the summer.
o¿Te has preguntado por qué el COVID-19 sigue repuntando fuera de temporada? @cveepsocial explica cómo las nuevas variantes, los espacios interiores y la pérdida de protección pueden aumentar el riesgo de infección incluso en verano.
It's so important to be present and part of the conversations with our community with our legislators. It's a plus when you get to advocate & work with your sister & fellow healthcare advocate @JuanaMataa Thank you @SenSusanRubio for your service to our communities!
Today, our healthcare advocates Juana and Estela Mata from Looms for Lupus attended the Coffee and Conversations event hosted by Senator asusan Rubio in the City of Baldwin Park which focused on legislative updates and community dialogue.
At Looms for Lupus, we believe that advocacy gmbegins with connection, and that is why we are in the community, present and engaged! We are proud to be part of the conversations and continue our mission. To uplift communities, locally, across the state and country, through education, resources, and policy change.
Together, we are "Knitting a Community Of Hope."
#Looms4Lupus #Matasisters #Advocacy #support
Summer is a time to gather with those you love, whether for a barbeque or picnic, it is the perfect season to make memories. For adults 50+, staying up to date with your COVID-19 vaccines helps protect your health and your summer plans. Discover how vaccination can help you stay healthy and active this summer with @CVEEPSocial ➡️https://t.co/YzvquDVj7E
El verano es una época para reunirte con quienes más quieres. Si tienes 50 años o más, mantenerte al día con tus vacunas contra el COVID-19 ayuda a proteger tu salud y tus planes de verano. Descubre cómo la vacunación puede ayudarte a mantenerte sano. ➡️https://t.co/YzvquDVj7E
If you are 50+ or live with #chronicillness#autoimmune conditions, we must stay protected!
➡️ https://t.co/KOTvzh96s9
Si tienes 50 años + o vives con una condición autoinmune, ¡es importante mantenerse protegido!
It’s not too late! Add COVID-19 vaccination to your summer checklist. Adults 50+ face a higher risk from the virus, and getting vaccinated is a simple way to stay protected. Discover more with
@cveepsocial & visit https://t.co/A6frM5tGYm
July 8th is Happy Be A Kid Again Day! Blow some bubbles it's fun & great for your mental health!
Helps reduce stress and spark Mindfulness.
¡El 8 de julio es el Día de Volver a Ser un Niño! ¡Sopla burbujas! Es divertido y excelente para tu salud menta!
#Looms4Lupus
Today, on World Lupus Day, we honor everyone affected by lupus.
If you're living with lupus or supporting someone who is, the Lupus Help Center offers trusted information, expert videos, and real patient stories — all to help you understand clinical trials and take the next step with confidence.
💜 Explore now: https://t.co/hXbEoPxN4k
#WorldLupusDay #LupusAwareness #LupusHelpCenter #ClinicalTrials #ChronicIllness
@estelamata@Looms4Lupus
Do you have #LUPUS and #BrainFog? Help us develop the Lupus Brain Fog Severity Scale—a validated questionnaire to measure brain fog severity in lupus. Your input is essential. Please participate today & RT to share. More info ⬇️⬇️
Both my sister @JuanaMataa and I support & empower #lupus patients, their loved ones to get the resources they need, get the best treatments possible to manage lupus symptoms, through support groups, information #ClinicalTrials & hope! @CreakyJoints https://t.co/AicQWu2GKc
We Support Rare Disease Day!
1 in 10 Americans live with a rare disease. Over 95% of rare diseases have no approved treatment.
¡Apoyamos el Día de las Enfermedades Raras! 1 de cada 10 estadounidenses vive con una enfermedad rara.
#RareDiseaseDay#LoomsForLupus
Today is #RareDiseaseDay!
1 out of 10 Americans live with a rare disease.
Together, we aim to make a difference and reshape the future of healthcare.
Thanks to @CALifeSciences for organizing Rare Advocacy Day.
It was a pleasure to join a panelist of amazing woman leaders for the "Appointments Workshop" hosted by @AsmBlancaRubio & @CaWomenLead. The attendees left with knowledge, tools, & insights into the appointment process, ready to make a difference in their communities.
Our co-founder & President @estelamata, a @BaldwinParkCA_ Measure BP committee member, was a panelist at the "Appointments Workshop" hosted by @AsmBlancaRubio & @CaWomenLead. It was a fantastic event, empowering community members with tools & insights into the appointment process
We deeply understand the significance of #grassroot engagement with the community. @Looms4Lupus is present where the community gathers, so we can bring valuable resources and actively engage.
This hands-on approach helps us identify how we can best support & make a difference.
@Looms4Lupus believes in grassroots engagement! Join us for a Free FARMWORKER HEALTH & COMMUNITY EVENT in Half Moon Bay with @CALifeSciences , ALAS, @SenJoshBecker Assemblymember Marc Berman.
11/23/2024 10 AM - 3 PM
735 Main Street, Half Moon Bay, CA.
Recursos en Español!