EverythingALS

We are a patient-focused non-profit bringing technological innovations and data science to support efforts, from care to cure, for people with ALS.

[EverythingALS @everything_als]

EverythingALS Launches #Vision2030 AI Hub – an innovative platform leveraging AI and #machinelearning to accelerate progress towards a cure. We're charting the path to a future free from #ALS and advancing neurodegenerative disease research. #endALS #cureALS @MIT @MassGeneralNews

[EverythingALS @everything_als]

Dr. Jinsy Andrews invites you to EverythingALS' next Expert Talk, happening this week!

She'll be discussing:
✨ Review of current ALS treatment options and when it may be time to consider clinical trials
✨ Break down of how to evaluate and choose the right clinical trial, including key decision factors and an overview of today’s pipeline
✨ Exploring Sava AI and how it supports trial navigation, decision-making, and continuous feedback to improve the patient experience

📅 Wednesday, April 29, 2026
⌚ 4 PM PT / 7 PM ET
🔗 Register: https://t.co/umeLyh0OSI

#everythingals #alscommunity #endals #alstrials #alsresearch #peoplelivingwithALS #als #alscaregivers #motorneurondisease

[EverythingALS @everything_als]

Our monthly Fireside chat is tomorrow where PALS and CALS come together to share everyday life questions and experiences.

📆 Wednesday, April 8, 2026
⏰ 4 PM PT / 5 PM MT / 6 PM CT / 7 PM ET
💻 held on Zoom
✍🏻 register at: https://t.co/GbWEadAIH5

The more, the merrier! If you have friends or other people in your ALS community, please invite them!

#ALSResearch #ALSJourney #alscaregivers #livingwithals #lifewithals #ALSCommunity #ALS #CaretoCure #everythingals #motorneurondisease

[EverythingALS @everything_als]

We’re expanding our work.

Introducing @Everything__AD, a new initiative under the Peter Cohen Foundation focused on Alzheimer’s disease and brain health.

Neurodegenerative diseases share overlapping biology, and progress in one area can accelerate breakthroughs across others. This is a natural next step in our commitment to citizen-driven research and open dialogue.

Join us tomorrow for our first EverythingAD Expert Talk, including live Q&A.

Register: https://t.co/Zqak3SCBaA

#BrainHealth #Alzheimers #Neurodegeneration #EverythingALS #EverythingAD

[EverythingALS @everything_als]

Join us on February 18 for the first episode of HopeUntangled! Register➡️https://t.co/RmNwXiE7Tv

ALSUntangled: https://t.co/hYHoZNdNra
ALS Hope Foundation: https://t.co/wK2owbiEr9

#ALS #ALSResearch #ALSCommunity #LivingWithALS #ALSReversals #DrBedlack

[EverythingALS @everything_als]

Join our Expert Talk Series tonight, featuring Dr. Stephen Kolb on "How to Kill a Motor Neuron".

4pm PST / 7 pm EST. Register at: https://t.co/vwLljLRpmz
#ALS #ALSResearch #ALSCommunity #CareToCure

[EverythingALS @everything_als]

Proud to share that EverythingALS CEO Indu Navar is attending #SCCWEF26 with the @SmartCitiesCncl during the World Economic Forum in Davos (Jan 18–23).

Bringing citizen-powered health data and patient voices into global conversations on the future of cities, technology, and public health.

🔗 https://t.co/IUBGPxTyAm

#SCCWEF26 @SmartCitiesCncl

[EverythingALS @everything_als]

🚨 Tonight! Our first Expert Talk of 2026 🚨

What if viruses play a role in ALS? Join us this evening as Dr. Gary Pattee explores emerging research in 🧬 “Chloroviruses in ALS” - a fascinating look at a lesser-known area of investigation that’s sparking important scientific questions.

📆 January 7
⏲️ 4 PM PT / 7 PM ET
🔗 https://t.co/kR91pnC56J

Curious minds welcome. Come learn with us. #ALS

[EverythingALS @everything_als]

As the year comes to a close, thank you for being part of this community.

The spark at the center of our work comes from people - your participation, curiosity, and shared commitment. Together, that light guides what comes next. Grateful for all we’ve built and hopeful for 2026.

#ALS #ALSCommunity #CareToCure #ALSResearch

[EverythingALS @everything_als]

Join us Wednesday for our final Fireside Chat of 2025!

A welcoming space to share practical tips for daily life with #ALS — or simply show up and be part of the community.

📅 Dec 17 | 🕓 4pm PT / 7pm ET
🔗 https://t.co/JRoJcvxbb2
#EverythingALS #ALSCommunity #CareToCure

[EverythingALS @everything_als]

Every 90 minutes, someone is diagnosed with ALS.

Progress doesn’t happen all at once — but it does happen when collaboration is intentional, hope is present, and voices are centered.

That’s how we move research forward. 💙

https://t.co/rNKJNzrs4m

#ALS #ALSResearch #ALSCommunity

[EverythingALS @everything_als]

Next week is an all new episode in our Expert Talk Series, featuring Dr. Suma Babu, Co-Director, Neurological Research Institute, Massachusetts General Brigham and Associate Professor of Neurology at Harvard Medical School.

"Healey ALS MyMatch Overview & Updates"
Wednesday, December 10, 2025
4 pm PST | 7 pm EST
register for the zoom event at https://t.co/kR91pnC56J

We hope you will join us! Please like, comment, and share this post to help spread the word.

#ALS #ALSCommunity #ALSFamily #ALSEducation #everythingals #CareToCure #alstrials #ALSResearch

[EverythingALS @everything_als]

Today’s Pathfinder Spotlight: Tony. 💙
A retired LA Firefighter and proud husband, father & grandfather, Tony brings deep compassion and lived experience to the ALS community.

His message:
“As a PALS, I understand what others are going through and therefore want to help them.”

Thank you, Tony, for all you do.

Connect with our Pathfinders in the EverythingALS app or at https://t.co/rNKJNzrs4m.
#ALS #ALSCommunity #CareToCure #PathfinderSpotlight

[EverythingALS @everything_als]

Join us next Wednesday for Giving Thanks with EverythingALS, a relaxed, drop-in Zoom gathering to connect, reflect, and share gratitude. 💛

Hosted by staff + Pathfinders. Everyone is welcome.

🗓 Nov 26
🕓 4pm PST | 7pm EST
🔗 https://t.co/jCBJDpuo9H

#EverythingALS #ALSCommunity #ALS #GivingThanksTogether #CareToCure

[EverythingALS @everything_als]

In honor of National Family Caregivers Month, we’re spotlighting Faith - a Pathfinder and caregiver whose compassion strengthens the ALS community. 💙

“ALS affects the whole family… no one should feel alone.”

Thank you, Faith.

#ALS #CaregiversMonth #ALSCommunity #EverythingALS #CareToCure #PathfinderSpotlight

[EverythingALS @everything_als]

Welcome to EverythingALS, a community of hope, science, and support. 💙

4 ways to get involved ⬇️
📱 Download the App
🧬 Join Studies & Trials
📧 Subscribe to Emails
🗓️ Attend Online Events
Your voice and experience matter.
🔗 https://t.co/RmNwXiE7Tv
#ALS #ALSCommunity #EverythingALS #CareToCure

[EverythingALS @everything_als]

Are you living with ALS or caring for someone who is? You’re not alone.

Join our monthly Fireside Chat hosted by the EverythingALS Pathfinders - leaders who understand the ALS journey firsthand. A space to listen, share, and connect. ❤️‍🔥

🗓️ Nov 19, 2025
⌚ 4pm PT | 7pm ET
🔗 https://t.co/SuqAjhNa9A

All impacted by ALS are welcome.

#ALS #ALSCommunity #CareToCure #EverythingALS

[EverythingALS @everything_als]

Honoring John - Pathfinder, Army veteran, and a steady source of courage.

After his ALS diagnosis, he chose resilience and now helps others find light on difficult days - especially fellow veterans.

On #VeteransDay, we honor John and all veterans living with ALS. Veterans face a higher risk of ALS, and the VA recognizes ALS as a service-connected condition. 📷 Thank you, John.

#EverythingALS #Pathfinders #ALSCommunity #CareToCure

[EverythingALS @everything_als]

Asymptomatic ALS or FTD gene carrier?
You may be just right for our fully remote study.
✅ Movement sensors
✅ Memory & thinking tests
✅ Speech & facial recording
✅ All from home Help advance early detection research.
🔗 Learn more at https://t.co/sLRwLKkgpr

#EverythingALS #ALSResearch #GeneCarrierStudy #CareToCure