FND FrieNDs

FND FrieNDs, based in the South West of England supports & educates those who have & care for those with a diagnosis of Functional Neurological Disorder (FND).

[Rhiann Johns @serenebutterfly]

"In truth, every day is a fight, a constant battle, trying to keep that smile painted on our face. But often, the demands of #chronicillness supersede everything else, and this performance becomes difficult to sustain." https://t.co/edS2Hznn7x via @serenebutterfly #Voices4FND

[MedtecLIVE @MedtecLIVE]

MedtecLIVE & SUMMIT 2nd Virtual Edition. Maximum reach at Europe’s leading spring meeting for the future of medical technologies.
#medicaltechnology

[Rebecca Kinge @kinge_rebecca]

Knitting for #Voices4FND

The blue and white squiggle is the recovery path for Functional Neurological Disorder. You get better over time but it’s a bit of a fluctuating process.

Hoping https://t.co/c2jlQLa9o6 don’t mind me re-creating their science into wobbly craft. 😃 💜🧶

[Georgia Thornhill @GeorgiaThornhi4]

Today is FND Awareness day. I have FND and the best way I have found of explaining it to help people understand is that my brain and body sometimes struggle to communicate with each other. #Voices4FND

[Joanne Wright BCAh🌻 @joatsunflowers]

@FndPortal By the way @FndPortal thanks for being such a huge advocate. You’re awesome 😎

[FND Action @FNDAction]

"I am now just starting to learn about my condition, what my triggers are & how to live with it."

Caroline's story for #Voices4FND

Functional Neurological Disorder awareness.

https://t.co/EydwqvHf88

[FND Action @FNDAction]

"But I will be me again and not let this condition stop me living and enjoying my life!"

Shelby's story for #FND Awareness Day UK

Functional Neurological Disorder

#Voices4FND

https://t.co/RACxYukJQb

[Movement Disorders Groningen @MDGroningen]

Dear Twitter followers,

Today it's FND Awareness Day! Functional Neurological Disorder is a genuine and disabling disorder. More recognition and awareness of FND is important. Traditionally abandoned, now there are endeavours ongoing to improve the outcomes for FND!

[Dr Leo Russell @LeoISTDP]

Great opportunity for colleagues to see the excellent Dr Allan Abbass present on @ISTDP for #FND - including a theoretical overview, how to identify when the treatment is indicated, & moment-to-moment analysis of it's application using video examples.
https://t.co/1ajSTT8Iga

[FND Action @FNDAction]

Sharon shares her creativity for #FND Awareness Day UK. Functional Neurological Disorder.

#Voices4FND

https://t.co/m95qS6grX3

[amanda hall @mandydr04]

Imagine being locked inside your body and being unable to move or communicate #FND #voices4fnd #FNDAwarenessDay

[FND Action @FNDAction]

@AccessCard Thank you for your support 💜

[Joanne Wright BCAh🌻 @joatsunflowers]

Would I have been #FNDAWARE had my own daughter been ravaged by the effects of it? No. And whilst I won’t ask you to watch as she repeatedly loses her memory, screams in pain and has seizures, I will ask you to check out https://t.co/tLiDXnXOaM - Please.

[FND Dimensions @FNDDimensions]

PLEASE DONATE at https://t.co/OQm708RM1Q All funds will be donated to the Allied Health FND Networking Group - 3 charities @FNDDimensions @FNDAction & @fndfriends supporting clinicians in supporting those diagnosed with FND. It's a win win! @GNielsen_Physio @CNicholsonOT

[FND Dimensions @FNDDimensions]

The FND Awareness Day UK activities are going really well, with lots of involvement from patient and clinicians alike. Be @fndaware #Voices4FND @FNDACTION @fndfriends @NICEGetInvolved @GNielsen_Physio @CNicholsonOT

[Roisin Murray @RoisinB763]

Today is FND Awareness Day. Here's a lovely straightforward explanation of FND for anyone who feels unsure about it.

[Get Involved at NICE @NICEGetInvolved]

It's #FNDAwarenessDay #Voices4FND The symptoms of Functional Neurological Disorders are common but can be difficult to understand. Our guidance and quality standard say support people to manage #FND symptoms with tailored care and treatment: https://t.co/DQrhkt3b8o

[FND Action @FNDAction]

"I have been seizure free for 2 years now such an achievement..."

Nicola's story for FND Awareness Day UK #Voices4FND #FND

https://t.co/2D2ZexSxd4

[FND Action @FNDAction]

Functional Neurological Disorder is a condition that affects how the brain/nervous system sends and receives messages through the body. A person can not consciously control these messages when they go wrong.

It's a disorder, not a decision.

#Voices4FND #FND