FND Portal - is no longer on X

A person with Functional Neurological Disorder. Disability advocate. Patient advisor to research, clinical, + policy teams at FNDS, AAN, UCL, KCL, NHNN.

[FND Portal - is no longer on X @FndPortal]

Thank you for everything, friends - the community here was remarkable while it lasted.

But Elon has destroyed this place.

So I’m out.

See you on other platforms.

[FND Portal - is no longer on X @FndPortal]

@sarah277283 I hear what you’re saying but I’ve maintained a growing block list for years and have reached the tipping point with all the toxicity, scams, AI, engagement bait.

Best wishes 👋

[FND Portal - is no longer on X @FndPortal]

Thank you for everything, friends - the community here was remarkable while it lasted.

But Elon has destroyed this place.

So I’m out.

See you on other platforms.

[FND Portal - is no longer on X @FndPortal]

@KH118118 See ya there!

[FND Portal - is no longer on X @FndPortal]

@DrAnnieHickox 🫡🫡

[FND Portal - is no longer on X @FndPortal]

@gar_mcguigan Very much likewise, friend! ❤️ I look forward to the moment

[FND Portal - is no longer on X @FndPortal]

@SarahFPoetry Bluesky and insta! See you there? 👀

[FND Portal - is no longer on X @FndPortal]

@thepeacepoet99 I can’t imagine what a miserable person you must be to spend this life - the only one you’ll ever get - doing this!

Just know that contributing to the oppression of vulnerable people will never gain you the acceptance you so pathetically seek.

[FND Portal - is no longer on X @FndPortal]

@ivy_cardinal @thepeacepoet99 That’s not what it means. But clearly you know a lot about this - by all means don’t let me get in the way of your bigotry!

[Journals of The American Psychiatric Association @APAPubJournals]

Patients with functional neurological disorder have altered neural activations during cardiac interoception, highlighting the need for neurophysiological assessments of interoception in such patients. https://t.co/mW0IkLTHis

[CLaE @leafs_s]

eLife

When abstract becomes concrete, naturalistic encoding of concepts in the brain

https://t.co/gHoL5wMrpF

[FND Portal - is no longer on X @FndPortal]

@SarahFPoetry I don’t know, considering many top people in the Trump orbit talk around rounding up and jailing / killing those that disagree with them, I think “Lana, how do your values square with that?” is a reasonable question.

Many of us grapple w this in our own social circles

[FND Portal - is no longer on X @FndPortal]

@Z3R0Gravitas Hope this isn’t presumptuous. I’m rooting for you. 🙏

[FND Portal - is no longer on X @FndPortal]

@Z3R0Gravitas If you want to go hard on the specific science I’m thinking of at some point: it’s up-regulation of amygdalar circuits, which could trigger increased arousal, autonomic activity, problem sleeping, but not always feeling of stress.

See: Joseph Ledoux, L Feldman Barrett

[FND Portal - is no longer on X @FndPortal]

@Z3R0Gravitas You are not a wuss. This sounds hard! Please allow yourself some compassion. This would suck for anyone.

[FND Portal - is no longer on X @FndPortal]

@mdonnino @CollinRugg @greygnome That’s the elephant in the room on this issue.

Don’t know Mangione’s med history but the overall success rate of “surgery to fix back pain” is grim.

Interoceptive inference potentially relevant too - anxiety not always required for CNS to perpetuate pain after injury.

[FND Portal - is no longer on X @FndPortal]

@the_jono_brand And if you’d like to connect w folks, there are small but vibrant FND groups + communities on most social platforms (although a bit of an exodus from X lately).

Recommend @FNDHopeUK @FNDAction as great first follows if you’re interested.

Best wishes 🙏

[FND Portal - is no longer on X @FndPortal]

@the_jono_brand Hi Joni. So sorry that FND affects your life.

In case it’s helpful, Ive curated a short list of (mostly free) resources from the FND community. Hope you find something interesting here!

https://t.co/H4ivPCxJwi