GBS|CIDP Foundation

To support those affected by GBS|CIDP & variants so each patient obtains an early diagnosis, proper treatment &the opportunity for a full recovery #raredisease

[GBS|CIDP Foundation @gbscidp]

"Thousands of Americans develop Guillain-Barré each year. Yet the public is largely unaware of the condition and its life-altering consequences," says our president and CEO, Lisa Butler. Get informed -- check out our patient experience survey: https://t.co/3OyJVcUVs3

[GBS|CIDP Foundation @gbscidp]

Today, on Rare Disease Day, we released a new survey highlighting the Guillain-Barré Syndrome (GBS) patient experience. Our data highlights the urgent need for more awareness, research, and support. Read more: https://t.co/3OyJVcUVs3

[GBS|CIDP Foundation @gbscidp]

Thank you @Braves for your generous donation in support of #MaxStrong. Wishing Max and his family the best during his recovery.

[Atlanta Braves @Braves]

Before tonight’s game, Atlanta Braves President & CEO, Derek Schiller, and Manager Brian Snitker, presented @FreddieFreeman5 and @chelseafree5 with a donation in Max Freeman’s name to @gbscidp.

#MaxStrong

[GBS|CIDP Foundation @gbscidp]

@Braves @FreddieFreeman5 @chelseafree5 Thank you to the @Braves for your generous donation! Wishing Max the best and are cheering him on every step of the way!

[Clive Phillips - Making the Most of Now @makemostnow]

Pleasure to share my recent chat with @nancydisalvo from the @gbscidp as GBS|CIDP Awareness Month kicks off. Nancy is a remarkable #raredisease advocate and support to those with #GBS, #CIDP and #MMN.
Full episode at https://t.co/JVue5IvlA1 and all major podcast platforms😀

[GBS|CIDP Foundation @gbscidp]

Hear from someone with #CIDP on their #ClinicalTrial experience during our upcoming FREE #PatientEducation program with @medliveofficial. Tune in to learn about the latest CIDP treatment options and trials looking for participants now! https://t.co/LeqKbVSIU4

[GBS|CIDP Foundation @gbscidp]

@SyndromeBa23861 If you are interested in joining a walk, please visit our walk page. We have a few more walks this year you can participate in - https://t.co/TBPqOGPTRt

[GBS|CIDP Foundation @gbscidp]

Happy Walk Wednesday! We have not 1 but 3 Walk & Rolls for you to attend this weekend! On Saturday, September 9th, is our Los Angeles and Pittsburgh, PA Walk. This Sunday, September 10th, is our Columbus, OH Walk! Register Today! https://t.co/TBPqOGPTRt

[GBS|CIDP Foundation @gbscidp]

Live at 1:00 PM today for a webinar on observational and clinical trials for #MMN. Hear from neurologists, MMN patients, and the GBS|CIDP Foundation International on how observational trials can help us to develop new treatments. Watch now: https://t.co/qZTeJ0IooJ

[GBS|CIDP Foundation @gbscidp]

Join us for a webinar on observational trials in #MMN. Hear from neurologists, people living with MMN, and a rep from GBS|CIDP Foundation International on how observational trials can help us to develop new treatments. Register now https://t.co/8Qkf7odQ3U #ObservationalTrials

[GBS|CIDP Foundation @gbscidp]

Great collaborating with @IDFCommunity! Read the latest article for details.

[Immune Deficiency Foundation @immunedeficienC]

If you have an individual UnitedHealthcare plan (purchased through a marketplace), you may be losing access to four immunoglobulin products as of Oct. 1. Thank you to @gbscidp for collaborating on this issue! Read our latest article for details: https://t.co/sW2B6dxn0w.

[GBS|CIDP Foundation @gbscidp]

Hello September!😄 The GBS|CIDP Foundation has a variety of future virtual events free to attend for additional education on GBS, CIDP, and its variants. Click the link to register! https://t.co/yFKOI7HIdR

[GBS|CIDP Foundation @gbscidp]

"When I was diagnosed with GBS, I was not allowed visitors due to COVID. My daughter Jessica, an RN, followed my journey through video conferences with my doctors and with me, of course! Jessy has been my support hero ever since. I have the best daughter ever."

[GBS|CIDP Foundation @gbscidp]

The Hilton Alexandria Mark Center will host our 2023 Symposium in Washington, D.C.! Our event will kick off with a welcome celebration, two full days of sessions, and then close with a celebration. Click the link to reserve your room! https://t.co/yYYHRqMl7Y

[Patient Worthy @PatientWorthy]

Being an Olympic Swimming Legend Doesn’t Ease the Burden of Chronic Inflammatory Demyelinating Polyneuropathy https://t.co/BzT13i2N8T #CIDP #ChronicInflammatoryDemyelinatingPolyneuropathy #RareDisorder #AutoimmuneDisease #RareDisease @gbscidp

[GBS|CIDP Foundation @gbscidp]

Our Symposium is only one month away! Please see the important deadlines below. Tuesday, September 5th: Last day to book a room within our discounted room block and Friday, September 29th: Last day to register for the Symposium! Register Today! https://t.co/fBJcJqFIkR

[GBS|CIDP Foundation @gbscidp]

I tried to get out of bed but collapsed. I noticed that my left leg had no strength. Fortunately, I got the diagnosis of GBS before getting to the hospital. My husband was by my side and held my hand daily, encouraging me and reassuring me there was light on the other side.

[GBS|CIDP Foundation @gbscidp]

Walk & Roll was created for friends, families, & volunteers to raise awareness, show support, make memories, and build a local community. Invite your friends, family, & community to join our commitment to support those touched by GBS, CIDP and variants. https://t.co/TBPqOGPTRt

[GBS|CIDP Foundation @gbscidp]

For those new to our Foundation, we developed a virtual “Ask the Expert” educational series featuring medical experts from our Global Medical Advisory Board! New eposodes will air live every month. Previous webinars will be available on demand. https://t.co/ydpt9Akqhp

[GBS|CIDP Foundation @gbscidp]

We're happy to announce Kate Costello, MS, CNS, LDN, Functional Nutrition/Health & Wellness Coach, as our speaker at the 2023 Symposium! Kate teaches the practical truths of nutrition and the power of daily nutrient-dense eating. Register Today! https://t.co/fBJcJqFIkR