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Give Rare
@giverare
#RAREDisease
fundraising on steroids. Sign-up your nonprofit at before Feb 15 for chance to win free URS filing. Hosted by @keeganj
Joined October 2014
514
Following
390
Followers
350
Posts
giverare
retweeted
Angela
@Ang_XoXo17
over 11 years ago
·
Lindenhurst
@harmonize4hope
@GlobalGenes
@giverare
#WRDM2015
Give Rare
@giverare
over 11 years ago
@giverare
#raredisease
nonprofits have also raised over $15K since Give Rare. Platform can be used all year for your own fundraising.
giverare
retweeted
The PEP
@ThePatientExp
over 11 years ago
Another amazing year for
#RareDisease
Day. More than $250K raised at first
@globalgenes
@giverare
! http://t.co/Ipw7QixCfq
Give Rare
@giverare
over 11 years ago
#cordrdd15
At the conference in toronto today. Durham kicking things off
Who to follow
RARE Foundation
@RareAdvocates
We are a community of relentless advocates who drive public policy to improve the quality of life for all people living with rare diseases.
Marc Yale
@MarcYale
Advocacy & Research Coordinator, International Pemphigus and Pemphigoid Foundation, #RareDisease Patient, Passionate Advocate and Father. #pemphigus, #pemhigoid
WORLDSymposia
@WORLDSymposia
We're Organizing Research on Lysosomal Diseases
Give Rare
@giverare
over 11 years ago
@CCAKidsTweet
@PittHopkins
won the most patriotic prize with donationa from 40 different states!
Give Rare
@giverare
over 11 years ago
@CCAKidsTweet
Yes. Both promotional and social media prizes were won by
@SAVE_JON
! Great tweets all around.
giverare
retweeted
Harmony 4 Hope
@harmonize4hope
over 11 years ago
@giverare
@GlobalGenes
THANK YOU for being an amplifier of our musical mission 4
#RareDisease
@Ang_XoXo17
#GiveRare
giverare
retweeted
Angela
@Ang_XoXo17
over 11 years ago
·
Massapequa Park
@krismicklin
@KrisAllen
@GlobalGenes
@giverare
@harmonize4hope
isn't it! I'm beyond having words for everything and everyone ❤️
#WRDM2015
Give Rare
@giverare
over 11 years ago
@MdDSFoundation
@razoo
@keeganj
Thanks to you as well ... we are starting big plans for next year ... stay tuned.
Give Rare
@giverare
over 11 years ago
Congrats
@PittHopkins
for winning the "Most Patriotic" grant. In the end you received donations from 40 states. Amazing reach!
Give Rare
@giverare
over 11 years ago
Congrats
@SAVE_JON
for winning BOTH promotional and social media grants! You guys are the 2015
#raredisease
social media champs!
giverare
retweeted
Mightycause
@mightycause
over 11 years ago
@MdDSFoundation
@giverare
@keeganj
Congrats on an AWESOME day! :-)
giverare
retweeted
FMDSA
@FMDartery
over 11 years ago
@giverare
@keeganj
@GlobalGenes
amazing event last night! Congratulations to all!
#RareDisease
giverare
retweeted
Keegan Johnson
@keeganj
over 11 years ago
Over 1/4 Million raised for
#RareDisease
in one day!
@GiveRare
2015 was a hit. Mark Tues. Mar 1, 2016
#GiveRare2016
#JustGettingStarted
Give Rare
@giverare
over 11 years ago
1 hour to go! Checkout the
#RareDisease
leaderboards at http://t.co/iTGfYY9jic. We have a couple close competitions.
#GiveRare
giverare
retweeted
Shawn P Johnson
@spjay
over 11 years ago
Wow! We just passed $6K. 23hrs we have raised just over $6K. Lets see if we can make the last hour the best! http://t.co/XwXb3NBlSR
Give Rare
@giverare
over 11 years ago
4 hours to go in http://t.co/iTGfYY9jic ... congrats to the participating
#RareDisease
non-profits for breaking $200K in 24 hours!!!
giverare
retweeted
Rare Disease Report
@RareDR
over 11 years ago
Less that 4 hours to go and
@FMDSA
is the group to beat. http://t.co/9pwzwvhWrd
giverare
retweeted
U. R. Our Hope
@UROurHope
over 11 years ago
#Austin
4 hrs left to
@giverare
We're moving up the leaderboard so keep donating! http://t.co/3Q3IeppTmw
#giveRare
Give Rare
@giverare
over 11 years ago
@harmonize4hope
@Ang_XoXo17
@KrisAllen
That picture makes me want to speak up
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