AlbinismAlliance

🌍 Empowering and Protecting People with Albinism Worldwide: Building Stronger Communities, Amplifying Global Impact, Advocating for Rights and Inclusion.

[UN Independent Expert on Albinism @UnAlbinism]

26 days to #IAAD2026!

No one should feel unsafe because of their skin tone.
Protect the rights and lives of persons with albinism.
#IAAD2026

[AlbinismAlliance @GlobalAlbinism]

Right to employment for persons with albinism - Report of the Independent Expert on the enjoyment of huma rights by persons with albinism https://t.co/KopZDloG3W

[AlbinismAlliance @GlobalAlbinism]

🎥 Daniël Herter shared his passion project yesterday: the story of Ukerewe, an island in Tanzania where people with albinism are safe. And that contrast hits hard - because in many other places across Tanzania, albinism is still seen as a curse https://t.co/dM2iVJFlDM

[AlbinismAlliance @GlobalAlbinism]

This landmark two-day event united some 70 delegates from 30 countries, forging the first-ever global coalition of stakeholders dedicated to combating the preventable crisis of skin cancer in persons with albinism (PWA).

[AlbinismAlliance @GlobalAlbinism]

PRESS RELEASE: Global Leaders Finalize Key Outcomes from Inaugural World Forum on Skin Cancer Prevention in Persons with Albinism. https://t.co/ti4kQBd3oW

[AlbinismAlliance @GlobalAlbinism]

Following intensive post-event deliberations to consolidate insights and chart a unified path forward, the @GlobalAlbinism, @ILDSDerm, & @StandingVoice announce the finalized outcomes of the inaugural World Skin Forum on Skin Cancer Prevention and Management in PWAs

[AlbinismAlliance @GlobalAlbinism]

We’re proud to have connected with so many experts and allies, and to keep albinism firmly on the dermatology agenda. We’re excited to continue these conversations in 2026 and to see the impact they will have for persons with albinism worldwide. 💙 #Albinism #Dermatology

[AlbinismAlliance @GlobalAlbinism]

🧵The GAA team was thrilled to attend the Journées Dermatologiques de Paris (JDP) last week – our last conference of the year. 🇫🇷✨ This congress brought together francophone leaders in dermatology from across the globe.#RareDiseases #SkinCancerPrevention

[AlbinismAlliance @GlobalAlbinism]

For the albinism community, it’s a vital moment to advance research, share knowledge and advocate for better care and understanding of albinism.

[AlbinismAlliance @GlobalAlbinism]

Yet attacks continue. Stigma persists. Cancer kills silently.

No child should live in fear because of the color of their skin.

Stand with us.

✨ #AlbinismAlliance #Albinism #HumanRightsDay #AlbinismIsNotACurse

[AlbinismAlliance @GlobalAlbinism]

🧵 On #HumanRightsDay, we celebrate a historic victory for people with albinism worldwide.

In 2015, the @UN created the Independent Expert on albinism - the world’s first & only human rights mandate dedicated to protecting one specific genetic condition.

Why?

[AlbinismAlliance @GlobalAlbinism]

• UN resolutions condemning attacks
• Global reports exposing myths & violence
• Legal & policy changes in 10+ countries
• A voice at the highest table saying:

“Albinism is not a curse. It is a human rights issue.”

[AlbinismAlliance @GlobalAlbinism]

May his story continue to inspire inclusive leadership and higher expectations for what is possible. ✨

If you worked with Mike or were influenced by his advocacy, we’d be grateful if you shared a reflection or lesson you carry forward from him.

[AlbinismAlliance @GlobalAlbinism]

One year ago, our we lost an exceptional leader: Mike McGowan As we remember Mike today, we honor his vision: a world where people with albinism are seen, included and allowed to thrive. 💙

#AlbinismAwareness #Inclusion #DisabilityRights #GlobalAlbinismAlliance

[AlbinismAlliance @GlobalAlbinism]

The Global Albinism Alliance welcomes the stark warning from UN Independent Expert Muluka-Anne Miti-Drummond on the dire skin cancer crisis affecting people with albinism, as detailed in the recent OHCHR press release 👇 https://t.co/ZDelXJmmYQ

[NOAH @NOAHAlbinism]

Doctors & med students with albinism, we’re looking forward to seeing you for our next meeting of Doctors with Albinism on Sunday, December 7th at 9am ET // 6am PT. Join us to connect and share with peers who understand the journey of medicine as a PWA.

https://t.co/lVHB46tKir

[AlbinismAlliance @GlobalAlbinism]

☀️DYK - Persons with albinism face a staggering 1,000x higher risk of skin cancer. At the Global Albinism Alliance (GAA), we're committed to raising awareness, providing sunscreen access, and advocating for protective policies worldwide. Let's protect and empower our community!

[Ross Halliday @RossHalliday]

Persons with albinism, a genetic condition affecting pigmentation, face an extraordinarily high risk of skin cancer due to extreme sun sensitivity, with rates up to 1000 x times higher than the general population in sun-intense regions like sub-Saharan Africa.

[AlbinismAlliance @GlobalAlbinism]

We're excited to share this important update from @IARCWHO on advancing equitable cancer prevention worldwide. As the GAA continues to support cancer awareness and research through our community initiatives, let's all tune in to learn how we can make a difference 👇

[IARC @IARCWHO]

🔹Just 7 days to go until the second webinar in the IARC@60 series🔹
This session will explore how equitable access to preventive measures can reduce the global #cancer burden and promote health for all.
🗓️ Join us on 19 November 2025 at 2:00 p.m. (CET)!

[AlbinismAlliance @GlobalAlbinism]

🎥 Have a watch of this great video of young people with albinism talking honestly about what it’s like being a PWA in 2025!!

@LOOK_UK #iaad2025 #AlbinismDay #albinism #nystagmus #Disability

[Albinism Fellowship @AlbinismUK]

Great video with young people with albinism talking honestly about what it’s like being a PWA in 2025 @LOOK_UK #iaad2025 #AlbinismDay #albinism #nystagmus #Disability

https://t.co/nDVroJgJsr