Myalgic Encephalomyelitis is a serious neuro-immunolog. disease🔥
Myalgische Enzephalomyelitis ist eine schwere neuro-immunolog. Erkrankung🔥
Please inform yourself about #MECFS🆘🚨
@GeorgeMonbiot on #LongCovid, Chronic Fatigue & Misogyny https://t.co/HgTeZtNtZE via @YouTube
❤️🔥Die Hütte brennt: Den #Journalismus von @RiffReporter wird es nur weitergeben, wenn das Magazin eine Finanzierungslücke schließen kann.
🧯Dieses #Crowdfunding sichert den weiteren Betrieb: https://t.co/zr6hTCSnwJ
🧑🚒 Helft mit und teilt diesen Post. Alle Infos unter dem Link!
Highlights from recent German TV that looked at brain retraining for #MECFS.
A doctor with #MECFS says the programme made her feel she just had to keep trying harder. She eventually suffered a severe crash.
She is “angry” and says that these programmes are endangering people.
“People with ME have sadly had to endure far too much disbelief and delay.”
Clip of Dr Hans Kluge, WHO Regional Director for Europe, opening the @Invest_In_ME 2026 International ME Conference #IIMEC18.
Statt medizinischer Unterstützung Münchhausen by Proxy Verdacht:
Das Leid und Unrecht,
das Eltern und ihren an #MECFS#PEM erkrankten Kindern durch Unkenntnis, Psychologisierung
und sogar Inobhutnahme widerfährt, ist ungeheuerlich.
@BMG_Bund, @ninawarken:
Aufklärung jetzt!
Ich hab mit edition a ein Buch über ME/CFS gemacht.
Hoffentlich ist es hilfreich vor allem für jene, wo die Diagnose noch unklar ist.
Normale medizinische Versorgung kann es jedenfalls nicht ersetzen. Darum geht mein Anteil zu 100% an CS Nordlicht der @CaritasSocialis.
Wie es mit Mutter und Kind weiterging?
Nina Weber berichtete weiter.
Leider wirkt dieser Fall rückblickend nicht wie eine Ausnahme, sondern wie ein Warnzeichen.
Wenn #MECFS#PEM od.
PAIS bei Kindern unverstanden bleiben,können Schutzsysteme selbst zur Gefahr werden.
#LearnAboutME
Wonderful day for a new #LongCOVID paper! Thanks to an incredible collaboration with @VirusesImmunity and brilliant work done by @keylas3, we studied the effects of injecting antibodies taken from people with LC into mice compared with what happened
https://t.co/uotWM9LUEG
1/
@CK65375@MelS21928224 Baseler "Experten" haben da was verwechselt.
Richtig heißt es:
Mediziner könnten durch faktenbasierte Fortbildung & Einbeziehung von Patientenerfahrungen veraltetes Wissen & ideologisch bedingte Theorien "verlernen" & endlich damit beginnen #LongCovid- & #MECFS-Pat. zu helfen.
Too on point not to share. This is great, but too bad the Orange Felon’s enablers won’t let him see it.
This Australian's reply to #Trump's rant about “NATO not being there for America” is perfect.
"Mate. You run a country with 600,000 homeless people sleeping on the street tonight. A country where 40% of adults can't cover a $400 emergency without borrowing money. A country where insulin costs more than a car payment and people are rationing it to survive. A country where medical debt is the number 1 cause of bankruptcy. A country where women are dying in hospital car parks because doctors are too scared of abortion laws to treat a miscarriage.
You lock up more of your own citizens than any nation on earth. More than China. More than Russia. More than North Korea. The land of the free has 2 million people in cages, and a quarter of them haven't even been convicted of anything. They're just too poor to make bail.
Your life expectancy is going backwards. You're the only developed nation where that's happening. Your infant mortality rate is worse than Cuba's. Your kids do active shooter drills between maths and English while you sell the gunmaker's stock to your mates.
Your minimum wage hasn't moved in 15 years. You've got teachers working 2 jobs and veterans sleeping under bridges and you just spent a trillion dollars flattening a country that didn't attack you.
And you’ve got a convicted felon, adjudicating raping, paedophile protecting, porn star shagging insurrectionist running the biggest dumpster fire war campaign since the Taliban thanked you very much for losing again.
And you're calling Greenland poorly run?
Greenland has universal healthcare. Free education. One of the lowest incarceration rates in the world. Nobody goes bankrupt there because they got sick. Nobody dies in a waiting room because their insurance said no.
'NATO wasn't there when we needed them." When exactly was that, champ? September 11? Because NATO invoked Article 5 for the first and only time in history FOR YOU. Soldiers from dozens of countries deployed, fought, bled, and died in Afghanistan FOR YOU. Australia wasn't even in NATO and we still showed up. For 20 years.
And you pulled out at 2am without telling anyone and left them to deal with the mess.
So maybe before you start calling other countries poorly run, have a look at your own backyard, you spray-tanned aluminium siding salesman. The only thing poorly run in this picture is your f----- mouth."
- Tony Locke
Many chronically ill patients no longer fear only their disease. They fear the healthcare system itself after years of dismissal, disbelief, humiliation, and abandonment.
🚨🚨The Trump Crime Family is more corrupt than the totality of All Previous Organized Crime Families Combined in the history of the United States.
———————————————
I spent thirty (30 years investigating Major Organized Crime Families & Gangs and without a doubt, Donald Trump has committed more crimes against the United States of America and its citizens than all Organized Crime Syndicates.
TRUMP is directly responsible for the theft of billions of dollars and the systematic destruction of our economy, the rule of law and our democracy.
TRUMP must be Impeached and Removed from office by the U.S. Congress this year. Both Democrats & Republicans must join together to save our nation.
Millions of people got sick, then got sicker — and then stopped getting better.
They came back with normal labs. Unremarkable imaging.
And the quiet suggestion that maybe the problem wasn't biological.
Long COVID didn't just introduce a new illness. It exposed how modern medicine responds when suffering can't yet be measured.
Modern healthcare systems struggle with:
- Illness without measurable biomarkers
- Symptoms that fluctuate and defy categorization
- Patients — especially women — whose suffering outpaces the science
- Chronic complexity in a system built for acute resolution
What Long COVID revealed was already there.
Patients with ME/CFS, fibromyalgia, and dysautonomia (like POTS) had been describing this reality for decades.
Long COVID just made it impossible to ignore.
In this essay, I explore:
- Why Long COVID exposed cracks in medicine that existed long before the pandemic
- How "we can't explain this" quietly became "this may not be real"
- Why chronically ill patients already knew this story
- How a system built for acute disease failed millions with chronic illness
- Why Long COVID's research funding is catastrophically misaligned with its actual harm
- And what medicine still owes the patients it dismissed
https://t.co/ZyhfAYtqn2
Caroline Kingdon speaking about functional impairment and mortality in #MECFS
Biobank research has shown people with ME/CFS to be more functionally impaired than people with MS. And between 2001–2016, ME/CFS was mentioned on 88 death certificates in England and Wales.
Psychosomatik ist also für Pat, die wegen „Symptom-bezogener dysfunktionaler Gedanken, Emotionen und Verhaltensweisen übermässig medizinische Versorgung in Anspruch nehmen und leiden.“
Das wird akzeptiert, ohne weiter zu hinterfragen? Also die Reste-Rampe wenn, wie bei 90% der
@DrCWerner In der #Psychosomatik gibt's keine Genetik, Biochemie, Physiologie, Immunologie, Endokrinologie etc. Nur #Psychologie pur. Damit wird man chron. Krankheiten nie heilen. Rate #Psychosomatikern alle "AbenteuerDiagnose"-Folgen zu studieren.
#MECFS#LONGCOVID
https://t.co/HYYk3jb4r4
George Monbiot describes the treatment of #MECFS as “The Greatest Medical Scandal of the 21st century”. Repost of the introduction to my 27-minute explainer video for #MEAwarenessMonth — now optimised for phones.
@GrandeBettina@aerztezeitung Was ich nicht verstehe ist, dass Ärzt*Innen nach monatelanger bzw. jahrelanger erfolgloser Behandlung ihrer Klienten durch #Psychosomatik & #Antidepressiva immer noch hartnäckig darauf beharren, dass die Beschwerden der Pat. eine psychische Ursache haben müssen.
#MECFS#LONGCOVID