I AM ALS

I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.

[I AM ALS @iamalsorg]

We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ https://t.co/VhKhQrJx4S

[I AM ALS @iamalsorg]

"Curtis was diagnosed in 2019, just as the pandemic hit. He lived the best life he could for as long as he could, just 3+ years. The love of my life, father of three, grandfather of five, died in September 2022. He is greatly missed" — Jenny, related to someone we've lost to ALS

[I AM ALS @iamalsorg]

What life lessons from Tuesdays with Morrie have stayed with you? Join bestselling author Mitch Albom LIVE on June 17 @ 3:30PM ET for a special I AM ALS Book Club conversation about connection, purpose & what matters most. RSVP: https://t.co/E3t13Gakuq

[I AM ALS @iamalsorg]

Thank you @Rep_Magaziner for cosponsoring the #JusticeForALSVeterans Act! Veterans with ALS often pass before qualifying for full survivor benefits, leaving families without critical support. This bill fixes that gap. Help get it across the finish line: https://t.co/iok5N4qCZd

[I AM ALS @iamalsorg]

Tim Lowrey began this panel series to educate more people about ALS through their schools or places of work. We miss him very dearly, and we're upholding his legacy by continuing to offer his virtual panel discussions. Request a panel @ https://t.co/y6Dmv7CnVw

[I AM ALS @iamalsorg]

A huge thank you to @GrooveSubaru for their generous donation to the I AM ALS community! 💙

We're especially grateful to community member Nicole Cimbura for helping make this partnership possible. Together, we're driving hope, awareness, and action for people living with ALS.

[I AM ALS @iamalsorg]

Lou Gehrig Day is powered by community. From ballparks to living rooms, the ALS community came together this year to raise awareness and drive action.

What was your favorite Lou Gehrig Day moment this year? Share it below. ⚾💙

[I AM ALS @iamalsorg]

The House Appropriations Committee moved forward a bill that will fund ACT for ALS at 85M, $10M more in ALS research at the NIH, and $3M more for the CDC’s ALS Registry at CDC. We are grateful for the increases in funds, but it is not enough. Take action: https://t.co/WtYIs36gaJ

[I AM ALS @iamalsorg]

Living with ALS? You don’t have to navigate it alone.

I AM ALS Peer Mentors provide personalized, specially trained support from someone who understands the ALS journey firsthand.

💙 Find your Peer Mentor today:
https://t.co/ynhY6F1PxU

[I AM ALS @iamalsorg]

🚨 ACT for ALS is closer than ever.

Thanks to our advocacy, we now have 70+ House cosponsors, strong bipartisan support, and a unanimous committee vote.

But we’re not done yet. Tell your Senator: cosponsor ACT for ALS today.

🔗 https://t.co/mr09LldAKa

[I AM ALS @iamalsorg]

"The Royals allow me to share my story & stand by my side. Lou deserves to be honored & this is the perfect way to do it. It is also a huge opportunity to raise awareness for the dreaded disease. Baseball is a beautiful thing!"—@SarahNauser, living w/ALS| https://t.co/UvbpFw1XaY

[I AM ALS @iamalsorg]

📚 Join us and Mitch Albom for a SPECIAL I AM ALS Book Club event in 10 days! 💙

Don’t miss this powerful conversation with the legendary storyteller and longtime ALS advocate.

🗓 June 17
⏰ 3:30 PM ET
🎟 RSVP: https://t.co/E3t13Gakuq

[I AM ALS @iamalsorg]

⚾️ Lou Gehrig Day 2026 was one for the books.

31 teams.
One incredible community united in hope, action, and support. 💙

Thank you to everyone who helped make this day so meaningful.

Tag @iamalsorg in your Lou Gehrig Day posts so we can celebrate with you.

[I AM ALS @iamalsorg]

Thank you, Senators @lisamurkowski and @SenAmyKlobuchar, for co-sponsoring the Credit for Caring Act! 💙

This bill is an important step toward recognizing the financial burdens caregivers face every day.

Help get this bill across the finish line 👉 https://t.co/id0153yRtk

[I AM ALS @iamalsorg]

⚾ Bidding is open!

Celebrate the life and legacy of “The Iron Horse” Lou Gehrig with an Oris Lou Gehrig Limited Edition timepiece—one of just 2,130 pieces, honoring his record-breaking consecutive game streak.

Join the auction to help fight against ALS: https://t.co/dvgkhUehTK

[I AM ALS @iamalsorg]

ALS taught many of us how to ask for help.

AND how to accept it. 💙

Thank you for sharing your ALS story, Wilbert, and for reminding us of the strength found in community and support.

[I AM ALS @iamalsorg]

"At the beginning of my junior year of college, my dad, my biggest supporter, was diagnosed with ALS. Taking on this huge responsibility at 21 has been one of the hardest things to do. I want to make an impact in the ALS community" — Aaliyah, caring for her dad living with ALS

[I AM ALS @iamalsorg]

ACT for ALS is gaining real ground — thanks to this incredible community. We’re now at 63 House cosponsors, and momentum is building in the Senate. Now it’s time to act: ask your Senator to cosponsor ACT for ALS today → https://t.co/mr09LldAKa

[I AM ALS @iamalsorg]

Our peer mentors are specially trained, personally impacted by ALS, and ready to meet you where you are. 💙

Find YOUR Peer Mentor → https://t.co/ynhY6F1PxU

[I AM ALS @iamalsorg]

We are so grateful to new FDA Commissioner @FDA_KyleD and the entire agency for their commitment to regulatory flexibility and progress. It was an honor to be in the room with other rare disease leaders to recommend concrete changes and advance therapies.

[I AM ALS @iamalsorg]

Many community members we met on the National Mall echoed what Tanya shared: the ALS community provides connection, camaraderie, and belonging throughout an otherwise isolating journey. 💙

Thank you for sharing your story, Tanya.