IH Awareness Week

Idiopathic Hypersomnia Awareness Week is an annual global awareness campaign ~ 1-7 JUNE. #LivingwithIH

[IH Awareness Week @IHAWeek]

After 13 years, Idiopathic Hypersomnia Awareness Week (2013–2025) is concluding.

What began as a small community-led initiative became a global awareness effort. Thank you to everyone who helped grow this movement. Michelle Chadwick

Advocacy & Awareness continues: @Hyper_Sleep

[IH Awareness Week @IHAWeek]

Whether you’re in Chilliwack Canada, Luxembourg, Croatia, Peru, Scotland, Australia, or Butler County Pennsylvania - whether you’ve been living with IH for decades or just received your diagnosis - we see you. You are not alone.

Thank you for being part of this global community.

[IH Awareness Week @IHAWeek]

Hi I'm Michelle from Brisbane, Australia. I am #MoreThanIH. I am also a sleep health advocate, researcher, speaker & mum to 2 amazing young adults (& 3 cute fur babies). I enjoy listening to music and learning to paint with water colours.

What is IH? > https://t.co/3xgVjQLo8H

[IH Awareness Week @IHAWeek]

Idiopathic Hypersomnia is a chronic neurological sleep/wake disorder that often doesn’t respond well to current treatments. Many people continue to struggle with debilitating symptoms.

People with IH deserve better understanding, more effective treatments, and improved outcomes.

[IH Awareness Week @IHAWeek]

Despite having extraordinary amounts of good quality sleep people with IH are in a constant state of sleepiness.

But IH is much more than that. IH can cause a range of debilitating symptoms including cognitive dysfunction (brain fog)

Learn more: https://t.co/eDZY5Wy3hw

[IH Awareness Week @IHAWeek]

One of the worst things someone with #IdiopathicHypersomnia (IH) can hear is "I'm tired too". IH is a lot more than just feeling 'tired'.

Learn more > https://t.co/dcuJ40GKxy

IH FACTSEET > https://t.co/3xgVjQLo8H

#LivingwithIH #IdiopathicHypersomnia

[IH Awareness Week @IHAWeek]

"Being judgmental of us doesn’t help our situation; in fact it only makes it worse. We feel bad enough about what we can’t achieve and what we miss out on."

Read More: https://t.co/CR7rgdeqUo

#IdiopathicHypersomnia #LivingwithIH

[IH Awareness Week @IHAWeek]

Two of the often debilitating symptoms of IH include:
📍 Cognitive Dysfunction.
📍 Automatic Behavior.

These symptoms can affect work, relationships, and safety and are often misunderstood or dismissed.

What is #IdiopathicHypersomnia?
https://t.co/3xgVjQLo8H

[IH Awareness Week @IHAWeek]

Imagine spending as much as 50 of your 75 years asleep and the remaining 25 years fighting to wake up and struggling to stay awake! For many people with Idiopathic Hypersomnia this is their reality.

What is #IdiopathicHypersomnia? >

https://t.co/dcuJ40GKxy

#LivingwithIH

[Hypersomnolence Australia @Hyper_Sleep]

We’re taking the Idiopathic Hypersomnia Awareness Week @IHAWeek to the US – again! 💜
From 4–14 June, we will be in Seattle, Washington for two major events:
🟣The Hypersomnia Foundation’s Beyond Sleepy Conference
🔵The APSS's annual SLEEP conference
#BeyondSleepy #SLEEP2025

[IH Awareness Week @IHAWeek]

When I said this back in 2014, I had no idea how many people around the world felt the same way... it is deeply frustrating that, even now, there’s still no medication that effectively treats this distressing & debilitating aspect of IH." - Michelle Chadwick, creator of @IHAWeek

[IH Awareness Week @IHAWeek]

Did you know we have Idiopathic Hypersomnia awareness posters in 14 languages!
Find them on he IH Awareness Week webpage: https://t.co/HVsUdlFMe9

Your language missing? Can you help us translate? Reach out to us at [email protected]

#IdiopathicHypersomnia #IHAwareness

[IH Awareness Week @IHAWeek]

We asked people with IH to describe it in one word & this is what they said.

Exhausting, isolating, debilitating & misunderstood say it all. IH isn’t just being tired. It’s a serious, life-altering neurological disorder.

What is IDIOPATHIC HYPERSOMNIA? https://t.co/3xgVjQLo8H

[IH Awareness Week @IHAWeek]

What is Idiopathic Hypersomnia? Are you having trouble explaining or understanding #IdiopathicHypersomnia?
View and download a copy of our IH FACTSHEET
https://t.co/3xgVjQLVYf

[IH Awareness Week @IHAWeek]

Hi! I’m Juliana from Wisconsin, USA. I am #MoreThanIH. I’m a doggy mama, a creative soul, & someone who keeps showing up, even on the hardest days. IH may slow me down, but it doesn’t define me.

What is IDIOPATHIC HYPERSOMNIA > https://t.co/3xgVjQLo8H

#IdiopathicHypersomnia

[IH Awareness Week @IHAWeek]

What is IDIOPATHIC HYPERSOMNIA?

Learn more:
https://t.co/dcuJ40GKxy

IH Factsheet: https://t.co/3xgVjQLo8H

#IdiopathicHypersomnia

[Hypersomnia Fdn @HypersomniaNews]

Hélène is #MoreThanIH⁠
⁠
She is curious about everything 🐞
⁠

Fill out the form here - https://t.co/lEHWUOAc7K
⁠
This initiative is a collaboration with @IHAWeek, led by Hypersomnolence Australia(@Hyper_Sleep).

[IH Awareness Week @IHAWeek]

Hi I'm Jade from Victoria, Australia. I am #MoreThanIH.

What is IDIOPATHIC HYPERSOMNIA?
Learn more: https://t.co/3xgVjQLo8H

IH Awareness Week 1-7 June: https://t.co/cts4SqTI9J

#IdiopathicHypersomnia

[IH Awareness Week @IHAWeek]

🌍 The 13th Annual Global Idiopathic Hypersomnia Awareness Week is here! 💙
From humble beginnings in 2013 to a powerful global movement reaching 15+ countries.
This year’s theme: #MoreThanIH - Because we are more than our diagnosis.
🔹 Join us > https://t.co/ZKaWZmXR3o

[IH Awareness Week @IHAWeek]

13th annual Idiopathic Hypersomnia Awareness Week starts tomorrow! Join us 😃
To make participation in the IHAW as simple as possible we have prepared a social media toolkit. https://t.co/6d16Vmtlxm

Idiopathic Hypersomnia Awareness Week, June 1-7

#IdiopathicHypersomnia