To my beautiful son Colby, wishing you a very happy 24th birthday! Wow, how did the years go by so fast? Watching you grow into the incredible man you are today makes me extremely proud.
I hope you have a wonderful celebration with Lucy over there in Ireland this year, and I canβt wait to see you both when you get back.
I love you endlessly! πβ£οΈ
I want to thank absolutely everyone for praying for me, sending DMs, Messages of encouragement. I have been in hospital since the 7th Dec until 7th of May this time. I can now stay home for 4 weeks only before returning to hospital for another 3-4 months for reconstructive surgery.
Sorry for the break, but thank you for the support, it really means more than you know!!! πβ£οΈ
I'd love your continued prayers as I navigate the next few months π
For now I am sooo happy to be in my own environment, my own bed, not being woken up all the time, and this puppy on my lap who I have missed immensely π₯°
Happiness is not something to postpone to the future. You start by celebrating the small things throughout the day, even if it's just one to begin with <
@allenshawn5 Thank you Allen, I actually have a book deal. So I have written book 1 and unfortunately the story kept going so i'll be starting book 2 when I am in a better head space, however it will be awhile until they are out. π
So this face really explains everything in the last 5 months. To think i have been in hospital this long is unfathomable. In the last 12 months I have been here for nearly 8 months now. I'm literally scared of my own shadow now. Not much more can happen then it has in the last 12 months. I've had 7 surgeries, MRSA Golden Staph, Sepsis twice, Bactermina, normal Staph twice, and the scariest of all and what's had me here nearly 5 months in a row with a 10 day break home is this rare bone eating infection that only 1% of people in the world get, and 70% don't make the first 12 months.
I'm pretty numb to be honest and in disbelief most of the time. Dissociation is my new best friend. I'm usually the talker and I've gone quiet. It's impossible to even grasp the reality of the last 5 years let alone 12 months. My nursing ward has become my family and safe place, because it's extremely hard to talk to anyone about it all because it's emotionally taxing, and when I finally do, I find myself talking about everything else that is completely unimportant butttt what is actually happening to me as it makes me re-live it. I only have family visit to keep the risk of further infections at bay as I am completely immune compromised. I'm constantly telling others around me it's ok I will be alright, but I don't actually feel that way. It's like I have this need to over compensate by comforting others around me who show emotion towards what has happened to me, except myself.
I am still on track for reconstructive surgery and praying the date doesn't change from June 12th. Then I'll be here for another long stay. Praying like mad there is no more hic ups that puts that date off, as I am holding on to it for dear life. In-between that, I hope I make it home for at least a few weeks before that.
But I want to thank everyone for their prayers, messages and reaching out. I have had a peace at times that really does surpass normal understanding, and have needed that peace to get me through, because God knows I'm at my limit mentally and physically. So Thank you πβ£οΈ
Hi John,
Thank you so much for your tweet. John it happened from a hip replacment. My 5th Hip replacement in 5 years got MRSA, and then after fighting that for 6 months I contracted Candida PJI that is extremely rare and only 1% of people in the world get and 70% don't make 12 months because your immune system is completely compromised. You would have heard of Candida but not PJI. I have had 21 surgeries in 5 years and 17 in the last 4.
During that time i've had 8 hip replacments, a broken hip, pelvis, 4 broken femurs, 1 rebuilt pelvis, broken tibia, fibula, foot. All due to the first 3 surgeries being unsuccessful. So my current surgeon has preformed 17 surgeries to put me back together, and unfortunately number 9 got Golden Staph MRSA. So I'm not gram resistent,( that's been checked by my infectious and disease team) I am completely immune compromised.
But happy to discuss more in DM.
Thanks for taking the time as well, much appreciated π