iganfoundation

IgA Nephropathy Foundation

[iganfoundation @IGANFoundation]

We are less than 30 days away from celebrating our 2nd Annual #IgANAwareDay
From Sunday, May 14 to Saturday, May 20, 2023. We invite you to join us for a week of meaningful moments OR pick your day(s) to get involved to celebrate with us.

https://t.co/WLnlwcD3KN to learn more

[American Kidney Fund @KidneyFund]

Today, AKF & @IGANFoundation announce the creation of a new resource for IgA nephropathy patients: the IgA nephropathy patient guidelines! The recommendations were developed using patient focus group input & clinician review. Read more: https://t.co/6xk2m2Zmlu

[iganfoundation @IGANFoundation]

https://t.co/ihhIi7qSzK
Today brings a sense of gratitude. The FDA's accelerated approval of TRUTAKNA gives our IgAN community one more treatment option, years in the making, built through our long-term partnership with @Official_VeraTx
No one fights IgA Nephropathy alone. ❤️💙

[iganfoundation @IGANFoundation]

BIG WIN: LDPA cleared the Senate HELP Cmte! But we need MORE cosponsors to finish the job. 13 people die daily waiting for organs — donors shouldn't also risk their insurance & livelihoods. Please cosponsor S. 1552 / H.R. 4582 & 4583. #LDPA #SaveLives

[iganfoundation @IGANFoundation]

As a @RareDiseases Member Organization, we’re proud to amplify the Earn Your Stripes: Rare Disease CME Challenge!

30 million Americans are living with a rare disease, yet many still face years without a diagnosis.

Learn more and join the challenge: https://t.co/DYkPUwwkpo

[iganfoundation @IGANFoundation]

I Celtics Veteran Flourishing In New Role After Early-Season Slump https://t.co/t64LTnVmx1

[Rep. Don Bacon 🇺🇸✈️🏍️⭐️🎖️ @RepDonBacon]

Thank you @IGANFoundation for recognizing our office’s work to support kidney health advocates. We must protect and nurture our organ donor programs. I lost my mom to kidney failure from lupus and I've seen firsthand how these vital programs help people thrive.

[Rep. Don Bacon 🇺🇸✈️🏍️⭐️🎖️ @RepDonBacon]

We must protect & nurture our organ donor programs. People are thriving because of these vital programs. I lost my mom to kidney failure caused by the terrible disease lupus and I'm grateful for the important work of @IGANFoundation.
https://t.co/UQy4kVMG3A

[iganfoundation @IGANFoundation]

For more than a decade, Stuart Miller navigated IgA Nephropathy without meeting another patient like him. That changed in 2019 — and everything shifted.

Read his story
https://t.co/mL3ylB9WYB

[iganfoundation @IGANFoundation]

Why does salt matter in IgAN? 🧂
Swelling, protein in the urine, and high blood pressure are common in IgA Nephropathy—and sodium plays a major role.

Learn More
https://t.co/Eik0qMajgg

#IgAN #KidneyHealth #SodiumAwareness #LowSodiumLiving #IgANAwareness #NutritionAndKidneys

[iganfoundation @IGANFoundation]

Meet Amanda

She’s navigating life as a post-transplant IgAN warrior with grit, grace—and a splash of creativity. Hailing from Bensalem, PA, Amanda is not only an artist but also an axe and knife thrower. (Yes, you read that right!)
#IgANWarrior #IgANephropathy #DonateLifeMonth

[iganfoundation @IGANFoundation]

https://t.co/he5sCZQmJm

RSVP TODAY

Can't make the time. RSVP to receive a recording of the webinar.
💙💚 #BlueGreenSpiritWeek #kidneydonor #kidneytransplant #IganTransplant #iganephropathy #livingkidneydonor #bigaskbiggive #giftoflife #shareyourspare

[iganfoundation @IGANFoundation]

As part of our Caregiver/Carepartner Night Out & Summit on September 27, 2025, in Jersey City, NJ, we are hosting a special Caregiver Roundtable—a small, dedicated discussion to share insights, challenges, and support.

Learn More
https://t.co/tyTm9FCNsY

[iganfoundation @IGANFoundation]

Secure your spot and register here: https://t.co/ITo26TgMnF

@iganfoundation is hosting this webinar on behalf of Novartis Pharmaceuticals. As a leader in the IgAN community, Novartis Pharmaceuticals is proud to sponsor the IgA Nephropathy Foundation and this webinar.

[iganfoundation @IGANFoundation]

Join us on Wed, April 16 @7PM ET for our special webinar on how to find a living donor, where we'll share insights and resources to help you navigate the process.

https://t.co/rT0UNQ0wRx

#DonateLifeMonth #TheGiftOfLife #IgANFoundation

[iganfoundation @IGANFoundation]

Our future looks bright. You are not alone. ❤️💙 As soon as we receive patient facing materials we will update this post and share with our IgAN Community.

Learn More
https://t.co/HhmyrhXbZL

[iganfoundation @IGANFoundation]

📢 Raise Your Voice for Rare Kidney Disease❤️💙🦓⁠
We’re heading back to Washington, D.C., for our 2nd Hill Day on September 10-11, 2025!
⁠
Apply now—space is limited!
⁠
https://t.co/rDZngKTfFt
⁠

#IgANAdvocacy #HillDay2025 #RareKidneyDisease #AdvocateForChange

[iganfoundation @IGANFoundation]

⏰Reminder

Webinar: How best to eat for IgA Nephropathy⁠
Wednesday, April 2, 2025 | 2:00 PM ET⁠
⁠
This webinar is in partnership with American Kidney Fund
⁠
Visit https://t.co/mReo5185XA to RSVP
⁠
#iganephropathy

[iganfoundation @IGANFoundation]

After her 2019 IgAN diagnosis, Dr. Lina Wong turned to culinary medicine to manage her health & slow disease progression. Now, she empowers others to use nutrition as a tool for healing. We celebrate her dedication this Women’s History, Kidney & Nutrition Month! ❤️💙#KidneyMonth

[iganfoundation @IGANFoundation]

🚨 It’s Official – SPARK CHICAGO 2025 is SOLD OUT! 🚨
Missed your chance to register? Don’t worry—you can still join the waitlist, and we’ll do our best to get you in!

130 days away ⏰️ 🗓️

Learn More https://t.co/o2lmYpemUP

[iganfoundation @IGANFoundation]

Pi Day just got a little sweeter! 🥧 Our friends at @CukebookOrg have the perfect kidney-friendly, low-sodium pie crust—flaky, delicious, and easy to make! Dairy-free, egg-free, & low-sodium

https://t.co/pvluKSg7gV

#PiDay #KidneyFriendly #BakeForYourHealth