Father of a daughter with MS, ex President Dutch MS Association, President Executive Committee European MS Platform, Boardmember MS International Federation.
EMSP is heading to @ACTRIMS in October!
We'll be carrying the voices of people with MS, NMOSD and MOGAD into Patient Community Day on 23 Oct and you'll find us at our booth all week.
Come talk MS Barometer, Research and advocacy for patient community.
https://t.co/zPDDPfdonK
EMSP's first strategic meeting with our newly elected Executive Committee has wrapped up! 💙
Two days of meaningful discussions, shared vision, and renewed commitment to serving the MS, NMOSD & MOGAD communities across Europe
#MS#NMOSD#MOGAD#StrongerTogether
Thank you to our vibrant @eumsyouth community for their active participation, endless energy, and valuable contributions in making these monthly catch-ups so delightful!
See you in the next one. #randomcoffee#ypn@annarevillab@lili_bxl@PPuljic92
🎯 Registrations are now open for the @eumsplatform (EMSP) Annual Conference 2026! Co-hosted with @DMSG_BV.
Join 100+ stakeholders addressing the most pressing challenges in MS, NMOSD, and MOGAD care through data-driven solutions.
👉 Register now: https://t.co/F23SVKsHIe
🌍 Our Wellness practices and complementary therapies guide is now available in six languages! Thanks to the amazing efforts of our member organisations, you can download it in English, Spanish, Arabic, French, Dutch, and Portuguese. 📥 https://t.co/yiwRBVyqoi
#HealthyLiving
‘Generic’ and ‘biosimilar’ medicines are treatments which are either identical or very similar versions of the original medicine that they are based on. Several disease modifying therapies for MS have generic or biosimilar versions.
Learn more. ➡️ https://t.co/iV7GgyJLcl
Tommaso Manacorda is presenting the results of the IMMS project, reporting that the majority of people with MS are dissatisfied with how their symptoms are managed. The symptoms that are most inadequately managed are sexual problems and fatigue #EMSP2025
"HSCT is the ultimate reboot of the immune system - people need information to make the right decision for them."
Thinking about HSCT? MS neurologist Kate Petheram's in-depth article explores some of the big issues around HSCT: https://t.co/dL9XxX7gSf
🥕"In general, you can say that a healthier lifestyle with an adherence to a healthier diet, may improve their symptoms," says Dr. Brigit de Jong of @amsterdamumc, talking about the role of #diet in managing #MS. ➡️ Listen to our latest podcast on
Spotify: https://t.co/RpwuU7R87Y
🌱 Can complementary therapies help with MS symptoms? Some may provide relief, while others can be ineffective—or even harmful. ⚠️ Learn more about a range of complementary therapies, potential risks and which to avoid in our newest guide.
Download: https://t.co/2wp7Dx9tP1
Mooi bericht: begin februari start modernisatie Valleilijn treinen @KeolisNED traject Ede-Amersfoort. Op 4 april worden de toiletten geplaatst 🎊 Wij @iederewctelt @Iederin en @pleeback zijn uitgenodigd in de werkplaats 🤗 Bezwaarschrift
@CrohnColitisNL heeft goed gewerkt! 👍
Early diagnosis in #MS care can change millions of lives! Join us at #EMSP2025 Conference in Prague from May 16-17. Explore groundbreaking approaches to MS prevention & care with Europe's leading experts.
▶️Limited spots. Register now- https://t.co/YHlQDyy1Vw
After 18 years Peer Baneke, the Chief Executive of MSIF, will be retiring this December. In this article, we reflect on Peer’s lasting contributions and the impactful legacy he leaves behind. 👉 https://t.co/GzITFMieYU
Mooi dat toiletten terug komen in regionale treinen, maar wij willen het vastgelegd hebben in de Wet! Oproep aan @MinIenW Maak Belofte waar dat Treinen met Toilet toegevoegd worden Besluit Toegankelijkheid OV #Toiletalliantie @Iederin https://t.co/nFOXB2RzmN
#ECTRIMS Patient Community Day (EPCD) Impact Report is available!
Tailored for people affected by #MS who want to understand the latest scientific developments & implications. There's a wealth of information about new treatments. https://t.co/K70LkO1iYb
Last week, MSIF held our annual Hybrid Global Networking Meetings with 79 attendees from 27 countries, attending either in London or online. We shared insights, elected a new Board, hosted a diagnosis session, discussed AI, and much more. Thanks to everyone who joined! 🌏
EMSP recognises informal carers as equal partners in care. They need financial support, enforceable social rights & a voice in shaping care policies. A truly integrated care system means giving informal carers a seat at the table. #PartnersInCare#MS https://t.co/Y089LFLpdf