King's MND Centre

MND Care & Research Centre. Motor Nerve Clinic at Kings College Hospital. Internationally renowned for research & excellence in care. Contact us [email protected]

[King's MND Centre @kingsmnd]

We are excited to announce that King’s MND team delivered the first dose of Tofersen on the early access programme for SOD1-ALS sponsored by @biogen #als #mnd

[King's MND Centre @kingsmnd]

https://t.co/bJ6nYsCg7y

[Jayne Halhead @Jaynes__World]

🥹 Congratulations, SIR KEV, in recognition of your superhuman achievements, you super human.... ❤️🧡💙

https://t.co/1KwkyVBJmi

[Ammar Al-Chalabi @AmmarAlChalabi]

I very much enjoyed my time at @NIMHANS_BLR. The clinical care for people with #ALS #MND is outstanding and the research is fascinating and world class. Thank you for inviting me to give this oration and for your wonderful hospitality.

[King's MND Centre @kingsmnd]

The King’s MND Care and Research Centre is deeply saddened by the passing of Geoff Burrow, a tireless advocate for the MND community.

We extend our deepest condolences to his wife Irene and the Burrow family at this very sad time.

[Leeds Rhinos @leedsrhinos]

It is with deep sadness that the club has learnt of the passing of Geoff Burrow, the father of Rob Burrow. Our deepest condolences go to Geoff's wife Irene and the whole Burrow family at this time. May he rest in peace
https://t.co/G9fjrLj99F

[ALS/MND Alliance @ALSMNDAlliance]

Now available: APPROVED TREATMENTS IN ALS/MND. This global conversation explores which therapies have received regulatory approval, how access differs in practice, and what barriers remain for people living with ALS/MND.

Watch now and stay informed! https://t.co/AdmjuJFGz8 🎥

[Lee Millard @onein300]

It’s now been 6 long weeks since @blandy_r Dr Rachel Jakeman handed in her open letter to @Keir_Starmer @wesstreeting about the inequity of tofersen access for SOD1 #mnd #als. What’s happening?

https://t.co/CmCwUW8ZYh

[MND Research @mndresearch]

Applications for MND EnCouRage 2026 are OPEN!

— Opportunity to share your research (incl. to people affected by MND)
— Programme of career-oriented talks
— Interactive workshops
— Networking opportunities

Are you an early career researcher in MND? Apply today ⬇️
https://t.co/Fm2fknJB5I
______________________________________________________________________________
#MNDEncourageUK #MND #ALS

[ITV News West Country @itvwestcountry]

Patrick Darling has been a musician and composer since he was 14, but lost his voice after being diagnosed with motor neurone disease.

Thanks to an AI music generator, recordings of his past performances have been used to recreate his singing voice - allowing him to perform again.

Watch the full report on ITVX: https://t.co/UDXFvqWAE2

[TheRealCathyS @CathyStandish]

Josh is a reminder to us that ALS affects many people and is more common than we realize. Before he passed, Josh was surrounded by a dedicated team of colleagues who supported him, showing strength and brotherhood.

ALS is not a sprint; it's a marathon. So thank you @eddievedder for your commitment to ALS research. Every clinical trial matters, and every new discovery brings us one step closer to a treatment and ultimately, a cure.

#SundayMorning #JustBreathe @Ml1969 #Marathon

[Mike Wilson* @Redsmail]

March of the Day III preparations continue. Great chats this week with @leedsrhinos @Everton @SheffieldUnited @Rovers @PontefractColl3 @WidnesRL & @ASFCofficial about support for our 350 mile walk for @DarbyRimmerMND @ @LDShospcharity

Join is in June
https://t.co/lVWNStpZiJ

[MND Education @mndeducation]

Bookings for our #MND webinar close tomorrow!

Join MND coordinators Beth Pudjianto, Erica Littlewood & Rachel Thomson to learn the contributions of different professionals in an MDT, common challenges and insights on successful collaborations

Sign up on https://t.co/LRchjaJ8ir

[UK MND Research Institute @UKMNDRI]

Industry partners are vital collaborators in our mission to find crucial new treatments for #MND/#ALS.

Which is why our co-director, @AmmarAlChalabi, teamed up with Raya Therapeutics at TRICALS to lead a discussion on Repurposing and Combination Therapies.

Read more about our EXPERTS platform👇

https://t.co/n2wcZ6zYu7

[UK MND Research Institute @UKMNDRI]

We're delighted to be attending #TRICALS Masterclass this year in Amsterdam.

It's always fantastic to meet up with our international colleagues and collaborators to discuss how we can best accelerate #ALS clinical drug development.

[St Christopher's CARE @stchCARE]

How can creative arts therapies be used in end of life care?

Find out more at our Art Therapy and Improving Care Workshop - ideal for all Allied Health Professionals looking to learn about how creative arts could be implemented within their workplace.

https://t.co/sBtSGfBCnL

[King's MND Centre @kingsmnd]

🧠💤 Have MND/ALS? Help us understand.

Sleep is more than a symptom, it reflects underlying disease processes, affects quality of life, and may offer clues for new treatments.

Take part in a 15-min @kingsmnd survey to guide future care and research.

🔗 https://t.co/AfPcTlsjNV

[UK MND Research Institute @UKMNDRI]

🎉We're thrilled to announce that our biosampling platform has recruited 212 participants, surpassing our target of 200.

This work will be vital in bringing us closer to new and more personalised treatments for #MND/#ALS.🔎

https://t.co/f7bfZ2oRVu

[Jayne Halhead @Jaynes__World]

🐾 AFTER an overnight stop en route, final five days of #DoggieAid for @Doddie_Aid take place in #Eghezee #Belgium🇧🇪, avec deux chiens!

#MND/#ALS is known as Sclérose Latérale Amyotrophique #SLA in #French; many names, one ending.... 😢

#DoddieAid26💙💛

#MND

#MoreNeedsDoing!

[Alex Ward MND Angel 💙🧡 @alexwardfund]

In London this evening I hit my goal of 125 miles walked for @doddie_aid and @DoddieEngland in memory of my lovely son Alex. £125 donated to help #EndMND. Alex was with me every step. ❤️

[ALS/MND Alliance @ALSMNDAlliance]

🧬 Approved Treatments in ALS/MND | Feb 24, 2026
Join an open conversation with real-life testimonials on access to approved ALS/MND treatments worldwide. Learn what’s approved and how access works in practice. 🌍
🔗 https://t.co/TkTrsXGlQf

[MND Association @mndassoc]

This is us, the MND Association. Renewed, united and driven every day to make change happen.

Every day we support people affected by motor neurone disease, campaign for better care and fund ground-breaking research.

Because with MND, every day matters.