LifeArc

Self-funded medical research organisation with one clear purpose – transforming the lives of people living with rare diseases and drug-resistant infections.

[LifeArc @lifearc1]

Our LifeArc–Kidney Research UK Centre for Rare Kidney Diseases created a children's book to help those with these conditions feel seen and understood.

Told in rhyme, 'See Me' sheds light on the often invisible challenges of kidney disease.

📚 Order now: https://t.co/zACpA8EOiH

[LifeArc @lifearc1]

Last year, we selected 4 research projects for our Motor Neuron Disease (MND) Drug Repurposing Programme. Collaborating to overcome the scientific and translational challenges of drug repurposing, they aim to fast-track new treatments for MND.

🔗 https://t.co/z4tVjfg45g

[LifeArc @lifearc1]

What does partnership mean to us?

Bringing together expertise, tools, funding and support to turn discoveries into treatments for rare diseases and drug‑resistant infections.

Together, we can go further, faster.

🎥Watch this video to learn more: https://t.co/hlmoXz0evC

[LifeArc @lifearc1]

CognoMND is a digital tool that could allow people with motor neuron disease to be assessed for cognitive and behavioural changes in their own time, at home.

This could support earlier detection of changes and better care management.

Learn more: https://t.co/DhQvOXz2MX

[LifeArc @lifearc1]

Our COO, Karen Skinner, wrote the foreword to the latest edition of Drug Discovery and Development by @pharma_press. She shares a timely perspective on the changing dynamics of the field and how to turn innovation into real-world impact.

Read it here: https://t.co/1g6VTmcGnP

[LifeArc @lifearc1]

We've partnered with Elpida Therapeutics to advance 3 clinical gene therapy programmes for ultra-rare childhood neurodegenerative diseases, including Spastic Paraplegia type 50 (SPG50), where the first children are already taking part in a Phase III trial: https://t.co/gSfv7jqP29

[LifeArc @lifearc1]

We’re delighted to feature in @MoneyWeeks’ cover story on the growing “healthspan” economy.

Giovanna Lalli talks about our work developing blood-based diagnostics to support earlier, less invasive Alzheimer’s diagnosis and faster access to treatment.

🔗https://t.co/2xN8fVwcRA

[LifeArc @lifearc1]

This year's #ClinicalTrialsDay theme, "Research Rising", reflects our commitment to bringing more promising innovations to the clinic, driving progress so that patients with rare diseases can have access to the tests and treatments they urgently need.

🔗 https://t.co/5j38mVXbA3

[LifeArc @lifearc1]

Health data is key to unlocking rare disease treatments, but fragmentation is slowing progress.

At #LATSS2026, Melanie Ivarsson set out a vision for a UK health data service to support research and improve access to clinical trials.

Stay tuned for recordings from the summit.

[LifeArc @lifearc1]

"Science is no longer the limiting factor. The system is. And the system is something we – together – have the power to redesign."

A rallying call from our CEO, Sam Barrell, as she opened the LifeArc Translational Science Summit 2026.

[LifeArc @lifearc1]

What an incredible day we had at #LATSS2026 yesterday – thanks to everyone who attended and participated in such thoughtful discussions.

Look out for the session recordings coming soon.

[LifeArc @lifearc1]

🎬 That's a wrap on #LATSS2026! Seeing so many scientists, experts, policy makers and innovators together discussing translation and life sciences has been truly inspiring.

Thanks to all who attended and we look forward to seeing you again next year.

[Fiona Stewart @fstewart229]

Great Day at @lifearc1 Translational Science Summit. Some fantastic presentations. @MPSSocietyUK got a mention!

[LifeArc @lifearc1]

Today at #LATSS2026, Julie Vitarello emphasised the pressing need for a redesign of the system so that more children with rare genetic diseases can access today's life-changing technology.

[LifeArc @lifearc1]

It's been brilliant seeing connections being made and strengthened today at #LATSS2026 in our break-out areas between sessions.

[LifeArc @lifearc1]

Huge interest in the #LATSS2026 pro/con debate on AI as a medical device, with the session even spilling into an overflow room.

[LifeArc @lifearc1]

A strong opening set of plenary sessions at #LATSS2026.

It was great to hear Reed Jobs of Yosemite talking about cutting-edge biotech therapies and the critical need for research funding.

[LifeArc @lifearc1]

Our CEO, Sam Barrell, opened #LATSS2026 with a focus on collaboration, translation and real‑world impact.

[LifeArc @lifearc1]

The 2026 LifeArc Translational Science Summit is about to kick off! Join the conversation here using #LATSS2026

[LifeArc @lifearc1]

Our CEO Sam Barrell spoke with the @NewStatesman about the human impact of rare diseases, the barriers to new tests and treatments, and why greater collaboration is essential for making a real difference for people living with rare conditions worldwide.