MND Association

Every day we support people affected by motor neurone disease. Because with MND, every day matters.

[MND Association @mndassoc]

This is us, the MND Association. Renewed, united and driven every day to make change happen.

Every day we support people affected by motor neurone disease, campaign for better care and fund ground-breaking research.

Because with MND, every day matters.

[MND Association @mndassoc]

Find out more about our local support. 🔗https://t.co/9OOHELDhRM

[MND Association @mndassoc]

To mark Volunteers’ Week, we visited a support group session run by the Milton Keynes Branch. It is one of the 150+ support groups run by our branches and groups, virtually and in person.

[MND Association @mndassoc]

Today, the Longitude Prize announced the launch of a Patient Advocacy Group to help bridge the gap between the research work and the daily realities of MND/ALS. Its wonderful to see people with MND helping to guide this important work.

As principle funder, we are proud to back innovative researchers looking to discover new treatments by harnessing AI as we strive to achieve a world free from MND.

Read more: https://t.co/9i9YYuciHH

[MND Association @mndassoc]

NHS continuing healthcare (CHC) can be a lifeline for people with MND. But too many families face a process that’s confusing, inconsistent, and unfair.

We’ve joined 11 other charities calling on the Health Secretary to fix NHS CHC once and for all.

Sign the petition below ✒️https://t.co/sHZsAYEd6W

[MND Association @mndassoc]

Over 80 MND Association branches and groups fundraise, campaign, raise awareness and support people with MND across England, Wales and Northern Ireland.

#VolunteersWeek

[MND Association @mndassoc]

As a volunteer social media officer, Amelia is keen to drive the conversation on MND-related campaigning and legislation. Learn more about her experience as a volunteer.

#VolunteersWeek

[MND Association @mndassoc]

Happy June! Wishing a massive good luck to everyone taking part in our June challenge - 21 Minutes of Activity a Day in June.

Fancy joining the team? It's not too late to sign up! https://t.co/lKfHV88pyU

[MND Association @mndassoc]

Find out more about volunteering, the roles you can choose from, and how it helps those affected by motor neurone disease, below.

☝️ https://t.co/865qEdfyKR

#VolunteersWeek

[MND Association @mndassoc]

It’s Volunteers' Week — a chance to celebrate the incredible people who raise awareness, campaign, and support everyone affected by MND. Here’s a look at our volunteers in numbers.

#VolunteersWeek

[MND Association @mndassoc]

The process which provides people with MND with funds to help them make vital home adaptations moves too slowly and is too outdated. It means people like Martin had to drain his savings in order to live safely in his home. People with MND do not have time to waste.

Help unlock the door. Write to your councillor.
🔗https://t.co/fpDed6gcGd

[MND Association @mndassoc]

A huge huge well done to everyone who took on our May cycle challenge this month! You did it. 🚴‍♂️🧡

[💫 @casssj_]

We’re so close to £4,000 even though our abseil isn’t until July!

Thank you @LFC for giving us the opportunity to abseil down your stadium.

This is all for those we’ve loved and lost to Motor Neurone Disease.

@mndassoc @MNDA_Merseyside 🧡

https://t.co/8mZ5chNnDo

[Rovers Police @RoversPolice]

#Rovers fans can you help my fellow DFO Matt from GMP who has taken on the mammoth challenge of cycling to all 20 @premierleague clubs in aid of @mndassoc.

Arrived at our neighbours yesterday before heading off to Liverpool.

🌹⚽👮🏼

https://t.co/P8lKUml7uC%…

[MND Association @mndassoc]

Calling all cricket fans! This summer, turn your passion for the sport into support for people with MND. 🏏

— Host a cricket tea or post match beer and barbeque— Test your endurance with an epic 6, 12 or 24 hour cricket marathon
— Get friends or colleagues together for a charity match

Sign up now to get your fundraising pack. Every over matters.

🔗https://t.co/lQCWInpqNd

[MND Association @mndassoc]

Our AGM will be hosted online from our offices on Wed 8 July.

MND Association members will hear about our yearly financial performance, vote on key resolutions and welcome new trustees. They'll also be updates on research and care.

Members will be sent registrations details.

[MND Association @mndassoc]

June is right round the corner! ☀️

It is not too late to join our 21 Minutes of Activity a day in June challenge and raise money for the fight against MND.
🔗https://t.co/FMGGLWtFlZ

[MND Association @mndassoc]

The adaptations Martin made to his home weren’t a choice — they were a necessity. People with MND deserve to live safely and comfortably, yet the Disabled Facilities Grant process isn’t working as it should.

Help unlock the door for people with MND. Write to your councillor.
🔗https://t.co/fpDed6fEQF

[MND Campaigns @mndcampaigns]

We are proud to stand alongside more than 30 organisations calling for an end to benefit reassessments for people with terminal or life-limiting illnesses - and for fast-tracked, lifetime awards of the higher rate of PIP Daily Living and Mobility components.

For thousands of families, these changes would mean genuine security at the most difficult time of their lives.

People living with MND face enough. They should not have to spend their remaining time navigating bureaucratic hurdles or living with financial uncertainty. They deserve to focus on what matters most: their care, their comfort, and the people they love.

Read more👇

https://t.co/q99xnbVEeu

[MND Association @mndassoc]

In this episode of MND Matters, we explore the world of voice banking and how rapidly evolving technology is changing the way people stay heard.

Guided by questions from you - the MND community - Steph and speech and language therapist Jen Benson unpack why our voices are such a core part of who we are, and how voice banking helps preserve that identity.

Listen now. 🔗https://t.co/1xfAK1DbDT

[MND Association @mndassoc]

Our AGM will be hosted online from our offices on Wed 8 July.

MND Association members will hear about our yearly financial performance, vote on key resolutions, and welcome new trustees. They'll also be updates on research and care.

Members will be sent registrations details.