Melanies Mission

33 with Ehlers-Danlos Syndrome(EDS)& Cranio-Cervical Instability(CCI), fundraising for lifesaving surgery: please donate

[Melanies Mission @melaniesMission]

#MelaniesMissionToLive💜 is a mission to raise £100k by October to save her life! Please RT and #Donate #Fundraiser
https://t.co/BDfcSdUbZF

[Melanies Mission @melaniesMission]

Amazing news, this #DonationDay Melanie's Mission has been paid! Thank you to everyone who supports us through @easyuk - you're incredible! Why not get involved? Watch your online shopping turn into free donations for our cause! Sign up now: https://t.co/rNcyHQwG6l

[Katie Hudspeth @spanish_straw]

#thismorning Chloe was an amazing young lady -thank you for raising awareness of Ehlers Danlos Syndrome. #MelaniesMissionToLive💜is a very brave young lady who sadly has the one of the worst cases in the world and has just undergone 2 very drastic operations to save her life.

[Melanies Mission @melaniesMission]

Just posted a photo https://t.co/VziGEkHi3K

[Melanies Mission @melaniesMission]

Just posted a photo https://t.co/KPMwAXsymC

[Melanies Mission @melaniesMission]

Just posted a photo https://t.co/MHdxjvnUHl

[Melanies Mission @melaniesMission]

@stablekneez @ash_time_low Many attempts to fix and 18month in a halo searching for a solution, but now I’ve had a intra oral C1/2 fusion & a C7T1T2 fusion anteriorly to stabilise the areas with 4 broken screws! Very difficult surgeries due to the full posterior spinal fusion meaning no head movement!

[Melanies Mission @melaniesMission]

@stablekneez @ash_time_low I’m brief I have ehlers Danlos and congenital muscular dystrophy. Needed fusion skull to t2 & lumbar… successful until broken at c1 &T1 via intubation for knee op. Cont …

[Melanies Mission @melaniesMission]

Just posted a photo https://t.co/4q6Xwv9Ayc

[Melanies Mission @melaniesMission]

Just posted a photo https://t.co/XPOG1Wmbga

[Melanies Mission @melaniesMission]

Just posted a photo https://t.co/sWNMjxf0ys

[Ashleigh Harle @ash_time_low]

@IAmChrisRamsey could you please share this? a fellow Geordie @melaniesMission is having to raise money for a life saving surgery not available on the NHS. She is stuck in Spain until she can have the surgery and recovers enough to travel. https://t.co/SaLbuKWVjk

[Ashleigh Harle @ash_time_low]

could everyone share this? @melaniesMission has to fundraise for an urgently life saving surgery not available on the NHS. She is stuck in Spain until she has the surgery and recovers enough to travel and now her mam and only carer is having heart problems https://t.co/SaLbuKWntM

[Ashleigh Harle @ash_time_low]

@TheLastLeg #IsItOk @melaniesMission is stuck in Spain fundraising for an urgent lifesaving surgery she couldn't get on the NHS? She can't come home until she's had the surgery and recovered as she is that unwell...

[Melanies Mission @melaniesMission]

Just posted a photo https://t.co/eyKLA1iLoT

[Melanies Mission @melaniesMission]

Just posted a photo https://t.co/w2GwbEyuRU

[Melanies Mission @melaniesMission]

Just posted a photo https://t.co/JpAmtyEwHa

[Melanies Mission @melaniesMission]

@JasonstvrGaming @LBethstrong @debmapmom2 @cpujudy @DrJohnHhess I’ve no idea tbh I have huge mcas issues which went off the scale after covid! 40 antihistamines a day, H2 blockers, montelukast and ketotifen plus sodium chromoglycate inhaler, oral and eyedrops aren’t controlling my reactions…. & xolair injections 4weekly & only just calming!

[Melanies Mission @melaniesMission]

@JasonstvrGaming @LBethstrong @debmapmom2 @cpujudy @DrJohnHhess It’s a potent H2 blocker rather than just antacid, used for mast cell and histamine issues and those play a huge roll in covid infection

[Melanies Mission @melaniesMission]

Discharged in time for #christmas #MelaniesMissionToLive💜 please #Donate to help fund my last lifesaving neurosurgery 🌳𝐋𝐢𝐧𝐤𝐭𝐫𝐞𝐞:
https://t.co/CsSfUwwC2I

[Melanies Mission @melaniesMission]

Just posted a photo @ Barcelona, Spain https://t.co/tPFBaK6sCA