National Health Council

The National Health Council brings diverse organizations together to forge consensus and drive patient-centered health policy.

[ResearchAmerica @ResearchAmerica]

In partnership with the National Health Council (@NHCouncil), Research!America will host an in-person National Institute of Nursing Research (@NINR) listening session on Wednesday, May 27, from 9:30 a.m. to 11 a.m. ET at the Barbara Jordan Conference Center in Washington, D.C. Your input will help shape the future direction of NINR. 🩺

🔗 Register today! https://t.co/R7xEFUAbmD

ℹ️ Event details: https://t.co/O0QHH7zNKa

#Nurses #Nursing #Research #DCEvent

[National Health Council @NHCouncil]

#SPES2026 started with an interactive workshop, highlighting how the @nhcouncil’s tools supported patient partnerships and improved decision-making across health care. The workshop included a panel on enhancing operational methods through effective patient engagement strategies.

[National Health Council @NHCouncil]

#SPES2026 is here!

[uché blackstock, md @uche_blackstock]

Excited to be speaking next Monday, May 11 at the 2026 Science of Patient Engagement Summit hosted by @NHCouncil at Amazon HQ2 in Arlington, VA.

Looking forward to conversations about trust, patient engagement, and building healthcare systems with communities, not just for them.

[ARPA-H @ARPA_H]

Right now, it can take decades for breakthroughs to reach patients. A fragmented research system slows progress and leaves too many families without answers.

ARPA-H is working to change that.

We launched IGoR, a new program built to rethink how research happens. By connecting labs, enabling AI driven discovery, and making experiments faster and more reproducible, IGoR is designed to accelerate progress on even the most devastating complex and chronic diseases.

At ARPA-H, we are not just funding ideas. We are building the systems that move them forward faster. Learn more: https://t.co/jssIRVTdyD

[National Health Council @NHCouncil]

🎉You're invited to attend the @NHCouncil 2026 Science of Patient Engagement Summit: Turning Evidence into Impact! Join us May 11-12 as we explore how meaningful patient engagement leads to better health care.
Register by May 1: https://t.co/IXMiL5YQGA

[McUlsky Health Force @TheForce_MHF]

Cognitive health affects all of us at every age and stage of life. @NHCouncil is bringing together a solid lineup of speakers this Thursday, don't miss it 🧠

[National Health Council @NHCouncil]

Today is AMKD Awareness Day. People of west or central African ancestry who inherited certain variations of the APOL1 gene are at higher risk for APOL1-mediated kidney disease (AMKD), a form of genetic kidney disease. Become APOL1 aware with @KidneyFund: https://t.co/poK647G7Bv

[National Health Council @NHCouncil]

🗓️ Mark your calendar: June 15!
Join the @NHCouncil for the 2026 Washington Representatives Summer Meeting. Get an inside look at key advocacy issues in the 119th Congress, with insights from Congressional staff and policy experts. Secure your spot today. https://t.co/dBM8V3ZLdH

[SWHR @SWHR]

Today, April 19 kicks off National Infertility Awareness Week. #NIAW aims to "push back against the stigma, shame, and outdated myths that still surround infertility," writes @resolveorg in a recent @NHCouncil blog. Read more: https://t.co/fNINhzvHXf

[American Clinical Laboratory Association @ACLAlabs]

ACLA, together with patient groups and lab stakeholders, is continuing to engage on Capitol Hill today, calling on Congress to #StopLabCuts and protect access to diagnostic testing by passing the #RESULTSAct.

[National Health Council @NHCouncil]

Join the @nhcouncil April 30 at 12 p.m. ET for a webinar exploring how cognitive health shapes memory, decisions, and quality of life at every stage. 🧠 This webinar is made possible through the support of our sponsor @EliLillyandCo. https://t.co/um4YVFPUvq

[National Health Council @NHCouncil]

You're invited to attend the @NHCouncil 2026 Science of Patient Engagement Summit: Turning Evidence into Impact! Join us May 11-12 as we explore how meaningful patient engagement leads to better health care. Register today: https://t.co/IXMiL5YQGA

[National Health Council @NHCouncil]

🗓️ Save the date: June 15!
Join the @NHCouncil for the 2026 Washington Representatives Summer Meeting. Get an inside look at key advocacy issues in the 119th Congress, with insights from Congressional staff and policy experts.
Secure your spot today. https://t.co/dBM8V3ZLdH

[National Health Council @NHCouncil]

Register for the @NHCouncil 2026 Science of Patient Engagement Summit! “Turning Evidence into Impact” examines how engaging patients early and meaningfully strengthens health care. For more details, visit our website. https://t.co/IXMiL5YQGA

[National Health Council @NHCouncil]

Join us at #SPES2026! You will walk away with practical steps on how early and meaningful patient engagement strengthens health care. Sponsorship opportunities are available for orgs. looking to get involved and increase their visibility. Learn more: https://t.co/IXMiL5YQGA

[National Health Council @NHCouncil]

Registration is now open for the @NHCouncil's 2026 Science of Patient Engagement Summit: Turning Evidence into Impact! Join us May 11-12 as we explore how meaningful patient engagement leads to better health care. Register today: https://t.co/IXMiL5YQGA

[Jack Kalavritinos @Jkal1985]

From our friends and WHIC allies at the National Health Council showing important encouragement about yesterday's historic action by @HHSGov and the @US_FDA.

[National Health Council @NHCouncil]

#RareDiseaseWeek is a powerful reminder that patient voices drive progress. We are proud to stand with the 30M Americans living with a rare disease. The NHC is encouraged by @US_FDA draft guidance to accelerate individualized therapies and expand hope for families.

[National Organization for Rare Disorders (NORD) @RareDiseases]

NEW: Read NORD's statement on the #FDA's draft guidance regarding the new "plausible mechanism" regulatory pathway for promising #RareDisease gene therapies: https://t.co/gv1lSEdBjX

Why it matters: There are 10,000+ known rare diseases, about 80% of which are #genetic.