PAWSGIST

Specialist initiative focusing on sub-set of rare GIST cancers; Paediatric Adolescent Wild-type and Syndromic GIST Email [email protected]

[PAWSGIST @PAWSGIST]

PAWS-GIST News update and… belated Happy New Year!

https://t.co/yo0uSAOSCv

[SPAGN @sarcomapatients]

As a teen, Kurt noticed a painful lump on his leg during football practice, and his mom made him get it checked out. Soon after he was diagnosed w/osteosarcoma. That began his journey to becoming a sarcoma surgeon & scientist decades later. Hear his story.
#sarcomaawarenessmonth

[PAWSGIST @PAWSGIST]

Today is "International GIST Cancer Awareness Day."
To mark this special date we are sharing Amy and Laura's stories

https://t.co/ixkxHAcGwQ

https://t.co/rMrwf0OYiL

Early and accurate diagnosis leads to better paient outcomes.

Please share and raise awareness…

[PAWSGIST @PAWSGIST]

Update from the Spring PAWS-GIST clinic…

https://t.co/J0dJPjYJjs

[PAWSGIST @PAWSGIST]

@sarcomapatients @SarcomaIreland Wonderful news Carol x

[The Life Raft Group @Liferaftgroup]

Don't forget to register for "Locoregional Therapies for Treatment of GIST in the Liver" on September 9th at 12PM ET. Link: https://t.co/gSnY6wRUL5 #GISTeducation #ThrivingTogether

[SPAGN @sarcomapatients]

WHOA! We're only 135 responses short of 1,000 on our Global Sarcoma Diagnosis Pathway Survey!

Sarcoma patients and caregivers, we need your input. Make your voice heard. Take the survey and pass it on!

https://t.co/kzlDMboOGn

[PAWSGIST @PAWSGIST]

https://t.co/Qq94UhV2TF

[PAWSGIST @PAWSGIST]

It was the second PAWS-GIST clinic of 2024 last week.
Read more on the news section of the clinic website…
https://t.co/3VHpGHyRee

#pawsgist #gistcancer

[PAWSGIST @PAWSGIST]

Seems our story was published on #Somersetlive

https://t.co/skNpvhfivM

#pawsgist #sarcomaawarenessmonth

[JustGiving @JustGiving]

These fundraisers have gone above and beyond for their chosen causes.

Meet our 2024 Outstanding Commitment Award finalists!

💜 Jayne Bressington

🪩 Freya Morgan

🏁 Sam Perkins

| #GoCardless #JGAwards

[SPAGN @sarcomapatients]

Not every #GIST patient gets an early diagnosis! #SPAGN Co-Chair @gvanoortmerssen is himself a GIST patient. Hear his story of how it took him 330 #DaysToDiagnosis...nearly 1 year.

#GISTAwarenessDay #GISTLife #SarcomaAwarenessMonth #EarlyDiagnosisSavesLives

cc: @Liferaftgroup

[PAWSGIST @PAWSGIST]

“GIST Cancer Awareness Day".

Raising awareness of a cancer that most have not heard of.

Awareness + early diagnosis = better outcomes.

PAWS-GIST patient Michelle’s story
https://t.co/M7u5gFSSCp

#GISTlife #PAWS-GIST #GISTCANCER #SarcomaAwarenessMonth #earlydiagnosissaveslives

[PAWSGIST @PAWSGIST]

https://t.co/mpINeirZqh

[PAWSGIST @PAWSGIST]

Sarcoma Awareness month & Justgiving award nomination - Please vote for Jayne Bressington (PAWS-GIST) & help us continue to improve the outlook for patients diagnosed with these horrible cancers
PLEASE VOTE USING THIS LINK >
 https://t.co/tpHsH0Lv6d

#earlydiagnosissaveslives

[Sarcoma UK @Sarcoma_UK]

A message from @RichardDavidson, Chief Executive, Sarcoma UK.

Not enough people know about sarcoma.

#SarcomaAwarenessMonth is an opportunity to reach them. When people are aware of the symptoms of this cancer, there's a better chance of an earlier diagnosis. [1/2]

[PAWSGIST @PAWSGIST]

Andrew who shared his PAWS-GIST story last month has hit the headlines today.

Read all about it here:

https://t.co/04sQUp7VT5

[PAWSGIST @PAWSGIST]

Thank you PAWS-GIST patient Vicky for sharing your amazing story and tips on how you have managed family and work life despite all challenges presented since your diagnosis with SDH deficient GIST in 2007…

Read Vicky's story here>>
https://t.co/7Om8f6F40p

#pawsgist

[PAWSGIST @PAWSGIST]

BSG GIST clinical practice guidelines published in the British Journal of Cancer yesterday

Please share these guidelines with doctors managing GIST patient care as well as patients.

Thanks to all who contributed.

https://t.co/QjHi308J7H

#gistguidelines #britishsarcomagroup

[Adam Dangoor @DrAdamDangoor]

Colleagues at @TheBSG_UK have now released the updated GIST clinical practice guidelines @Sarcoma_UK @PAWSGIST @GISTCancerUK https://t.co/ibztqTOVam