Partnership to Improve Patient Care (PIPC)

PIPC is a coalition of health care stakeholders promoting comparative effectiveness research and patient engagement to improve health care quality.

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

Gerry lives with PBC in Ireland. He struggles to access newer therapies available in the U.S. Why would the U.S. model European health care delays and denials? #MFNHurtsPatients #ValueOurHealth

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

https://t.co/m1IfpCuivg

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

PIPC and @UnitedSpinal requested changes to the VA National Formulary Act to ensure changes to the formulary development process are centered on patients and people with disabilities. #ValueOurHealth

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

https://t.co/tWoPr6kQLQ

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

"By tying U.S. drug prices to those set by nations that rely on QALYs, the MFN model effectively outsources American health policy to systems that do not share our civil rights protections."

[Sara van Geertruyden @saratraigle]

Thank you @senatorcollins for calling out the dangers of #QALYs and the implications for discrimination by importing their use to the United States by reference. https://t.co/FyXtRJQLZq

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

Thank you @SenatorCollins for calling out the dangers of setting prices for drugs based on #QALY based pricing in other countries! We agree the #ACA #QALY ban should be extended. #MFNHurtsPatients @GOPHELP @HELPCmteDem @HELPCmteDems

[The Patient-Centered Outcomes Research Institute @PCORI]

Check out the Engagement in Health Research Literature Explorer, a streamlined resource with more than 2,000 peer-reviewed citations on patient engagement in health research.

Learn more: https://t.co/CkEPW3eesd

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

https://t.co/7ycMkD350J

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

Car T-cell therapy is standard of care in many countries, but New Zealand patients still have access only through clinical trials. #MFNHurtsPatients

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

https://t.co/BNVOvADeyj

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

In Australia, families are still fighting to get younger children with severe eczema access to medicines older patients already receive through the pbs. The U.S. should not import pricing systems that delay access and leave families paying thousands out of pocket.

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

https://t.co/BNVOvADeyj

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

In Australia, families are still fighting to get younger children with severe eczema access to medicines older patients already receive through the pbs. The U.S. should not import pricing systems that delay access & leave families paying thousands out of pocket. #MFNHurtsPatients

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

We sincerely thank Governor Spanberger for hearing and acting on the disability community’s concerns regarding this legislation. https://t.co/aMCWrnzCfs

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

PIPC Chairman @HonTonyCoelho issued the following statement on the vetoes of ​HB 483 and SB 271 in Virginia.

[Partnership to Improve Patient Care (PIPC) @PIPCpatients]

No patient or person with a disability is average. We look forward to future policy debates focusing on affordable access to care for people with disabilities and patients in a manner that is aligned with federal law and regulations governing disability nondiscrimination.