Maddy Warren

Consultancy Director, dialysis campaigner, skydiver, TEDx speaker, 27 years thriving on home dialysis - these days on Instagram @queenofdialysis

[Maddy Warren @queenofdialysis]

This tweet created lots of interest 😂 so a few more thoughts on what you CAN do! Even if you are keen to be careful with your fistula arm you can stick to lighter weights then do higher reps for your arms if you prefer. Also mix up push & pull exercises with /1

[Maddy Warren @queenofdialysis]

Lots of people I talk to on #dialysis think they’re “not allowed” to exercise/go to the gym because they’ve been scared witless after fistula surgery by being told to not even lift a bag of shopping with that arm. Regular weight training has ⬆️ my bone density by 8% since 2018 /1

[KDIGO @goKDIGO]

There is still time to register for the next ISN-KDIGO webinar tomorrow, November 19, at 9:00 AM CET.

Register: https://t.co/YvwMcxIGyU

Don't miss this opportunity to learn evidence-based strategies for improving the dialysis experience, making treatment more tolerable, and supporting the overall health of dialysis patients. We hope to see you there!

[Maddy Warren @queenofdialysis]

Come to our webinar!

[Int Society of Nephrology @ISNkidneycare]

𝗦𝗔𝗩𝗘 𝗧𝗛𝗘 𝗗𝗔𝗧𝗘 for the next ISN-@goKDIGO Webinar: "KDIGO Workshop on the Nurse’s Role in Managing the Symptoms of People Receiving Dialysis."

🗣️ Manfred Hecking, Madeleine Warren, Paul Bennett
👥 Zehra Aydin
🗓️ November 19
🕑 9 am CET
🔗 Free registration: https://t.co/vy7kzFBjP0

[Fabrice HURÉ - Dialyse - E-Santé - SportSanté @LMDSlefilm]

A LIFE JOURNEY BEYOND SPORT! #dialysis #inclusion 📷
A new Article: "The diagonal of my dreams", an adventure that matches my passion for sport, but also my commitment to long night hemodialysis (HDLN).
👉https://t.co/fuVbKYKAmi

[Maddy Warren @queenofdialysis]

It was a pleasure to join this @goKDIGO @EDTNAERCA session highlighting the key role nurses play in identification & management of common symptoms in #dialysis. An effective MDT approach with patients & nurse leaders at the heart is crucial for better QoL & reduced symptom burden

[National Institute for Health and Care Research @NIHRresearch]

Dialysis is a life-saving treatment for people with #KidneyFailure, but it can also be intensive & gruelling.

Our new #NIHRevidence Collection brings together examples of research that could improve care.
➡️ https://t.co/d8I8myEEOK

@queenofdialysis @diaryofakidneyw #KidneyHealthForAll

[Maddy Warren @queenofdialysis]

@GemSavory Interesting!! I will google 😊

[Maddy Warren @queenofdialysis]

I am testing a theory. An annoying thing about being on dialysis despite getting so much great quality treatment on nocturnal HHD, is that I am always freezing cold. Plus I live in the UK 🙄😂 so I’ve taken up open water swimming, aiming to swim through the winter by /1

[Maddy Warren @queenofdialysis]

@Rups_3 Thanks for your replies! I notice it more as I head towards needing my next dialysis session so inclined to think it’s metabolic or loosely “toxin related” although if it routinely continues in transplant then maybe not 🤷‍♀️🙈

[Maddy Warren @queenofdialysis]

@Heretoanywhere I think there are probably multiple reasons! Especially if you have other health conditions as well, which I don’t have but I know feeling cold on dialysis and often also after transplant for many seems to be a universal experience

[Maddy Warren @queenofdialysis]

@wilkiemart I will be careful! Wetsuit boots and gloves are next 😊

[Maddy Warren @queenofdialysis]

@AnnaGaddy I have my machine set at 36.2 as I ascribe to the theory that lower temp dialysate is better (I recall some research into it) but perhaps it has an effect beyond the actual treatment!

[Maddy Warren @queenofdialysis]

@SDQuinlan Yes it’s definitely worse when anaemic but currently my Hb is totally normal! So I’m assuming it’s something metabolic or a combination of factors, but anyway so far so good I haven’t got hypothermia 😂

[Maddy Warren @queenofdialysis]

@bonnaud_dowell It’s certainly worse with low Hb that’s true but I think there must be other factors 😂

[Maddy Warren @queenofdialysis]

@1970Ang I definitely notice it more if I am anaemic but currently have a very healthy Hb straying into genuine normal range which is nice!

[Maddy Warren @queenofdialysis]

@MattCave_ 😂😂😂😂 hey Matt so I am actually going through menopause but the times I NEED a hot flush like in the cold water, they are helpfully very absent 😂 🤷‍♀️

[Maddy Warren @queenofdialysis]

@KidneyCathy I am much more often on Instagram these days so please do feel free to share that too - it’s also @queenofdialysis

[Maddy Warren @queenofdialysis]

I do not see any #kidney content on here anymore nor any of my #dialysis friends’ posts - just rubbish and ads 😢 are people still using X or where is #nephtwitter these days? I miss how much I used to learn and find out on here (photo for the algorithm my swim yesterday ❤️)

[Maddy Warren @queenofdialysis]

@BrouwerMaier Thank you 😊

[Maddy Warren @queenofdialysis]

Who’s coming to @DialysisSociety conference? I will be co-facilitating a workshop on home HD training techniques & tips on Weds afternoon, we would love to see you there. Will also be sharing my extensive guide to tackling self-needling phobia #homedialysis #vascularaccess

[Maddy Warren @queenofdialysis]

@e2qpr Hello unfortunately the workshop sessions are not virtual because there are multiple taking place across different areas of the conference concurrently

[Nephrology Journal Club @NephJC]

NephJC is ten years old! Help us celebrate by by donating to keep NephJC reader supported and free of industry support.

https://t.co/vx4YII99tJ