Rare Cancers Australia

We do whatever it takes to change the story of a rare cancer diagnosis through limitless support and advocacy.

[Rare Cancers Australia @RareCancers]

Our Cancer Lived Experience Survey is still open. Every voice counts, so if you’ve been diagnosed with cancer as an adult, or cared for an adult with cancer, we want to hear from you in this 20-min survey: https://t.co/u7O6yrKuea

[Rare Cancers Australia @RareCancers]

Today we acknowledge the vital role nurses play in providing compassion, information and support beyond their clinical care for people with cancer, and all health conditions. #InternationalNursesDay

[Rare Cancers Australia @RareCancers]

Lin, 75, has survived Non-Hodgkin’s Lymphoma for the second time. She is now taking part in a research study aimed at preventing cancer relapse, but the self-funded travel is taking a toll. She needs support to continue contributing to this important work: https://t.co/RHg45eC7fU

[Rare Cancers Australia @RareCancers]

Join us on Friday 23 May for an online information session co-hosted with BEAT Bladder Cancer, to coincide with Bladder Cancer Awareness Month. Hear patient and clinical perspectives and treatment options: https://t.co/mUwalWnOTX

[Rare Cancers Australia @RareCancers]

Word of the week: Immunotherapy. Immunotherapies are cancer treatments that help your body’s immune system to recognise and target cancer cells in some tumour types. Visit our glossary to learn more words and terms: https://t.co/Q8JtiDb2kY

[Rare Cancers Australia @RareCancers]

This year’s World Ovarian Cancer Day theme is “No Woman Left Behind” - a particularly meaningful theme as we continue to advocate for equitable access to affordable treatments for everyone diagnosed with cancer. #WOCD2025

[Rare Cancers Australia @RareCancers]

Dry July registrations are now open! Sign up now and select Rare Cancers Australia as your beneficiary for your funds to go towards our incredible patient support programs: https://t.co/z8572A21Yn

[Rare Cancers Australia @RareCancers]

There’s something pretty special about real-life connections, so we’re hosting coffee and cake afternoons in Bowral and Wollongong. Connect with our team and other people in your area affected by rare and less common cancers. Email [email protected] or just drop in!

[Rare Cancers Australia @RareCancers]

You are not alone. Join one of our support groups to connect with others who can relate to your experiences. Ask questions, share experiences, offer tips and make connections, all facilitated by one of our Specialist Cancer Navigators. Email [email protected] to join.

[Rare Cancers Australia @RareCancers]

The Liv Sproule Memorial Round fundraising tally is in – and the event raised a whopping $10,200! It's all in honour of a talented young hockey player taken too soon. Congratulations to organiser Philly and everyone involved in this huge effort.

[Rare Cancers Australia @RareCancers]

Congratulations to all new and returning members of Parliament! We look forward to continuing to work with the Albanese Government to deliver bold reform, ensuring all Australians - particularly those affected by rare or less common cancers - benefit from world-class healthcare.

[Rare Cancers Australia @RareCancers]

If you’ve experienced a rare cancer, speak Cantonese, Mandarin or Greek and have at least intermediate English proficiency, you could help develop new resources to support people with cancer: https://t.co/t7nEi7ZKU6

[Rare Cancers Australia @RareCancers]

Relocating between her life on the Gold Coast and treatment in Melbourne has forced Carolyn to give up her 46-year teaching career and her superannuation is dwindling. Your support can help her continue treatment to have more time with her family: https://t.co/Vmk0iFEfEx

[Rare Cancers Australia @RareCancers]

This May for Brain Cancer Awareness Month, take a couple of minutes to familiarise yourself with some of the common symptoms, and see your GP if you have any concerns.

[Rare Cancers Australia @RareCancers]

Term of the week: HIPEC. Short for hyperthermic intraperitoneal chemotherapy, HIPEC is an aggressive treatment where chemotherapy is heated and applied directly to the abdominal cavity during surgery. For more terms: https://t.co/Q8JtiDb2kY

[Rare Cancers Australia @RareCancers]

Why are two people with cancer, both receiving the same treatment, paying vastly different amounts? Our CEO, Christine Cockburn, explains: https://t.co/wfQXtc3r56

[Rare Cancers Australia @RareCancers]

Have you booked yet for our online info session, with Dr Rakesh Jivan from GC Dental? Learn more about how to manage oral side effects from cancer treatment. 🗓️ 11am, Friday 2 May 🔗 Register: https://t.co/tL8I8oXdpK

[Rare Cancers Australia @RareCancers]

People like Caitlin face bills in the tens of thousands of dollars - or more - for cancer treatment. Why? Because Caitlin has a rare cancer, so treatment is not listed on the PBS for her specific cancer type. We're calling on the next government to #endthecancerlottery

[Rare Cancers Australia @RareCancers]

Rare cancers aren’t so rare. In fact, there are more than 250 types of rare or less common cancer, making up about a quarter of cancer diagnoses each year. Get the practical tips you need in our Rare Cancer Support Guide: https://t.co/qxsQSQ0xtO

[Rare Cancers Australia @RareCancers]

Karyn needs to modify her bathroom to help her manage the impact of co-morbidities and side effects from her triple negative breast cancer treatment. But with funds already stretched, she needs help with this expense: https://t.co/QoRzl9O4ml