Reese Tyrell

Pseudonym with a few things to say about medicine and pain policy. Wherein I reveal personal medical info and repeat myself.

[Reese Tyrell @ReeseSTyrell]

New updated link:

https://t.co/4ItHKZTfQ4

https://t.co/MDJw5DrcJX

[Reese Tyrell @ReeseSTyrell]

Wow.

This dissertation mirrors so much of my thinking about pain and medication stigma.

Reveals flaws in the definition of "chronic non-cancer pain."

Also explains why "patients not addicts" framing is problematic.

[Thread]

https://t.co/Ybc2XrXDdd

[Reese Tyrell @ReeseSTyrell]

@aander1987 @life_is_art___ Center for American Progress used to publish contrasting POVs back in 2019, so it's depressing to see them back on the old version of the story yet again:

https://t.co/QpwAnrUkJx

https://t.co/grQf8oAnB7

[👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ]

IF THE OPIOID CRISIS IS STILL GETTING WORSE CLEARLY THESE TEN YEARS OF POLICIES THAT HURT PATIENTS ISN'T WORKING!

[Reese Tyrell @ReeseSTyrell]

Good thread

[Gabrielle Peters 👩🏻‍🦽 @mssinenomine]

Someone I know just had major surgery for serious dx and after one (maybe two?) days their pain medications were switched to T3s.
So driven about 'caring' about preventing addiction that they do not care about torturing people. Doesn't seem moral or ethical to me.

[Reese Tyrell @ReeseSTyrell]

@ProfDanBear https://t.co/9lPYSalJLi

[Reese Tyrell @ReeseSTyrell]

@guardiannews Whatever your opinion on the CDC… why should we, people living with intractable pain, have to see our tragedy called a "hoax" in a major newspaper?

@ChrisMcGreal our experience is not a hoax. It is firsthand knowledge, and I don't wish it on anyone.

https://t.co/6wJlDRGTEC

[zeynep tufekci @zeynep]

Good thread from a psychiatrist —who co-wrote book on somatization disorders after a residency with world leading expert and now teaches at Harvard— on why the latest article lumping post-viral syndromes (Long Covid, ME/CFS) into that bucket is misguided and scientifically wrong.

[Reese Tyrell @ReeseSTyrell]

@DrZoffness Common ground: we can agree many teens live with high risk, and we all deserve access to the best non-opioid therapies.

However, 80% is from a question about non-medical use ("not prescribed for you"). Data doesn't show if they were ever pain patients.
https://t.co/2f3ReV89F7

[Bev Schechtman🇮🇱 @ibdgirl76]

Cpp advocates: can you please help me share this google doc? @aander1987 @OregonAdvocate @DanBoon63784314 @Wendysinclairme @FaveroRhonda @StefanKertesz @ChadDKollas @fightpaindaily @JuliaHeath21 and all others I missed. Thank you!

[Reese Tyrell @ReeseSTyrell]

@JeremyRedfernFL @ChadDKollas @HealthyFla @CDCgov @WSJ @CDCGapMisapp @CDCInjury "Prescription" and "Prescribed" aren't the same thing. Lots of counterfeit fake pills get counted in the "prescription" category.

[Gabrielle Peters 👩🏻‍🦽 @mssinenomine]

People are applying for MAiD out of fear of becoming homeless. People are applying for MAiD after long periods of being denied access to pain medications. I will never not be amazed we live in a time where you can't get proper pain meds but can get lethal injection for pain.

[Reese Tyrell @ReeseSTyrell]

@life_is_art___ @jonathanstea Totally expecting to see some new fad MLM called Painly or Painsy or something, where you invest $5000 to sell diffusers and energy crystals and recruit your neighbors to join the downline. ("Unlike all those pyramid schemes, our system is evidence based!")

[zeynep tufekci @zeynep]

Many ME patients also trace their illness to a viral event. Then we got a pandemic, a novel virus, and then a subset of people developed the *same* baffling confusing symptoms that ME patients had, without even having heard of ME, ever. That's not how psychological spread works.

[Chad D. Kollas, MD (he/him) @ChadDKollas]

The CDC Clinical Practice Guideline for Prescribing Opioids for Pain —
United States, 2022 is posted at:
https://t.co/31subJHDh4

[Reese Tyrell @ReeseSTyrell]

@CHIME_OAC @MeritusHealth @BayCare If you target "high prescribers," what are you actually doing? Are you reducing the *number of prescriptions* for short-term medication that wasn't really needed? Or are you knocking down *dosage numbers* on long-term pain patients, destabilizing and seriously harming them?

[Gail Simone 💙💛 @GailSimone]

Beyond that, I've met incredible people, and learned so much. Marginalized people have a voice here and we can amplify them in ways that are hard to do elsewhere. That makes the world better, it just does. I would never have met most of you without this site.

8/

[Gail Simone 💙💛 @GailSimone]

I get that there are bullies, bots, bigots and worse. But there are also communities that build people up, and help each other, and offer resources and support. Sometimes, just the right person answers your call. That's not nothing.

9/

[Apurrcalypse Meow @Methadone_Cat]

Some of us are capable of living totally normal, utterly mundane lives while taking strong opioids. You'd never know we were "using" because to us what you call "high" is our "normal.

This idea people *must* stop because opioids are evil is based in moralistic nonsense.

[Reese Tyrell @ReeseSTyrell]

@PutAimovigOnNHS @CortDoesScience This is very well said. Thank you.

[Reese Tyrell @ReeseSTyrell]

@IdiotTracker @ibdgirl76 "Among patients prescribed stable, long-term, higher-dose opioid therapy, tapering events were significantly associated with increased risk of overdose and mental health crisis."

https://t.co/gMnoV0VvFT

[Reese Tyrell @ReeseSTyrell]

@IdiotTracker @ibdgirl76 "These findings suggest that opioid dose tapering was associated with increased risks of overdose-withdrawal and mental health crisis that persisted up to 2 years after taper initiation."

https://t.co/rBwHZ46zDr