RePHyNe is a multi-centre international registry of newborn babies with pulmonary hypertension seeking to gain better insight into their care πΆπ½ π«
π RePHyNe has now recruited 100+ babies across 23 centres β thank you to our amazing collaborative network!
π Interested in joining? National & international centres welcome: https://t.co/3u4X8NaObi
#NeoPH#NeonatalResearch#RePHyNe π«π«
π¬π§ 16 UK centres
π Now open to international centres
π₯ 53 participants
π 1 NIHR aPI graduate
Progress in action!
Find out more in our latest #RePHyNe newsletter π
https://t.co/xgQ0ZpQzca
#neoPH#neonatalresearch#NIHR#associatePI
π Weβve now recruited 50+ babies to RePHyNe β a huge thank you to our amazing collaborative network
π We invite international centres to express interest and join us now!
#NeoPH#NeonatalResearch#RePHyNe π«π«
π¨ Recruitment update
RePHyNe is now recruiting using an opt-out consent model.
οΏ½οΏ½ 45 UK patients recruited so far
π International roll-out coming shortly
π Get involved, spread the word, and support neonatal research.
#neoPH #neonatalresearch
As we enter the festive period, RePHyNe would like to wish you all a well-deserved break π
We end the year with 14 UK centres recruiting and 30 participants enrolled β fantastic work everyone!
Excited to continue this research and collaboration in the new year β€οΈπ«
#neoPH
β΄οΈ 4 centres are now recruiting for RePHyNe, with more sites coming soon!
Catch up on all the latest in our 2nd quarterly newsletter π https://t.co/r1o3jDB2Ts
#PH#NeoPH#RePHyNe
π¨ Recruitment is underway, and weβre excited to share the first edition of our quarterly RePHyNe newsletter! Dive into the latest updates: π https://t.co/hQGNGvPv0x #PH#NeoPH#RePHyNe
***Project update*** Weβre excited to report that RePHyNe has now launched! This is the first step in creating a global registry of Neonatal Pulmonary Hypertension. Find out more or get involved here: https://t.co/UGG57S3cLX #PH#NeoPH
Professionals, researchers, parents and patients!
Final call to share your insights on important outcomes in neonatal pulmonary hypertension. Your contribution can help shape future care and understanding.
Take part here: https://t.co/5Qy5DKvw1S
Thank you π«π«
#PH#NeoPH
We have launched our Delphi Survey on what outcomes are most important to study in newborn babies with Pulmonary Hypertension ? πΆπ·#PH#NeoPH If you have experience caring for babies with PH please contribute by registering for the survey here https://t.co/gQiTKM3Pcy
Was your baby diagnosed with #PulmonaryHypertension? Researchers from The University of Liverpool have launched the second stage of their study into neonatal PH, and they are looking for parents and guardians to complete a 2-stage survey... cont π§΅...
This survey is also open to adults with PH who were diagnosed as babies.
You can register your interest in completing the questionnaire at https://t.co/9B85HLeUAt
This survey is also open to anyone who took part in stage one of the study, which we advertised earlier this year.
Can you help our study looking at what outcomes are most important to study in newborn babies with Pulmonary Hypertension ? πΆπ«π« #PH#NeoPH
If so register your interest here https://t.co/gQiTKM4n26
The new issue of Emphasis is now online: https://t.co/kRmAHHBUdK
It's another packed edition and we hope you enjoy reading it as much as we enjoyed putting it together. If you're a PHA UK member, your 72-page printed copy will land on your doormat very soon π
Only a few weeks left to be involved in part 1 of our research study! Please contact with our team if you are a parent of an affected child who had pulmonary hypertension diagnosed as a baby: https://t.co/Fopz0iPlXo
π Part 2: our survey, will launch very soon!
#neoPH πΆπ«π«
Was your baby diagnosed with pulmonary hypertension (PH)?
We are looking for parents of babies with PH to help our research team determine what are the most important outcomes to study.
To register your interest: https://t.co/npYgukm8TX
@Blisscharity@MiracleBabies@PHA_UK
Thanks @PHA_UK for advertising our study! Please get in contact with our team if you are a parent of an affected child who had pulmonary hypertension diagnosed as a baby: https://t.co/Fopz0iPlXo #neoPH πΆπ«π«
Researchers from the University of Liverpool are trying to understand the most important treatment outcomes for babies with #PH & they need to interview parents. Could you assist their study?
Details : https://t.co/HVwQeICQ0m
Register your interest: https://t.co/EHB5cu3jX5
Was your baby diagnosed with pulmonary hypertension (PH)?
We are looking for parents of babies with PH to help our research team determine what are the most important outcomes to study.
To register your interest: https://t.co/npYgukm8TX
@Blisscharity@MiracleBabies@PHA_UK