Rett UK

Rett UK is a national charity dedicated to supporting and empowering people with Rett syndrome and their families #SupportTodayHopeForTomorrow

[email protected]

[Disabled Children's Partnership @DCPcampaign]

The DCP response following the publication of ‘Solving the SEND Crisis’ by the @CommonsEd

[Disabled Children's Partnership @DCPcampaign]

The @DCPCampaign and @letuslearntoo event in Parliament takes place on Monday.

This is your last chance to invite your MP.

Have your voice heard.

https://t.co/17IieRgboZ #FightForOrdinary

[Rett UK @RettUK]

Calling all Speech and Language Therapists 📢 We Need Your Help!!
Take part in our research project focusing on Communication Support for People with Rett Syndrome in the UK!

Complete our survey here:
🔗 https://t.co/9tmCEwrxix

#RettUK #RettSyndrome

[Rett UK @RettUK]

Calling all parents/carers of children or adults with Rett syndrome 📢 We Need Your Help!!
Take part in our research project focusing on Communication Support for People with Rett Syndrome in the UK!

Complete our survey here:
🔗 https://t.co/WqeNq6cYKz

#RettUK #RettSyndrome

[Rett UK @RettUK]

Missed the last post to send Christmas cards? 🎄
Fear not, you can still send Christmas eCards to friends and family and donate what you would have spent on cards and stamps to Rett UK 🥳

🔗 https://t.co/AHiklRuj7q

#RettUK #DontSendMeACard #Christmas2024

[Tracey Campbell ACT @trAACeyc]

Margot is 6, has Rett syndrome, and has just finished this amazing work inspired by @SteveBackshall and Deadly 60 on @cbbc. More info on how she achieved this in the comments. @RettUK

[Rett UK @RettUK]

What's Happening @RettUK This Week?
It's time to take a look at what we've got happening this week 🗓️

Find all the links here:
🔗https://t.co/w5NKdqILmS

#RettUK #RettSyndrome #CommunicationPartnerDropIn

[Rett UK @RettUK]

🚨Your chance to run, jog or walk for @RettUK at the biggest half marathon in the world 🚨
Sign-up now to join #TeamRett in the 2024 @Great_Run!

🔗https://t.co/hnKpUsJ34Y

#GreatNorthRun #GNR2024 #runners #RettSyndrome #Run4Rett #marathon #run

[Rett UK @RettUK]

What's Happening @RettUK This Week? It's time to take a look at the different events coming up this week 🗓️
Find all the links here:
🔗 https://t.co/w5NKdqILmS

#RettUK #RettSyndrome #CommunicationPartnerTraining #CommunicationPartnerDropIn #BeerandBanter #OnlinePeerSession

[Rett UK @RettUK]

💜 The 9th #RettWorldCongress is taking place on the #GoldCoast #Australia this October 💜
With talks from world-renowned experts on all aspects of #RettSyndrome! A chance to meet families from around the world!
Learn more and register for a place here:
🔗 https://t.co/5B8I6q1gm6

[Make-A-Wish UK @MakeAWishUK]

Lysbeth (9), lives with Rett syndrome, a rare genetic disorder which causes physical and communication difficulties.

She loves twinkling lights and rustling noises ✨

We granted her wish ‘to have sensory equipment’ so she can feel relaxed while enjoying her favourite things 💙

[Rett UK @RettUK]

@Toryscott 💕 sending our love

[Rett UK @RettUK]

What's Happening @RettUK This Week?
It's time to take a look at the different events coming up this week 🗓️

Find all the links here:
🔗 https://t.co/w5NKdqILmS

#RettUK #RettSyndrome #CommunicationParterDropInClinic #OutandAboutGroups #PeerSessions

[Rett UK @RettUK]

Do you support the call for a new #NationalCarersStrategy? 📢
The #APPG on Carers has launched a survey to gather views from unpaid carers and organisations who represent them on what a future strategy should aim to achieve.
Click here to have your say
🔗 https://t.co/YXDaLdgwCq

[Rett UK @RettUK]

🌟 Today, we stand together for Rare Disease Day, shining a light on Rett Syndrome! 💜💚

Let's raise awareness and support for those living with this rare neurological disorder. Together, we can make a difference! 💫

#RareDiseaseDay #RettSyndromeAwareness #RettUK #RettSyndrome

[Rett UK @RettUK]

Join @RettUK's #FamilyWeekend2024 by completing this #ExpressionofInterest Form Now!

🚨 Please note, spaces are limited so be sure to complete this form ASAP 🚨

Find out more and sign-up here:
🔗 https://t.co/fitN3F5LAA

#RettUK #RettSyndrome #FamilyWeekend #RettUKFamilyWeekend

[Rett UK @RettUK]

Support @RettUK & sign up for the virtual @LondonMarathon on Sunday 21 April (00:00-23:59:59 BST) 🥳

No matter where you are in the world, you can run, jog or walk the 26.2 miles MyWay 🌍

Deadline Friday 2nd February 12:00 noon, so email us at [email protected] now 🚨

#TeamRett

[Rett UK @RettUK]

What's Happening @RettUK This Week?
It's time to take a look at the different events coming up this week 🗓️

Find all the links here 🔗 https://t.co/w5NKdqJjcq

#RettUK #RettSyndrome #CommunicationParterDropInClinic #BeerandBanter #CommunicationParterTraining

[Rett UK @RettUK]

How to be an Effective Communication Partner: Online Training Sessions 👥💬

Saturday 20th January AND Saturday 3rd February; 09:00 - 13:00 - On Zoom (link sent via email)

Registration closes at 17:00 on Tuesday 16th January 🚨
🔗 https://t.co/IxkozbTAa3

#RettUK #RettSyndrome

[Rett UK @RettUK]

@RettUK's Brand New Online Communication Training Course "Introduction to Communication" is Now Live 📢
A course aimed at teaching you about communication and supporting people with #RettSyndrome to communicate 💜💚

Access the course here:
https://t.co/HKzVA0nCn7

#RettUK