APPG on Spinal Cord Injury

The aim of the APPG on SCI is to shine a light on the many issues affecting the spinal injury community, and lead the campaigns for these to be resolved.

[APPG on Spinal Cord Injury @SCIappg]

📑From Fragmented to Coordinated: Building a National Spinal Cord Injury Strategy

Following the APPG on SCI's Inquiry, we have launched our report calling for a coordinated, equitable, and compassionate system of care for everyone affected by spinal cord injury

Link below 👇

[APPG on Spinal Cord Injury @SCIappg]

The APPG is committed to ensuring the Bill reflects the current situation experienced by people with a spinal cord injury in accessing initial rehabilitation, obtaining community support, and receiving life long care from the highly specialist spinal cord injury centres.

[APPG on Spinal Cord Injury @SCIappg]

Powerful intervention from @AndyMcDonaldMP, Chair of the APPG, during the Second Reading of the Health Modernisation Bill, raising serious concerns about the future commissioning of spinal cord injury services and the risks of further fragmentation within the system.

[APPG on Spinal Cord Injury @SCIappg]

Following decades of inconsistency and inequity in spinal cord injury services, national oversight, accountability, and mandated standards matter more than ever.

[Andy McDonald MP for Middlesbrough & Thornaby East @AndyMcDonaldMP]

The @SCI_APPG was pleased to recently meet with @DHSCgovuk's Minister @SharonHodgsonMP to discuss spinal cord injury care.

We set out the need for national rather than local commissioning to ensure people receive the care they need, wherever they live.

[APPG on Spinal Cord Injury @SCIappg]

There is an urgent need for a National Spinal Cord Injury Strategy or Framework to set a clear national vision for high quality care and the steps to get there. MPs also called for the development of a National Spinal Cord Injury Registry to address the lack of comprehensive data

[APPG on Spinal Cord Injury @SCIappg]

The APPG met with DHSC Minister Sharon Hodgson to discuss NHS England’s proposals to move spinal cord injury from national to local commissioning. Such a decision directly contradicts the calls for greater national coordination, consistent standards, and long-term system reform.

[APPG on Spinal Cord Injury @SCIappg]

Last year, we published a report outlining near, mid, and long-term recommendations to ensure that people with spinal cord injury receive consistent and equitable support across the country. To read the report: https://t.co/NfxXVpOpAa

[Spinal Injuries Association @spinalinjuries]

🗣️ ‘A National Strategy is the best way to avoid a postcode lottery’
@JohnGlenUK Vice-chair of @SCIappg asked about NHS proposals to change SCI commissioning in Parliament this morning ⬇️

[Andy McDonald MP for Middlesbrough & Thornaby East @AndyMcDonaldMP]

Some more pictures from this week's @SCIappg which I chair.

We met with members of @spinalinjuries along with MPs of all parties to discuss the need for a National Strategy on Spinal Cord Injury.

[Seamus Logan MP @SeamusLoganMP]

Today I joined the Spinal Injuries Assoc & @SCIappg to learn more about supporting my constituents with a spinal cord injury & the call for a National Spinal Cord Injury Strategy. I was pleased to meet Glynn at this event who had been injured in a motorbike accident 8 yrs ago.

[Andy McDonald MP for Middlesbrough & Thornaby East @AndyMcDonaldMP]

Today in my role as chair of the @SCIappg, I met with members of @spinalinjuries.

At the event we welcomed MPs of all parties to discuss the need for a National Strategy on Spinal Cord Injury.

[APPG on Spinal Cord Injury @SCIappg]

The APPG’s report From Fragmented to Coordinated: Building a National Spinal Cord Injury Strategy calls for action across acute care and rehabilitation, community support, workforce, data, and research, providing a framework of recommendations.

[APPG on Spinal Cord Injury @SCIappg]

Thank you to all the MPs from across the House who joined us in Parliament yesterday to learn more about spinal cord injury, supporting their constituents, and to show their support for a National Spinal Cord Injury Strategy

[APPG on Spinal Cord Injury @SCIappg]

🗣️"After treatment there is a 20% chance of being sent to a care home due to a lack of suitable available housing. Can you imagine being left, literally, lying by yourself?"

@GillFurnissMP, Vice Chair of the APPG on Spinal Cord Injury, asking about the lack of accessible homes

[APPG on Spinal Cord Injury @SCIappg]

The APPG report includes practical recommendations so that everyone with a spinal cord injury, wherever they live, can access the same high standards of care and support. To read the report: https://t.co/NfxXVpOpAa

[APPG on Spinal Cord Injury @SCIappg]

📹Building a National Spinal Cord Injury Strategy Report Launch

A month ago, Parliamentarians, professionals, and people with lived experience came together at the launch of the APPG on Spinal Cord Injury report to champion a more coordinated, equitable, and compassionate system

[Andy McDonald MP for Middlesbrough & Thornaby East @AndyMcDonaldMP]

The Spinal Cord Injury all-party group of MPs recently published a report on the need for a national strategy for spinal cord injury.

I was delighted to deliver that report and a petition of support to Downing St with @SpinalInjuries.

[APPG on Spinal Cord Injury @SCIappg]

✉️ Spinal Cord Injury Letter Delivered to the Prime Minister

@AndyMcDonaldMP and @JohnGlenUK were joined by the APPG Secretariat and @spinalinjuries to deliver a letter backed by over 140 clinicians, charities, @theRCN, lived experience, and Parliamentarians from both houses.

[APPG on Spinal Cord Injury @SCIappg]

✉️ Spinal Cord Injury Letter to the Prime Minister

Parliamentarians, professionals, and people with lived experience have written to the PM to call on him to adopt the APPG’s recommendations for a National Spinal Cord Injury Strategy.

Read the letter: https://t.co/zYB1iDDIwR

[Shockat Adam MP @ShockatAdam]

Great to stand with @AndyMcDonaldMP to support the launch of Building a National Spinal Cord Injury Strategy.

People living with spinal cord injuries deserve coordinated care and support at every stage of life. We must make that a reality.