IMI_SISAQOL

Setting International Standards in Analysing Patient Reported Outcomes and Quality of Life Endpoints in Cancer Clinical Trials

[IMI_SISAQOL @sisaqol]

🔍 #SISAQOL featured in new @IHIEurope project factsheet

The factsheet highlights our recommendations, tools and resources to improve how HRQoL and PRO data are analysed and reported in cancer clinical trials.

🔗 Read more: https://t.co/wuZetAbgZb
#QualityofLife #CancerResearch

[IMI_SISAQOL @sisaqol]

📰 New article from @IHIEurope highlighting the work of #SISAQOL on making quality of life measures in cancer clinical trials more meaningful & comparable.

A key step towards better use of PROs in research & decision‑making.

🔗 https://t.co/2dQ8xgZgzj

#ClinicalTrialsDay @EORTC

[IMI_SISAQOL @sisaqol]

⏰ Final reminder – deadline extended!
Applications for the SISAQOL 2026 pilot in‑person training are now open until Friday 29 May.
Don't miss the opportunity to learn from key SISAQOL experts!
👉 Read more & apply here: https://t.co/5fC1BSwSVP
#SISAQOLtraining @EORTC @EORTC_QLG

[IMI_SISAQOL @sisaqol]

⏰ Last chance to apply!
Applications for SISAQOL 2026 pilot in‑person training close 15 May.
📍 Zagreb | 🗓 22–23 Sept
Hands‑on training on implementing SISAQOL recommendations.
✅ Free (2026 pilot only) | Selection applies
👉 Apply now: https://t.co/gCDbHjZFTf
#SISAQOLtraining

[IMI_SISAQOL @sisaqol]

📢 Registration open!
SISAQOL pilot in‑person training on 22–23 Sept 2026 | Zagreb 🇭🇷

Hands‑on training on PRO & HRQoL endpoints – from design to reporting, led by SISAQOL experts.
✔️Limited places – selection applies
👉Apply by 15 May
🔗https://t.co/gCDbHjZFTf

#SISAQOLtraining

[IMI_SISAQOL @sisaqol]

📰 Press release: https://t.co/HrG3GRjwg6

[IMI_SISAQOL @sisaqol]

📢 Big news! The SISAQOL-IMI paper is now published!
It sets new international standards for patient-reported outcomes in cancer clinical trials.

📖 Publication: https://t.co/ypl57uT6gl
🌐 Online tools: https://t.co/QxtKsNqz0B

#SISAQOL #CancerResearch #PROs
@TheLancet

[IMI_SISAQOL @sisaqol]

@ISPORorg Europe 2025 coming to a close, WP8 co-lead Johannes Giesinger presented a poster today on terminology for PRO score interpretation thresholds.

#sisaqol #patientreportedoutcomes

[IMI_SISAQOL @sisaqol]

@ISPORorg @sillytenseldam ���� Poster 2: PCR135 Improving Patient Involvement in Cancer Clinical Trials: Development of Plain Language Checklists Within the SISAQOL-IMI
Initiative.
🔸️ @sillytense from @MyelomaEurope on behalf of @WECANadvocate

[IMI_SISAQOL @sisaqol]

SISAQOL-IMI is at @ISPORorg Europe 2025 presenting two posters in Glasgow, Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿

#isporeurope #isporeurope2025 #sisaqol #qualityoflife #patientreportedoutcomes

[IMI_SISAQOL @sisaqol]

📍 Poster 1: MSR128 Implementing SISAQOL Recommendations: Insights From Cancer Clinical Trials
🔸️ Ahu Alanya from the @EORTC @eortc

[IMI_SISAQOL @sisaqol]

We’re thrilled to announce that our consortium will be presenting the SISAQOL-IMI recommendations at the @RoyalStatSoc Conference 2025 in Edinburgh this September!

We can't wait to share our insights and engage in thought-provoking discussions.
Stay tuned for more details 📊📢

[IMI_SISAQOL @sisaqol]

🚨 New Publication Alert! 🚨

Our latest publication in BMC Medical Research Methodology explores handling missing patient-reported outcome data in the presence of intercurrent events. Aligning analysis with the estimand framework is key! 📊
Read more: https://t.co/UwvpqEDaRo

[IMI_SISAQOL @sisaqol]

Early this month, we presented key highlights from the final SISAQOL-IMI recommendations.

We invite you to explore the executive summary about the public launch and the collaborative efforts that underpin this initiative https://t.co/EwWVTBlcMl

[IMI_SISAQOL @sisaqol]

📢 Yesterday, SISAQOL-IMI officially launched its final recommendations for standardising patient-reported outcomes in cancer clinical trials! 🎉 A huge step toward better, more reliable data for patient-centered care.
Learn more: https://t.co/PgkTHflZ0t

[Amylou Dueck, PhD @BiostatGirl]

The fearless leaders of #SISAQOL: Anders Ingelgaard & Madeline Pe — thank you for your vision and work to enhance PRO statistical analysis for everyone! @sisaqol

[Myeloma Patients Europe @MyelomaEurope]

📢Today at the #SISAQOLIMI launch, MPE´s Silene ten Seldam will present on patient involvement and Plain Language Checklists for myeloma trial protocols.

MPE board member, Vincent Claus also attended and joined a panel on implementing the recommendations.

[Amylou Dueck, PhD @BiostatGirl]

Stakeholder panel at #SISAQOL. Interesting discussion about whether collection of PROs post-progression is feasible, how to make PROs less burdensome, & where to place PROs in the hierarchy of clinical trial endpoints. Universal agreement that SISAQOL moves the field forward!

[Amylou Dueck, PhD @BiostatGirl]

Coming soon from #SISAQOL: guidebook, interactive table, glossary, patient material, and more! Will be posted on the SISAQOL website. https://t.co/Pck88hR4lu

[Amylou Dueck, PhD @BiostatGirl]

Coming soon from #SISAQOL for patient advocates & patient research partners: checklist for reviewing PRO measures in protocols, and checklist for reviewing visualizations in cancer clinical trials.