SUDEP Action

Dedicated to raising awareness of epilepsy risks & tackling all #epilepsy deaths including #SUDEP

Get in contact: [email protected]

[SUDEP Action @SudepAction]

If you have lost someone to epilepsy, you do not have to carry this weight alone.

We have a dedicated and specialised support team you can talk to, get advice from and ask questions to anonymously.

Just call 01235 772852 or email [email protected]

#Epilepsy #SUDEP #Grief

[SUDEP Action @SudepAction]

Every day, lives are lost to SUDEP. SUDEP Action provides free support to grieving families & funds research to save lives.

We need your help to keep our services free.

Please donate today. 💜

👉 https://t.co/TV4KWJ773G

#SUDEP #Epilepsy

[SUDEP Action @SudepAction]

Mark your calendars for SUDEP Action Day 2026 which is coming up on 21st October! 🧡

Learn more: https://t.co/uVjhwfSP8g or email [email protected]

#SUDEPActionDay #SUDEP #Epilepsy #EpilepsyAwareness #MWT5K

[SUDEP Action @SudepAction]

Did you know that 1 in 20 people will experience a #seizure in their lifetime?

Whether you’ve just had a seizure for the first time or have been living with epilepsy for a while, find guidance on #epilepsysafety and managing seizures on our website: https://t.co/TpsqCTmPis

[SUDEP Action @SudepAction]

A big thank you to Chloe Rigby who held a Whatnot auction fundraiser in memory of her twin brother Tom, raising an incredible £2048.29!

#SUDEP #EpilepsyAwareness #WhatNot

[SUDEP Action @SudepAction]

Discussing Sudden Unexpected Death in Epilepsy (SUDEP) can be a challenging conversation – but it is a vital one.

For healthcare professionals, having honest conversations about #SUDEP risks can save lives. Check out our downloadable guide: https://t.co/IIRyLxEwOt

#Neurology

[SUDEP Action @SudepAction]

The Epilepsy Deaths Register provides a safe space to share your story at your own pace. Your experiences help researchers understand epilepsy risks and prevent future losses.

Learn more or share today: https://t.co/2G9ORnyJ0j

#SUDEP #Epilepsy

[SUDEP Action @SudepAction]

Today is #SocialMediaGivingDay! 💜

We rely entirely on incredible supporters like you to fund vital epilepsy safety research and support bereaved families.

Your donation can save lives.

Please give what you can today: https://t.co/0gmsItFasj

#EpilepsyAwareness #SUDEP

[SUDEP Action @SudepAction]

Good luck to Wizzy Mills who is taking on the Loch Morlich “Go Swim” in September in memory of her cousin Adam who died from #SUDEP aged 22: https://t.co/cn6QwjSdoz

“He was taken from us far too soon, and the loss has left a lasting impact on everyone who knew and loved him.”

[SUDEP Action @SudepAction]

"Why do most SUDEP deaths happen at night when people are asleep?"

Get advice from our CEO Sammy Ashby and Dr Rhys Thomas, Consultant Neurologist & Clinical Trustee.

For more information on SUDEP, please head to: https://t.co/E5qatdPMCA

#Epilepsy #EpilepsySafety #Seizures

[SUDEP Action @SudepAction]

The UK Government has pledged to restore its partnership with SUDEP Action to tackle epilepsy risks and prevent sudden deaths.

With 21+ UK deaths a week, this is a major breakthrough for safety.

Read the full update on what this means: https://t.co/1EXc4N9UiH

#SUDEP #Epilepsy

[SUDEP Action @SudepAction]

Our services include free bereavement support, advice and guidance after an epilepsy-related death and help with understanding the inquest process.

Call 01235 772852 or email [email protected]

#SUDEP #Epilepsy #EpilepsySupport

[SUDEP Action @SudepAction]

Last Sunday, Jack and Nikki Murphy raised an incredible £1042 at their Zumbathon in support of SUDEP Action! 🧡

If you’re feeling inspired, why not see what you could organise?

Find ideas online: https://t.co/AypDn0AmvH or email [email protected]

#SUDEP #Epilepsy

[SUDEP Action @SudepAction]

The #LondonMarathon ballot results are out! 🏃‍♂️🎉

Got a place? Join Team SUDEP Action for a race vest & full support!

Missed out? Run a London Half Marathon with us:
✨ London Landmarks (4 Apr 2027)
✨ Run South London (14 Mar 2027)

Help save lives. 💜

📩 [email protected]

[SUDEP Action @SudepAction]

One year ago today, we launched the Charlie Card.

Anti-seizure medication is time critical. The Charlie Card helps those with #epilepsy advocate for their legal right to an emergency supply at the pharmacy counter, protecting lives from avoidable risk: https://t.co/riEUObYPh1

[SUDEP Action @SudepAction]

Our Children’s SUDEP & Seizure Safety Checklist gives clinicians an evidence-based way to have meaningful, personalized chats with families.

Health professionals – register for the Checklist today! https://t.co/fSblsPBSRi

#Epilepsy #SUDEP #SeizureSafety

[SUDEP Action @SudepAction]

Earlier this year, MP @OllyGloverLD led a debate in the House of Commons, calling on the Government to develop a modern framework for #SUDEP and #epilepsy risk management.

He secured a meeting today with Jane Hanna OBE to meet Sharon Hodgson MP for further discussion.

[SUDEP Action @SudepAction]

Guidelines alone aren't enough to prevent #SUDEP. A new paper shows reducing epilepsy deaths takes open conversations & better systems - not just rules.

We have campaigned for UK guidelines & uniquely provides advocacy to ensure lessons are learned & systems change. @haritsa1

[SUDEP Action @SudepAction]

We understand the worry of parenting a child with epilepsy, but we are here to help.

If you want more information about epilepsy safety, please head to: https://t.co/PM2FC9qfzP or email our team at [email protected]

[SUDEP Action @SudepAction]

Start your week by making a life-saving difference. 💜

Every week in the UK, about 21 people die from epilepsy-related deaths, including #SUDEP. Many are preventable. We fund vital research & support families affected.
👉 Donate today: https://t.co/TV4KWJ773G

#EpilepsyAwareness