Sharon F. Terry

Transforming health. #citizenscience @geneticalliance #thenewwe #freethedata #ihope

[Sharon F. Terry @sharonfterry]

Feel like giving? Help me raise money for 2nd Annual Seq It Forward: Run for Rare 5k + Fun Run https://t.co/r7IuyUUNM8 via @RaceRoster or come race!

[Sharon F. Terry @sharonfterry]

Join us in a run for iHope! @GeneticAlliance is thrilled to be the benefactor for this beautiful, rare disease run!

Do you enjoy beautiful coastal lagoon runs? Want to help support rare disease families?

June 27,! Learn more & register here: https://t.co/TEJfEjLiOx

[Sharon F. Terry @sharonfterry]

At ACMG with thousands of my friends. Plenary TED-style talk and iHope posters tomorrow! #acmg2026

[Sharon F. Terry @sharonfterry]

Black Friday. Do we have a deal for you! For just $99.99 (OK, actually $100) you can enable a baby or child from an under-resourced community (LMIC) to receive clinical genomic testing & get on their way to a diagnosis. This is a phenomenal deal. Act now! https://t.co/W6nI1NBe3g

[Sharon F. Terry @sharonfterry]

Honoring Joan Weiss, Donate now to iHope - https://t.co/J8frnLM6Mt

[Sharon F. Terry @sharonfterry]

Honoring our Founder: Celebrating the Vision of Joan Weiss - https://t.co/RJlTRGYz3s

[Sharon F. Terry @sharonfterry]

We recently gathered the iHope Genetic Health network together on a Zoom. It was with tears in my eyes that I listened to their hopes and dreams. So exciting to be in action and cruising! Join us! Sponsor a trio for testing: https://t.co/h0Zt8Fmuip #hope #undiagnosed

[Genetic Alliance @GeneticAlliance]

Thrilled to announce the 10 clinical sites joining iHope Genetic Health network: https://t.co/N8VpqqfIce These clinical sites are sending samples from undiagnosed kids to our three labs offering probono services. Thanks to @illumina for their generous support! #undiagnosed

[Sharon F. Terry @sharonfterry]

Calling each other to action, to listen to young people, to steward the earth for those we love, even as our ashes are spread. ~ Terry Tempest Williams ended with a poem/prayer…

[Sharon F. Terry @sharonfterry]

Oh I agree!! Some takeaways for me: Echoes: “We are now free to be hopeful.” “We need to remember to pause and take a breath.” “Let us care for ourselves as we care for others.” Recommendation from Kathryn Grody - https://t.co/GOZ3UbAoSq

[Sharon F. Terry @sharonfterry]

This meeting is always fantastic! Join us at American Society of Human Genetics in Denver! @GeneticsSociety #ashg2024

[ASHG @GeneticsSociety]

🚨Registration for ASHG 2024 Annual Meeting in Denver is now OPEN!🚨

Join us Nov 5-9 for 5 days of cutting-edge genetics & genomics insights. Don't miss out on plenary talks, posters, symposia, & more. Register and plan your events now: https://t.co/rSLSFbxccT #ASHG24 #Genetics

[Sharon F. Terry @sharonfterry]

Friends, if you have or have had cancer, please do this short survey that my son Ian has created. About 5 minutes & will help him articulate patient priorities in their physical functioning regarding cancer treatment and experiences. Please help!!!

https://t.co/429thSl7Y6

[Sharon F. Terry @sharonfterry]

Announcing the Gestalt Practice Library and Resource Center - making the incredible body of gestalt practice work available to everyone! https://t.co/itvec7rQGj #MindfulLiving #awarenesspractice #wellbeing #gestalt

[Sharon F. Terry @sharonfterry]

@anuacharya Maintain and strengthen the "muscle" of showing up in the world as fully as I can. "Doesn't everything die at last, and too soon? Tell me, what is it you plan to do. With your one wild and precious life?" ~Mary Oliver

[Sharon F. Terry @sharonfterry]

Ryan Taft and Erin Thorpe join @GeneticAlliance to advance iHope Genetic Health! https://t.co/1HEcCPBVFG

[Sharon F. Terry @sharonfterry]

This was a good interview! https://t.co/WbNCsx9XwG

[Sharon F. Terry @sharonfterry]

Why We Need More Social Entrepreneurs Shaping AI by @Ashoka https://t.co/OVpl0SA8Vr And, we social entrepreneurs need more societal support, including funding!

[Sharon F. Terry @sharonfterry]

I wil be participating as one of the "experts". But after all, we are all experts of our own experience... join us...

[Sharon F. Terry @sharonfterry]

Request for Applications (RFA) - Deadline 2/16/2024 - https://t.co/LwqqE6GZht

[Sharon F. Terry @sharonfterry]

Genetic Alliance will be among the "experts". Join us if you can!

[Sharon F. Terry @sharonfterry]

@takmad @DavidFajgenbaum @alsadvocacy @GeneticAlliance And always for all diseases. No silos. Lots of helping advocacy groups band together when there is more than one for a disease.