Shira Strongin

she/her. i’m like a disco queen, i just keep staying alive. founder of @thesickchicks. ORISE fellow @ FDA, CDER. all opinions my own.

[U.S. FDA @FDA]

FDA recognizes #RareDiseaseWeek by being part of #LightUpForRare. Join us today for #FDARareDiseaseDay to explore ways to engage and collaborate with patients and their advocates to support medical product development and regulation. https://t.co/X1LE4ZLpNF

[U.S. FDA @FDA]

FDA’s #RareDiseaseDay is almost here! Register now for this virtual event on Feb. 27. The goal is to give patients, their families & caregivers the opportunity to discuss the future of rare disease medical product development & engagement with the FDA. https://t.co/TRALZsDQte

[trash jones @jzux]

the american healthcare system is actually perfect if you’re a healthy person with no teeth or eyes

[U.S. FDA @FDA]

Patients are experts in their condition and their input helps inform clinical research and product development. Join us for #FDARareDisease Day on Feb. 27 to hear more about how FDA is working to advance treatment options for rare disease patients. https://t.co/TRALZsDQte

[David Mandel @DavidHMandel]

A message from Former Vice President Johah Ryan
@VeepHBO

[Shira Strongin @shirastrongin]

@sad2behere @lillianbframe P R E A C H
so proud of and grateful for you lilli, keep raising hell ❤️

[Eve Levenson @eve_levenson]

my friend @shirastrongin & the future senator from PA have 2 things in common 😉

[Shira Strongin @shirastrongin]

@swee_nlow is no longer also known as “et. al”!!! congrats on your first, first authorship, i’m so freaking proud of you and in awe of your hard work ❤️ https://t.co/cB1tdFQYJj

[Shira Strongin @shirastrongin]

@inagartensbangs 👀

[Shira Strongin @shirastrongin]

i finally got to go back to an in person work conference and my coworkers gave me trich smh 😤 #IDWeek2022 #idhumor #cureid

[Shira Strongin @shirastrongin]

oh also this is a lie on their part that the equipment doesn’t have a non bursting option because my roommate went over to ask someone on the field to change it yesterday and one of the teams switched it to slow color changing mode rather than flashing mode.

[Shira Strongin @shirastrongin]

@DCFray really said, “fuck disabled people” after i emailed them asking if their glow league could use a standard glow light rather than a flashing one so i could safely walk in my neighborhood as an epileptic. it isn’t an inconvenience, it’s a health hazard and inaccessible.

[Shira Strongin @shirastrongin]

the only thing that’s “inconvenient” here is @DCFray having to research how to change settings on their current equipment or having to purchase new equipment that doesn’t flash for general neighborhood safety.

[CURE ID @id_cure]

We are so proud to highlight our ORISE fellow and rare disease patient, @shirastrongin! Shira has experienced Drug-Repurposing firsthand and now is featured in the @rebelgirlsbook Good Night Stories!
We are so proud to have her on our team at CURE ID
#CUREID #rebelchangemaker

[Shira Strongin @shirastrongin]

thank you so much for having me! loved getting to meet y’all and all of the #rebelchangemakers today :) can’t wait for our future work together!

[Solid State Books @solidstatedc]

Thanks to everyone who joined us for RebelGirlfest: Be the Change. Joining us was changemaker @shirastrongin , who happens to be on page 182 of 100 Inspiring Changemakers. Thank you to @rebelgirlsbook for the gift bags and scavenger prizes!

#rebelgirlchangemakers #bethechange

[Shira Strongin @shirastrongin]

@DUMBALlNA @rebelgirlsbook AW! thank you so much!! while i hate the way we met, i am unbelievably grateful that we did and honored to have gotten to fight alongside you ❤️

[Shira Strongin @shirastrongin]

@jes_wolfe @rebelgirlsbook honored to be included, thank you for the amazing work you’re doing to lift up the next generation of changemakers :)

[Shira Strongin @shirastrongin]

twitter’s character limit wont allow me to share my sappy, swiftie post, but long story short: i’m honored to be featured in the latest good night books for rebel girls series out tomorrow!

[Shira Strongin @shirastrongin]

also, when i found out i’d be featured i told a few people including my favorite prof from undergrad & a few coworkers. all of them already owned the other books in the series for their children & soon will read to their kids about me, words can’t describe how surreal this is.