SicCanuck

living with ME/CFS in Toronto. love music when I have the energy to listen to it.

[SicCanuck @SicCanuck]

@JanetDafoe Are you currently on a break? I’m signed into the zoom but there’s nothing happening

[SicCanuck @SicCanuck]

@benh_mecfs Hugs 💕 this is a familiar story. It’s so sad and unfair

[Whitney Dafoe @DafoeWhitney]

I wonder how many people have ever experienced their brain physically running out of energy making it so they cannot use their mind and have to lie still, unthinking, unfeeling - merely existing in a body.  This I believe is a torture no one but #MECFS patients understand.

[SicCanuck @SicCanuck]

@JanetDafoe Is this particular research being funded by OMF? Sounds like they’re making excellent progress!

[SicCanuck @SicCanuck]

Iraq’s parliament is about to vote on a law that would make it legal to marry girls as young as nine. Add your name to help protect women and girls in Iraq. https://t.co/Qe6VHmgEa3

[SicCanuck @SicCanuck]

Plastic pollution is harming the planet. Join me and @DavidSuzukiFdn in calling on Canada to limit global plastic production with a new environment treaty. https://t.co/T9o48BU3h2

[SicCanuck @SicCanuck]

@Bridget_OShea 😢💙

[Bridget O'Shea @Bridget_OShea]

I saw some of the best specialists the US has to offer in March, 2024.
It‘s now July, 2024. I’m looking into hospice care. I’m 46 years old.
Lack of interest or concern from medical, political and scientific fronts has put me where I am today. #MECFS #MillionsMissing #LongCovid

[SicCanuck @SicCanuck]

@chronicsurv1vor It’s a sad world without hugs and friends. Hang in there!!! Sending you love 💔❤️‍🩹💗

[Open Medicine Foundation @OpenMedF]

The Centers for Disease Control and Prevention @CDCgov has officially launched their webpage in recognition of ME/CFS International Awareness Day.

Explore it here 👉 https://t.co/K0ph4UIGiC

#pwME #MECFS #MECFSAwareness

[SicCanuck @SicCanuck]

@JanetDafoe Yikes that’s a lot to deal with. Hoping things improve quickly!

[SicCanuck @SicCanuck]

@TimoStrotmann So disheartening! It’s such a cruel disease. Hang in there

[Open Medicine Foundation @OpenMedF]

The urgency of this cause cannot be overstated, and we pledge to continue working tirelessly to honor Lauren’s memory. Lauren’s passing is a profound loss, and we recognize the deep impact she has had on those who knew her and on the broader ME/CFS community.

[SicCanuck @SicCanuck]

@RedefiningMECFS Can you pls explain which subset has this phenomena?

[Simmaron Research @RedefiningMECFS]

We showed that an #ME subset has evidence of autophagy disruption due to chronic activation of mTOR. Rapamycin is an mTOR inhibitor. So we organized a pilot trial to track symptoms & autophagy at the same time! Donate to a bold commitment to treatment! https://t.co/FyRwlv0X8D

[SicCanuck @SicCanuck]

@JanetDafoe Good luck! Hope everything goes smoothly

[SicCanuck @SicCanuck]

@Z3R0Gravitas @janejet07 @JanetDafoe Thanks! I just remember the yeast didn’t rise when they changed a gene…
Will read the article when my brain isn’t so 🍳

[SicCanuck @SicCanuck]

@JanetDafoe Thanks for all of the updates Janet! Glad to hear it’s going well!

[Nia | The Chronic Notebook @chronicnotebook]

There's a difference between being tired and fatigued. Between not wanting to do something and not being well enough. Between not working by choice and not working due to illness. Between being unreliable and living with an unpredictable illness. There is a difference.