PoTS UK

A charity passionate about supporting those with Postural Tachycardia Syndrome; raising funds to provide information, education, research, awareness & advocacy.

[PoTS UK @UKPoTS]

1/4 IT'S HERE 🎉

POTS UK's Educational Video Series is officially
LIVE!

After months behind the scenes, we're so excited to bring you 13 bite-sized videos designed to support, empower, and guide you.

🎬 Today’s video: https://t.co/wByzu89Tzk

#PoTS #MECFS #EDS #LongCovid

[PoTS UK @UKPoTS]

4/4 ...than one guest unless essential.
Tea, coffee, soft drinks and afternoon treats are included! We’ve kept ticket prices as low as possible to make the event accessible. If you’d love to attend but the cost is a barrier, please get in touch with us.
We hope to see you there!

[PoTS UK @UKPoTS]

1/4 Join us in Stratford upon Avon!..

For our PoTS UK In Person Peer Support and Practical Advice event.✨

This is a relaxed and informal afternoon focused on peer support, connection and practical advice.

Register here: https://t.co/TBWtqpRkLH

[PoTS UK @UKPoTS]

3/4 ..everyone is welcome.

📍Rosebird Community Hall, Stratford-upon-Avon, Warwickshire
🗓️Sunday 15 November 2026
⏰1pm–5:30pm

You can bring a family member or friend, but everyone attending must have their own ticket. Due to limited space, we ask that you bring no more..

[PoTS UK @UKPoTS]

2/2 Fundraising commitment:
🎯We kindly ask each participant to commit to raising a minimum of £500. Every penny you raise will go directly towards supporting PoTS UK’s vital work.

⏰Applications close at midday on Monday 31st August.

👉Apply here: https://t.co/75lBY0r10R

[PoTS UK @UKPoTS]

1/2 RUN FOR PoTS UK IN 2027!🏃‍♂️

Want to take on a challenge while helping raise awareness of #PoTS?
See the events listed on image below!

Complete the form below for your chance to run for PoTS UK and help us support the thousands of people affected by PoTS across the UK.

[PoTS UK @UKPoTS]

6/6 ..to share, don't miss the opportunity to submit. Whether you're a clinician, researcher, allied health professional or anyone passionate about improving the health and wellbeing of young people, this promises to be an inspiring and informative event.

[PoTS UK @UKPoTS]

1/6 We are delighted to share details of the UK Adolescent Health Conference 2027, taking place on Thursday 25 & Friday 26 February 2027 at the Birmingham Conference & Events Centre.

Register & find out more: https://t.co/DWOjq3rdQk

[PoTS UK @UKPoTS]

5/6 Alongside the keynote sessions, delegates can choose from a wide range of parallel clinical and non-clinical sessions, ensuring valuable learning opportunities for everyone working with young people.
📢 Abstract submissions close on 14th August, so if you have work...

[PoTS UK @UKPoTS]

2/2 K-Jo shares how even basic daily activities become exhausting during extreme heat, while Sarah explains that symptoms can become "tenfold" for many people.

Their powerful message highlights the need for greater understanding & support for people with PoTS is so important!

[PoTS UK @UKPoTS]

1/2 "Eating and standing are a challenge in the heat."

A huge thank you to K-Jo PoTS UK Volunteer, and Sarah PoTS UK Volunteer Nurse, for helping to raise awareness of how challenging hot weather can be for people living with #PoTS.
https://t.co/GiPTosyRie

#MedTwitter #Heatwave

[PoTS UK @UKPoTS]

3/3 ...
1. Record individual views
2. Draw attention to campaigns
3. Show support for a cause

[PoTS UK @UKPoTS]

1/3 Ask Your MP to Sign the #PoTS Early Day Motion!

Please email your MP and ask them to sign the PoTS Early Day Motion, tabled by @CatSmithMP.
This takes less than a minute and really can make a massive difference: https://t.co/uWiQ3bMmnV

#EarlyDayMotion #PoTS

[PoTS UK @UKPoTS]

2/3 We want as many MPs as possible to support the motion and call for action by writing to their Integrated Care Board or Health Board.

An Early Day Motion is a formal written proposal submitted by Members of Parliament (MPs) in the UK House of Commons to:

[PoTS UK @UKPoTS]

FINAL CHANCE TO APPLY!

We are delighted to have 5 charity places available for the Run South London Half Marathon- Sun 14 March 2027!
We kindly ask each participant to commit to raising minimum of £500 for PoTS UK.

Applications close this Friday 31 July! https://t.co/qwq8WmnsDn

[ScottishVIG @scottish_vig]

@MareeToddMSP @TeamMareeTodd

[Sarah Fleming @BlueEyedGirl94]

Please show your support for people living with Postural Tachycardia Syndrome by filling out this quick form that will email your MP. It takes less than 60 seconds and really can make a difference: https://t.co/Yu1QuTWYfY @UKPoTS