PoTS UK

A charity passionate about supporting those with Postural Tachycardia Syndrome; raising funds to provide information, education, research, awareness & advocacy.

[PoTS UK @UKPoTS]

1/4 IT'S HERE 🎉

POTS UK's Educational Video Series is officially
LIVE!

After months behind the scenes, we're so excited to bring you 13 bite-sized videos designed to support, empower, and guide you.

🎬 Today’s video: https://t.co/wByzu89Tzk

#PoTS #MECFS #EDS #LongCovid

[PoTS UK @UKPoTS]

4/4 Is there anything missing? Is there something that could be improved? What has your experience been of using the Passport? Please share your thoughts by completing our short survey: https://t.co/adSWCZRatI

Your feedback will help us continue to improve!

[PoTS UK @UKPoTS]

1/4 Have you downloaded your PoTS Passport yet?

At PoTS UK, we know that many people living with #PoTS can face challenges in healthcare settings due to limited awareness and understanding of the condition and its impact on everyday life.

[PoTS UK @UKPoTS]

3/4 Download the PoTS Passport here: https://t.co/SzusvZKGll

We'd love to hear your feedback. Whether you're a person living with PoTS, a family member, carer or healthcare professional, your views are important to us.

[PoTS UK @UKPoTS]

💻Webinar #MCAS

Dr Bethan Myers is running a webinar for healthcare professionals, clinics & clinical directors:
⭐️Mast Cell Disorders in Practice: MCAS, HαT & Mastocytosis⭐️
18 June
12.30-13.30 GMT
Info: https://t.co/WOkiJSX33e

#MCASAwareness #MastCellDiseaseAwarenessMonth

[PoTS UK @UKPoTS]

3/3 We’re proud to support the work of @MastCellAction and stand alongside the mast cell disease community this June. 💜

#MastCellDiseaseAwarenessMonth

[PoTS UK @UKPoTS]

1/3 International Mast Cell Disease Awareness Month is here!

This June, we’re joining the conversation to help shine a light on Mast Cell Activation Syndrome (#MCAS) & other mast cell diseases. These complex conditions can affect multiple body systems, are often misunderstood...

[PoTS UK @UKPoTS]

2/3 ...and can be challenging to diagnose. Together, we can help more people recognise the signs, access appropriate care, and feel less alone. Find out why International Mast Cell Disease Awareness Month matters: https://t.co/EBpSU5YlCg

[PoTS UK @UKPoTS]

@IamLaurenAbby Thank you Lauren! 💜

[Lauren Abby Author @IamLaurenAbby]

Wearing my @UKPoTS land yard in Cheddar Gorge yesterday. Raising awareness of the debilitating chronic illness. 💜💛🩷

[PoTS UK @UKPoTS]

4/4 Two of our lovely PoTS UK volunteers will also be there supporting our Manchester runners and would love some extra encouragement from the community. We’ll be cheering every mile from afar, good luck everyone, you’ve got this!

#FundraisingHeroes #RunningForPoTS

[PoTS UK @UKPoTS]

1/4 Good luck to our incredible PoTS UK runners tomorrow!

We want to wish the very best of luck to Steve, Liv, Louise, Scott & Jess, who are taking on the Great Manchester Run Half Marathon, and to Tom, who is running the Green Park Reading 10K & Family Runs support of PoTS UK.

[PoTS UK @UKPoTS]

3/4
Jess: https://t.co/nJBlaLziKD
Steve: https://t.co/pI7eCZHiq8
Scott: https://t.co/Mla91RkE29
Louise: https://t.co/iD1Qih6Zg5
Liv: https://t.co/96ns918iXO
Tom: https://t.co/EInCbo9xOF

If you live nearby, please go along and cheer them on!

[PoTS UK @UKPoTS]

6/6 By purchasing these materials, you are helping us to continue our work and support future educational projects for the PoTS community. Thank you for your understanding and support. Please share with your healthcare professionals and help us improve understanding of PoTS.

[PoTS UK @UKPoTS]

1/6 PoTS UK Masterclass 2026: Catch-Up Content Now Available!

Did your healthcare professional miss our #PoTS Masterclass 2026 – “Back to Basics and New Insights” in May? The recordings are now available to purchase.

Purchase here: https://t.co/HkNQFbnbar

#MedTwitter #TeamGP

[PoTS UK @UKPoTS]

5/6 Greater awareness and understanding of PoTS can make a real difference to the patient experience. Recordings will be emailed following purchase. As a small charity, we kindly ask that recordings and resources are not shared.