Young Epilepsy

Epilepsy can be one of the most frightening and isolating conditions a child can experience. With your help, we can change that. Together we create possible.

[Young Epilepsy @youngepilepsy]

Launching: Different films. Different seizures. Same goal: understanding. Made with young people, for young people - to show what seizures really look like & how to help. Like, RT & drop a💜to show your support! Watch all films now on our website or YouTube. #UnderstandMyEpilepsy

[Young Epilepsy @youngepilepsy]

@KianLFC03 Congratulations Kian and thank you for representing us! 💜🎉

[Young Epilepsy @youngepilepsy]

We were featured on Channel 4 News last night. Dr Christine Embury shared our work on OPM-MEG, helping improve diagnosis and outcomes for children with epilepsy.
Watch here: https://t.co/aGb1RafEdj

[Young Epilepsy @youngepilepsy]

@BeTheBestVY @epilepsysociety @epilepsyaction @EpilepsySparks @SudepAction @BrainAblaze @EpilepsyFdn @epilepsy_scot Thank you for shouting us out! 💜

[Young Epilepsy @youngepilepsy]

The consultation page may look daunting, but it’s simpler than it seems. Most questions are multiple choice and you only answer what’s relevant. Our step‑by‑step guide helps you share your experience and support children and young people with epilepsy: https://t.co/sXnIQrAxZS

[Young Epilepsy @youngepilepsy]

Schools guidance on supporting children with medical conditions is being updated for the first time in 10 years. Your response can help shape how children with epilepsy are kept safe, included and supported in education. It takes around 10 minutes: https://t.co/sXnIQrAxZS

[Young Epilepsy @youngepilepsy]

@pennywpennyw 💜💜💜

[Young Epilepsy @youngepilepsy]

@leonlegge32 @epilepsyaction @epilepsysociety @FundraisingYES @i_Am_Natalie_B @AOEpilepsy @EpilepsyFdn @EpilepsyWar 💜💜💜

[Young Epilepsy @youngepilepsy]

💜 Today is Purple Day 💜
Nearly every hour, a child or young person is diagnosed with epilepsy in the UK - 23 every day. No child should face this alone. Support the Purple Day Appeal and help stop the fear of seizures: https://t.co/Pv0DOJd6TB 💜
#PurpleDay2026 #TeamPossible

[Young Epilepsy @youngepilepsy]

@alicesalisburyj @epilepsyadvice This is such a powerful video, thank you for raising awareness that not all seizures look the same! We hope your son is recovering well 💜

[Young Epilepsy @youngepilepsy]

New DfE draft guidance on medical conditions is a welcome step forward - including how essential IHPs are for epilepsy & information not just for schools but also colleges & early years settings. Read our full response on how this impacts young people: https://t.co/B1MhT3ob6I

[Young Epilepsy @youngepilepsy]

Seeing someone have a seizure can be scary - but knowing how to help matters. Our Head of Health, Kirsten McHale, shared simple steps in The Independent + why we created our You Can Help videos to guide you through what to do. Read more ⬇️
https://t.co/0Ils6Sb9cG

[Young Epilepsy @youngepilepsy]

Our experts are helping shape the national convo on epilepsy. Dr Jowinn Chew spoke to The Guardian about promising early research into a new Dravet syndrome treatment - offering real hope for future options for young people. Read more ⬇️
https://t.co/71Sl4chUiH.

[Young Epilepsy @youngepilepsy]

@BruceColleenMa1 Thank you for sharing this with us, this sounds like an inspiring book! 💜

[Young Epilepsy @youngepilepsy]

@Mrs_R_Lyall This is amazing! Please send them a massive thank you from Young Epilepsy!! 💜

[Young Epilepsy @youngepilepsy]

@RachelGwynn 💜

[Young Epilepsy @youngepilepsy]

@Ring20UK @Dr_FelixChan Thank you so much for coming, it was an inspiring day 💜

[Young Epilepsy @youngepilepsy]

@talorzsandul @epilepsysociety @epilepsyaction That's a huge milestone, congratulations!💜

[Young Epilepsy @youngepilepsy]

@pennywpennyw Thank you so much for your support Penny 💜 And we're so sorry to hear about your cousin x

[Young Epilepsy @youngepilepsy]

Hear Her Voice returns on 27 Feb. 💜 A morning of real stories, connection and powerful conversations about life with epilepsy - hosted by Edith Bowman. If you or someone in your network might be inspired by being in the room, please share. Secure a place: https://t.co/QneDnRP98B

[Young Epilepsy @youngepilepsy]

Thank you for joining us at the Young Epilepsy #ResearchRetreat 2026! We're grateful to all speakers, researchers and participants. Your insights help drive epilepsy research forward. If you'd like to find out more about our research visit: https://t.co/kXo1iHRrEd