This lovely girl was followed while on a run with her dog.
She sits down at a restaurant for breakfast after her run and realized the same guy she saw on the trail is sitting now diagonally from her taking pictures, and video of her . From here she does something very smart . Her story is chilling and eye opening.
49 jerseys sold so far !!! Ethan is so happy, but we want to see this figure go much higher for him !!
When Ethan was first diagnosed we were given a life expectancy of mid to late teens, we are already well into those mid to late teens so we count every extra day with him as a gift.
This jersey is his and our way of celebrating his strength, courage and determination of everything he has come through and gos through daily 18 years of hard fought battles as a child. It’s not easy to live a life knowing you could die at any given moment.
His 18th birthday in September is a milestone in 2 ways, both good and bad with Duchenne, it’s an achievement in its self as some (including friends) never even survive to this age and then it’s also a curse in disguise, coz we know with every extra year we are blessed to have him with us its also another year closer to losing him to this awful disease.
So come on buy his jersey and let’s blow him away when we do a massive meet up of how many people he has touched in his short little life 🥹
Just £30 for child size and £35 for adult with £5 from every jersey sold going towards Ethan’s bucket list 🫶🏻 link below for purchasing.
https://t.co/NXvoQrtiWz
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