@BeyondEmpowerUK Absolutely brilliant @BenAndrewsINC & @BeyondEmpowerUK , representing views of people living with disabilities in an objective way whilst understanding through lived experience the barriers that may be in our societies & helping overcome 👍❤️❤️👏👏👏
100% true ! There are no discussions for people living with dementia & their carers , its so vague even up to the end . 12 years ago i fought to get palliative care for my dad - nothings changed 🤬🤬
Please don’t forget that dementia is an incurable, terminal disease too! We 900,000 should get palliative care from diagnosis to death.
(We do not at the moment!) https://t.co/LRXLA5O6QC
Absolute disgrace the lack of funding research & support for womens health . Sadly I’m not surprised. I am disappointed for my daughters & grandaughter.
Updated NICE menopause guidelines published today.
While it’s welcome to see HRT as the preferred treatment for the menopause, this is a disappointing update overall. The focus remains primarily on vasomotor symptoms – hot flushes and night sweats – which are, for many women, not the main symptoms of perimenopause and menopause. Most women experience brain symptoms – brain fog, low mood, anxiety, poor concentration, sleep disturbances, memory problems and fatigue – and these are things we know are unlikely to be alleviated in the long term by CBT, as suggested.
The guidelines also do not differentiate between older, synthetic HRT and the natural (body identical) hormones now more commonly prescribed – while the word “risk” is mentioned three times as often than the word “benefit”, these newer forms offer more benefit than risks.
The true risk comes in NOT taking HRT at all, with good quality evidence showing that low hormones during menopause increases the risk of heart disease, osteoporosis, type 2 diabetes, dementia, neurodegenerative diseases, clincial depression, autoimmune diseases and an earlier death. These diseases reduce in women taking hormones and life expectancy increases.
Women deserve to be fully informed and involved at every step of their healthcare consultation to make an informed decision on the right treatment or combination of treatments for them. While we have seen a rise in recent years in access to evidence-based treatments like HRT, a postcode lottery still exists, particularly for those from lower socio-economic backgrounds. Too many women are still struggling to receive HRT, and these guidelines will be confusing for both healthcare professionals and women.
Perimenopause and menopause is sorely under-researched and under-funded, and this must change. In the meantime, women deserve to have a choice, and those who want to take HRT should be able to have it prescribed. That HRT is now the frontline treatment is refreshing, but future documents and consultations must go further to ensure women get the treatment they deserve.
https://t.co/9tut2nB1SO
@BenAndrewsINC@Joanne13Harding@hayleylever@jberrypoetry My life in a nutshell , hormone hell ! Still not enough talked about effects on bladder & bowel, increasing risks caused both by lack of hrt & too much of hormones too - its a minefield ! More investment needed in research 👏👏👏❤️
At last a positive take on dementia , now lets have funding to enable people to remain socially connected .we work hard to enable this but need funding to do it @2getherDementia@AndyBurnhamGM 👏❤️
It’s time to #RethinkDementia. If a friend or relative has been diagnosed with dementia, staying
in contact, including them in social activities, and doing many of the things you’ve always done,
can help them stay well for longer. Find out more at https://t.co/nNeBOqFbFx
I hear you my beautiful friend , I hear other beautiful people living with Dementia & my heart reaches out to you . Its time society really listened & paused to imagine the world through your eyes, the good , bad & indescribable, love ❤️❤️👏
Good morning 😊
Dementia is no where near an easy chapter
I often wear a smiley masks
If I’m truthful, I really feel like my world is crumbling as dementia tries to take hold
Yet I carry on!
No one knows what it’s like to live with Dementia
Unless You Are Living With Dementia!