Our FOP Parliamentary debate at 4.30pm today!
Let’s get the FOP community the help we need - We’ve got this🙌🏻
Thank you to everyone that has helped & supported us this far👏🏻
#LittleLexi#FOPFriends#FightingFOP
https://t.co/aeFXi1Hita
Our little girl has been diagnosed with FOP which will cause her muscle to turn to stone and paralyse her🥺 The parents have to pay for the research into the cure as its NOT NHS FUNDED! Please sign the petition (bio) to change that and help save our girl! Please sign and share🤍