@rachelreid1k These books are some of my all time favourites. When I heard there was a TV series I was withholding judgement (adaptations can be iffy right?) but oh my goodness I think the series is fabulous ❤️
Our secret is OUT 🤫
Not one, not two, not three… but FOUR fossa pups have been born! 😍 and this is their very first health check up 🐾🩺
We won’t judge you for replaying this over and over… (who could say no to those faces!)
The 2025 Henry Cecil Open Weekend is officially underway! A huge thank you to all the sites that opened today 🙏
We're gearing up for day two tomorrow, kicking off at 8am on the Warren Hill gallops! 🌅 🐎
Proud to announce that I have secured tenancy as a barrister at @EA_Chambers from Oct 25! ⚖️ I can’t wait to drop the “pupil” in my bio from then.
Even prouder to be from a foster care, neurodivergent & council estate background - the profession is for all of us #CareLeaversCan
So excited Japan Matsuri returns to Trafalgar Square! 🇯🇵✨ Pictures below are from Japan Matsuri 2012 (my hair was darker!). Looking forward to seeing you there on Sunday, 21 September!
A record number of trainers opening for this years Henry Cecil Open Weekend. Phenomenal work by all the team to get together so early. Tickets on sale next week and all for a wonderful cause. I will be first in line to look around @WilliamHaggas
At 9 a.m. on the 22nd January 2024 my phone rang. We were told that the masses they had found the previous day were unequivocally cancer. It was the call no-one ever wants to receive. Liz was admitted to LGI that evening. At this time a year ago, she was sat on the floor next to her hospital bed, unable to process what was happening. She was just 16 and her world had fallen apart. As I tried to be positive and tell us all that 90% of teenagers with cancer survive. I had no idea that the worst was yet to come.
Liz survived just 10 months. She died aged just 17.
She was diagnosed with Desmoplastic Small Round Cell Tumour - a rare and aggressive sarcoma with only a 15% five year survival rate. Too rare for pharmaceutical companies to invest in research for, with no central source of information, we and her doctors hunted for a needle in a haystack trying to save her.
We lost Liz eight weeks ago, our hearts are broken but our fight has just begun. We have started ‘The Desmoplastic Small Round Cell Tumour Charity’ - more research could have saved Liz, we can’t stand by and watch that happen to others. We will be the only charity in the world solely dedicated to supporting families and funding research into DSRCT, but we need your help. If you can please donate - small amounts add up, it doesn’t need to be a lot. If you can’t please tell others about Liz’s story or think about fundraising for us.
It is not ok that in 2025 teenagers are dying from cancers that have not been researched due to a lack of funding. We can’t save Liz, our hearts will always be broken, but with your help we can change the future for others: https://t.co/iSsJO84jB0
You can find more information about Liz’s story and see the incredible photographs she took on her instagram @lizhatton_photography
If you like her photographs, 12 are currently up for auction to raise funds for research. Hers start at lot 235. Why not take a look? https://t.co/8UXulwBtjk
Liz worshipped her little brother Mateo and he worshipped her. Please, if you can, help other siblings have longer together.
A brief synopsis of life with a brain tumour, from diagnosis to death.
April 2013, sixteen years and two months old:
Headaches started. They were mistaken for migraines brought on by stress related to GCSE exams.
Four visits were made to the GP. On each occasion, Charlotte told the doctor: "I have a brain tumour."
July 2013, sixteen years and six months old:
Headaches continue and bring about increased sickness. An MRI scan was performed.
Something was found on the brain stem – it is inoperable and cannot be biopsied because of the position of the growth.
August 2013, sixteen years and seven months old:
A spinal cord biopsy was performed. A 1mm lesion was extracted. Charlotte was diagnosed with grade 3 Anaplastic Astrocytoma.
September 2013, sixteen years and eight months old:
The hospital were in contact with the local hospice.
October 2013, sixteen years and nine months old:
The medical team decided that there was nothing to lose by starting an intense course of radiotherapy for. The treatment lasted 32 days.
November 2013, sixteen years and ten months old:
The radiotherapy burnt Charlotte's oesophagus. For the next eight months, Charlotte could eat only pretzels, pasta, cornflakes, and popcorn.
January 2014 - June 2015, sixteen years and nine months old to eighteen years and five months old:
A stable period during which Charlotte felt well. Her tumours changed little and we thought it might be managed like a chronic condition. Charlotte had an MRI every three months plus standard NHS chemotherapy, Temozolomide (there has been no advancement on Temozolomide since it was first used in 1999).
July 2015, eighteen years and six months old:
What we though would be another routine MRI scan revealed a 3mm tumour. Another MRI scan to monitor growth was booked to take place six weeks later.
September 2015, eighteen years and seven months:
The latest MRI scan returned the news that the growth had increased from 3mm to 3cm.
October 2015, eighteen years and eight months old:
The medical team had no choice but to biopsy the brain stem. This did a huge amount of damage; it rendered Charlotte very unbalanced. As a result, she had regular falls.
The results revealed that Charlotte's original tumour had mutated into a grade 4 glioblastoma. No cure.
December 2015, eighteen years and ten months:
Deterioration was rapid. Loss of hearing, eyesight and paralysis occurred all while Charlotte was cognisant. By the end of December, Charlotte could do nothing unaided.
5th January 2016, eighteen years and eleven months old:
The MRI scan revealed rapid progression in tumour growth. Charlotte was told she was dying.
6th January 2016 – 5th February 2016, eighteen years and eleven months old:
Charlotte woke in the morning but she could not curl her toes. Within 24 hours she was totally paralysed down her right side.
The next month was horrendous. Charlotte lost her ability to talk, walk, feed, toilet and bathe herself unaided.
5th February 2016, eighteen years old and eleven months:
Charlotte was admitted to hospital and put in an induced coma.
24th February 2016, nineteen years and six days old:
Pronounced dead at 13:03 pm.
5th March 2016, deceased:
The day of Charlotte’s funeral.
5th April 2016, deceased.
We scattered Charlotte’s ashes
Brain tumours kill more under 40’s than any other cancer yet receives the least government funding.
The big difference with our charity is that we self-fund. This means that 100% of your donation goes to research at Charlotte's Lab, King's College Hospital, London. We have no salaries, no overheads, no advertising, and no merchandise. We have no quirky gimmicks to draw you in, just the story of a wonderful and incredibly brave young woman via her YouTube channel. We pay our own expenses, including PayPal fees & PO Box fees. If you want to donate to a charity, please think of us.
We will also keep you up to date with how donations have/will be spent as we have regular calls with our team at KCH.
If you can donate that would be so appreciated but if you can’t a RT would also be much appreciated. Helping Miles (Charlotte’s brother) & I (Charlotte’s mother) spread awareness.
https://t.co/Ox60Th4Z4V
do you work in Higher education in the UK and identify as disabled, neurodivergent o have a long-term health condition? then please consider filling in this survey: https://t.co/KzpdYCuYeH #disability#research
Astrid & Odin, Spanish Greyhound & Whippet/Italian Greyhound mix (1.5 & 1 y/o), Grape & Main St., Manayunk, PA • “Astrid is a rescue – they found her just roaming the streets in Spain when she was six months old. They sleep on top of their crates.” A rescue via @GalgosdelSol
Sad. Traumatic. Depressing. One of them (domesticated for thousands of years) goes back to a loving, caring, home (hopefully). The other endures a tiny, artificial, chemically-controlled, sterile, environment, for life. It’s not about friendship. It’s abuse. @BornFreeFDN RT W
Happy birthday to Mabel. Despite her occasional worries about the world, she would follow you to the ends of it. Which she proved again a couple of days ago.