Alpha-1 ANZ

alpha1ANZ on X is intended to compliment discussion and news emanating from Australia and New Zealand relating to Alpha-1 Antitrypsin Deficiency.

[Alpha-1 ANZ @alpha1ANZ]

Clinical trial - Tessera & Regeneron - TSRA-196

Now recruiting. Regeneron & Tessera Therapeutics developing TSRA-196, an Investigational Gene Editing Therapy for Alpha-1 Antitrypsin Deficiency (AATD)

More detail at https://t.co/Ouh9FlFQuz
#Alpha1OZ #antitrypsin

[Alpha-1 ANZ @alpha1ANZ]

Dosing now underway. See:

https://t.co/k1HSlp1bng

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antitrypsin

[Alpha-1 ANZ @alpha1ANZ]

Wave Life Sciences Announces Approval of First Clinical Trial Application for RestorAATion-2 Trial of WVE-006 in Individuals with Alpha-1 Antitrypsin Deficiency

For more detail and discussion (Australian and NZ residents only), please see:
https://t.co/glNpjfmpc1

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[Alpha-1 ANZ @alpha1ANZ]

The AAA website has been refreshed. See:
https://t.co/5dwCaeJ5qL

To comment generally, to point out errors, make suggestions, please do so via:

https://t.co/qHagYjADTv

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antitrypsin

[Alpha-1 ANZ @alpha1ANZ]

Beam Therapeutics Announces First Patient Dosed in the Phase 1/2 Study of BEAM-302 in Alpha-1 Antitrypsin Deficiency. For more see:

https://t.co/drDfw3I78w

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[Alpha-1 ANZ @alpha1ANZ]

Survey - Alpha-1 Panniculitis - University College London

https://t.co/r4h6Y7I7se

For discussion, go to:

https://t.co/JxmK962Srj

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[Alpha-1 ANZ @alpha1ANZ]

Takeda actively recruiting in Australia for Phase 3 TAK-999-3001 / Fazirsiran study. Fazirsiran aims to reduce liver fibrosis in liver-affected patients of Apha-1 Antitrypsin Deficiency.

For more detail see:

https://t.co/pY4JXQ2bKk

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[Alpha-1 ANZ @alpha1ANZ]

For more information and discussion about the soon-to-start Elevaate clinical trial, see:

https://t.co/xyrHNCpxao... (Australia & NZ residents only).

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antitrypsin

[Alpha-1 ANZ @alpha1ANZ]

In recognition of Rare Disease Day (28 Feb 2022) Dicerna Pharmaceuticals and the AAA have prepared a short video overview of the risk of liver disease associated with Alpha-1 Antitrypsin Deficiency. See:

https://t.co/4fjy7ZZkTH

#RareDiseaseDay #Alpha1OZ #DiscoverDicerna

[Alpha-1 ANZ @alpha1ANZ]

The ESTRELLA study's Australian website has now been established, via which you can register to receive more information. See:

https://t.co/IRcFEEZLRK

#Alpha1OZ antitrypsin

[Alpha-1 ANZ @alpha1ANZ]

This is a direct link to the Zoom meeting at 11am UTC+11 (ie. 11am NSW, VIC, TAS time; or 10am QLD time; or 8am WA time), Tuesday 30 Nov 2021.

https://t.co/kHKNO6RdoO

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[Alpha-1 ANZ @alpha1ANZ]

Live webinar - ESTRELLA Clinical Research Study

Tuesday 30 November 2021

#Alpha1OZ antitrypsin

[Alpha-1 ANZ @alpha1ANZ]

Win a AUD $1,000 Global Hotel Gift Card! Or just join for fun. Join the AAA Awareness Challenge today wherever you are in the world. To join see https://t.co/9PJ8QOYR9B.
If you have any difficulty or you're unsure what to do, contact the AAA for help.
#Alpha1OZ antitrypsin

[Alpha-1 ANZ @alpha1ANZ]

Join the AAA Awareness Challenge!!

https://t.co/9PJ8QOYR9B

#alpha1OZ antitrypsin

[Alpha-1 ANZ @alpha1ANZ]

Coming soon!!

The Alpha-1 Awareness Challenge. Activity based and fun.

To pre-prepare, feel free to install Strava on your mobile device.

Discussion at https://t.co/7fOrXpkLxa (for Australian and NZ residents)

More detail to follow.

#Alpha1OZ antitrypsin

[Alpha-1 ANZ @alpha1ANZ]

A reminder about the upcoming Estrella Study at St Vincent’s Hospital, Melbourne.

For FAQs about the trial, the drug, and eligibility, see https://t.co/cm87uTIOOl

If interested, contact the Study Lead, Sue Brenton, via [email protected] or [phone].

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[Alpha-1 ANZ @alpha1ANZ]

Dicerna's ESTRELLA study is now recruiting at St Vincent's Hospital, Melbourne. For more detail and discussion, see:

https://t.co/pRHWUvrjji (access limited to Australian and New Zealand residents).

#Alpha1OZ antitrypsin

[Alpha-1 ANZ @alpha1ANZ]

A thought for Graham John COWLAND (1955-2021) of South Australia. Died of AATD-related causes. Thank you to Graham's family who nominated the AAA as recipient of funeral donations.

Also posted at https://t.co/d78ihEF6g4

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[Alpha-1 ANZ @alpha1ANZ]

4D Medical's XV LVAS coming to Australia.

For more detail see:

https://t.co/vZTN4kX1iy

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