ALS Canada

We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for a world free of ALS.

[ALS Canada @ALSCanada]

📣 Interested in learning more about the ALS Community’s Federal Advocacy Day on Parliament Hill? Dive into our latest blog post to discover why #ALS community members and ALS organizations from across Canada gathered in Ottawa – from jam-packed training sessions to a meaningful reception and formal meetings. To read the blog post, visit https://t.co/9HkjoOYUUE.

[ALS Canada @ALSCanada]

📚 🔔 REMINDER: Applications for the ALS Canada Kevin Daly Bursary close in less than two weeks!

Established in 2023 in partnership with the family and friends of Kevin Daly, this bursary provides a post-secondary student whose life has been affected by ALS with $2,500, continuing Kevin’s legacy of compassion and dedication to others.

The application process for the 2026-2027 academic year closes at midnight ET on June 16, 2026. To apply, visit https://t.co/YNmZ1ODRau.

[ALS Canada @ALSCanada]

On April 21, Ontario’s ALS community came together at Queen’s Park to recognize the Ontario government’s investment in the Ontario Provincial ALS Program. From conversations with Premier Doug Ford and Minister of Health Sylvia Jones to engaging directly with MPPs, the reception created space for people living with ALS and caregivers to share their stories, highlight the Program’s impact, and the importance of continued progress.

🔗 Learn more about the event: https://t.co/FZP80fMCCO.

[ALS Canada @ALSCanada]

This June, Members of Provincial Parliament (MPPs) at Queen’s Park are shining a light on ALS. Unanimous consent was given at the Ontario Legislature for all MPPsto wear ALS pins to show their support for the ALS community and recognize ALS Awareness Month. 💜 Thank you to Minister @SylviaJonesMPP and MPP @AnthonyLeardiPC for championing this initiative. Learn more about ALS and how to get involved at https://t.co/fl7Sl3xrNI. #AWorldFreeofALS

[ALS Canada @ALSCanada]

It’s time for #aWorldFreeOfALS. 💜

Each year, 1,000 Canadians are diagnosed with amyotrophic lateral sclerosis (ALS), a disease that progressively paralyzes people with limited treatments and no cure. United for a cure this #LouGehrigDay, learn more about ALS, share what you know, and support people affected by #ALS. Visit https://t.co/6sQjuuVYSw for more information.

[ALS Canada @ALSCanada]

As we kick off the start of #ALSAwarenessMonth, we would like to thank Premier @fordnation for his support of the ALS community and for the Ontario government’s pivotal investment in the Ontario Provincial ALS Program. We look forward to continuing to work together on policies that create lasting change and improve the lives of people affected by ALS today, and in the future. This month, join us in raising awareness of ALS and the urgent need for access to treatments, research, and support for the 4,000 Canadians living with ALS. #aWorldFreeOfALS

[ALS Canada @ALSCanada]

June is #ALSAwarenessMonth in Canada. Amplifying the reality of nearly 4,000 Canadians living with the disease and their families to create more public awareness is front and center this month. 💜

🔗 To read more about how ALS Canada is recognizing ALS Awareness Month and how you can get involved, visit https://t.co/qeVlzIh4HI.

[ALS Canada @ALSCanada]

#LeaveALegacyMonth is coming to a close – but your chance to make a lasting impact isn’t. There’s still time to become an ALS Canada Lifetime Legacy Leader and be part of ongoing change.

ALS Canada is here to support you in your legacy giving choices – now and into the future. Invest in #aWorldFreeOfALS by leaving a gift in your will to ALS Canada. To learn more, visit https://t.co/s9zRVCgSx9.

[ALS Canada @ALSCanada]

ALS Canada and the @BlueJays 🤝 Raising awareness for #ALS

On June 9, help us turn the Rogers Centre purple at the Toronto Blue Jays home game against the Philadelphia Phillies. United for a cure, Major League Baseball and the ALS community come together to build awareness of ALS. Get your tickets to watch the game live or tune in on June 9 at 7:07 pm ET.

[ALS Canada @ALSCanada]

What does it take to move ALS research and care forward?
Our new blog takes you inside ALS Advance: National Meetings 2026, a national gathering that brought together researchers, clinicians, and the ALS community to challenge ideas, share perspectives, and rethink how we work together.

From supporting early-career researchers to improving care and opening up honest conversations about clinical trials, this is about building a stronger, more connected ALS ecosystem. 🔗Read more now: https://t.co/EO4f8466WE.

[ALS Canada @ALSCanada]

Staying informed matters.
It can be hard to make sense of ALS clinical trial press releases, which are often written for investors and may reflect early or incomplete findings. Taking time to understand them in context is important.

Our Clinical Research & Trials Update breaks down the latest ALS trial news, upcoming studies, and key clinical publications to help you better understand what it all means.

🩺 Dive in now: https://t.co/GLpffaLCd0.

💬 Have questions? Join our Research & Clinical Trials 101 Q&A Drop-In, found under our webinars page.

[ALS Canada @ALSCanada]

Call for applications | The 2026 ALS Canada-@BrainCanada Discovery Grant Program invests in innovative research focused on identifying causes of or treatments for #ALS & improving the quality of life for people living with ALS. Apply by July 3 at 1:00 pm ET: https://t.co/YsEcjw5JbU.

[ALS Canada @ALSCanada]

Join ALS Canada for “Caring Through Grief: A Webinar for ALS Caregivers”. 💜

On Tuesday, May 19, at 6:30 p.m. ET, hear from Andrea Warnick of AWC Grief Support and ALS Canada as this supportive webinar explores the unique grief experience of ALS caregivers, including common myths, well‑intended but unhelpful advice, and how to respond.
The session will share practical strategies for navigating sorrow, guilt, and complex emotions while finding moments of connection and meaning. 🔗 To register for free today, visit https://t.co/w52ipbETDw.

[ALS Canada @ALSCanada]

⏱️ There's still time to take advantage of the opportunity to DOUBLE your donation - but only until tonight!

Thanks to Team Floyd from Toronto, until 11:59 p.m. ET tonight, all donations made online to the ALS Canada #WalkToEndALS will be matched up to $5,000. Double your impact in honour of a loved one. To make your donation today, visit https://t.co/AxewQVl0rR.

[ALS Canada @ALSCanada]

Curious about the clinical trial landscape for ALS? 🔬

On Friday, May 15, at 12:00 p.m. ET, tune into ALS Clinical Trials Unboxed to learn about ongoing ALS clinical trials in Canada and globally for people living with ALS. In this webinar, Dr. Angela Genge, MD, FRCP, Director of the ALS Centre of Excellence for Research and Patient Care in Montreal, will provide a review of the currently enrolling clinical trial PREVAiLS, a Phase 3 study on Pridopidine for the Treatment of ALS.

🔗 To register for this free webinar, visit https://t.co/K76fh8wRVi. Participants are encouraged to submit their questions in advance.

[ALS Canada @ALSCanada]

📣 Last call! Share your experience navigating the financial realities of ALS in Canada to help us paint an accurate picture of the Cost of ALS into the current landscape.

Your voice matters. Your experience matters.
Join us in building the evidence needed to drive meaningful change.

Don’t wait, the survey closes this Friday, May 8! The survey is completely anonymous, confidential, and takes only 10–20 minutes.

Take the survey today: https://t.co/ZSAqDLrl4N

[ALS Canada @ALSCanada]

We are pleased to welcome Kyle Thompson to the ALS Canada Board of Directors. Kyle is no stranger to ALS Canada or the ALS community, serving on the Finance and Audit Committee for the past two years and hosting fundraisers. ALS Canada is grateful for Kyle’s continued commitment and looks forward to the perspective and leadership he will bring to the Board.

Please join us in welcoming him! 🔗 To read more, visit https://t.co/kjU0Fys6HA.

[ALS Canada @ALSCanada]

Nous sommes heureux d'accueillir Kyle Thompson au sein du conseil d'administration d'ALS Canada. Kyle n'est pas un inconnu pour ALS Canada ni pour la communauté de la SLA, puisqu'il a siégé au comité des finances et de l'audit et organisé des collectes de fonds au cours des deux dernières années. ALS Canada lui est reconnaissante de son engagement sans faille et se réjouit de la vision et du leadership qu'il apportera au conseil d'administration.

Rejoignez-nous pour lui souhaiter la bienvenue ! 🔗 Pour en savoir plus : https://t.co/kjU0Fys6HA.

[ALS Canada @ALSCanada]

A diagnosis of ALS brings many layers of loss – both immediate and unfolding over time.

💻 On Thursday, May 14, at 2:30 p.m. ET, join grief therapist Andrea Warnick and ALS Canada for “Living and Loving with Loss: A Webinar on Navigating Grief While Living with ALS”.

This compassionate webinar explores the unique experience of grief while living with ALS, addressing common myths, emotional challenges, and practical ways to find connection and meaning along the way. 🔗 To register for free, visit https://t.co/g2RtaNP0Us.

[ALS Canada @ALSCanada]

With admiration and gratitude, we acknowledge the incredible contributions of our ALS Canada Board members, Richard Ellis, Lisa Flaifel, and Dr. Angela Genge, whose terms have come to an end. Each has contributed their time, expertise, and lived perspective to help guide the organization during a period of important growth – we thank them for their dedication, generosity, and commitment.

🔗 To read more, visit https://t.co/ITm7L2K19j.

[ALS Canada @ALSCanada]

C'est avec admiration et gratitude que nous rendons hommage à l'incroyable contribution des membres du conseil d'administration d'ALS Canada, Richard Ellis, Lisa Flaifel et la Dre Angela Genge, dont le mandat est arrivé à son terme. Chacun d'entre eux a mis à disposition son temps, son expertise et son expérience personnelle pour aider à guider l'organisation au cours d'une période de croissance importante – nous les remercions pour leur dévouement, leur générosité et leur engagement.

🔗 Pour en savoir plus: https://t.co/ITm7L2K19j.