AlzheimerGuiden

Creating knowledge & hope via #digital platform with personalized information, expert advice & experiences from other #patients recently diagnosed #Alzheimer

[AlzheimerGuiden @AlzheimerGuide]

From us @AlzheimerGuide @demenslotsen it’s a New era not only for treatments, but also for patients raising their voices. The doctors can pull for change inside of healthcare - but the #patients & their families are the real gamechanger pushing for change from outside! #AAIC23

[Maria Cavalli @enbraplats]

Is the European healthcare system prepared for a new #Alzheimer’s Disease treatment? @Eisai_SDGs symposium with Frank Jessen, @alessandro5161 @OskarHansson9 and @craig_ritchie68
Chair Lutz Frölich.

#AAIC2023 #AAIC23

[AlzheimerGuiden @AlzheimerGuide]

Har du nyligen fått diagnosen #Alzheimers sjukdom? Vi vill att du ska veta att du inte är ensam, det finns saker du kan göra för att må bättre efter diagnosen & det finns stöd att få!
Guiden är kostnads- och reklamfri. https://t.co/Cn50QJEyc6
#Alzheimerdagen #WorldAlzheimerday

[Dagens Medicin @dagensmedicin]

Goda chanser för lekanemab trots allt – men något skaver i EMA:s analys https://t.co/qPFBuv0Qxj

[AlzheimerGuiden @AlzheimerGuide]

@JeffreyKaye5 starts the workshop on #technology and #dementia #AAIC2024
Multiple needs during the pathway cerates mulitiple opportunities for #tech in prediction, diagnosis and treatment!
#AI #Alzheimer

[AD-RIDDLE @AD_RIDDLE]

On #WorldBrainDay, we are shining a spotlight on brain health and #dementia prevention🧠
Together with our 24 partners across 🇪🇺 and beyond, AD-RIDDLE is working to advance the detection, prevention & treatment of #Alzheimers disease and dementias.
#WBD2024 #LoveYourBrain

[Maria Cavalli @enbraplats]

Thrilled to be attending the National Conference on Health Economics @NBK_GW! Looking forward to insightful discussions on AI's potential for early #Alzheimer's diagnosis and talking about the creation of our digital #AlzheimerGuide at #NBKGW2024

#HealthcareInnovation #AI

[Maria Cavalli @enbraplats]

Hope to see you at @gcpcc24!
I’ll be talking about the co-creation process @AlzheimerGuide . Love to hear what you think of a digital platform created for and together with recently diagnosed #patients #alzheimer.

#GCPCC24 #Vitalis #personcentered #alzheimerguide

https://t.co/xlTT66WfHu

[Alzheimer Europe @AlzheimerEurope]

Dementia Pledge in transit to our event at EU Parliament tomorrow!
MEPs standing in #EUElections2024 can sign & help make dementia a priority.
If you are an MEP & want to support but can’t attend, pls tweet your support for #DementiaPledge2024!
More info: https://t.co/5ZUt0cUfJL

[Dementia UK @DementiaUK]

Everyone at Dementia UK is deeply saddened to learn of the death of @WendyPMitchell. A tireless campaigner, Wendy’s writing and work helped many people understand what it is like to live with dementia, as well as giving a powerful voice to those living with the condition.💙[1/4]

[Alzheimer Europe @AlzheimerEurope]

As the EU elections approach we need 🇪🇺 policymakers to prioritise dementia. Help us get their attention by signing our 📢 CALL TO ACTION
https://t.co/SMm5ocNEiT

European Working Group of People with Dementia #EWGPWD member Bernd Heise shares his thoughts on why #DementiaNeedsEU

[BioArcticAB @bioarcticab]

Eisai announced today that Leqembi® (brand name in China: “乐意保”, generic name: lecanemab-irmb) has been approved in China as a treatment for mild cognitive impairment (MCI) due to Alzheimer’s disease (AD) and mild AD dementia. https://t.co/HZFGNKey5z

[Erik Stomrud @EStomrud]

En eftermiddag med minnet i fokus!
Gårdagens föreläsningar kring Alzheimers sjukdom finns tillgängliga på Lunds universitet youtube-kanal. Välkomna att ta del av dessa. @lunduniversity @MultiparkL @biofinder_study @OskarHansson9
#Alzheimer
https://t.co/8UCbCffuOy

[BioFINDER @biofinder_study]

Are you interested in Alzheimer's disease and other dementias, with specific interest in genetics🧬?
Would you like to be part of a team that does cutting-edge research?
We have a post-doc (https://t.co/fiVmgPReIu) and a PhD (https://t.co/Dba30GhmaS) position available!

[Maria Cavalli @enbraplats]

- The evening of the #diagnosis I was totally alone. It was the lowest I have ever been. It was so devestating. It takes your soul, it didn’t know what to do and how to tell my children.

Marguerite Keating talking strongly on the darkness and lack of support after the diagnosis AND how she fought back her negative toughts trough knowledge and the community of others @AlzheimerEurope @alzheimersocirl

Full room listening @EliLillyandCo symposium on Optimizing #Alzheimers disease #healthcare pathway #33AEC

[Maria Cavalli @enbraplats]

”We are the poor disease but still #dementia is so costly for society
- we need funding!” @mason4233 from @AlzheimerEurope working group of people living with dementia
panel #33AEC on
#policy #healthcare #diagnosis #treatment #care #dementiaplan

[Maria Cavalli @enbraplats]

WE ARE THE EXPERTS!
What ever you do in Life you have to listen to the experts!
Remeber the saying- ”Nothing about us - without us”!

GREAT speeches by @KevinQuaid3 and his fantastic fellow experts in @AlzheimerEurope working group of people living with dementia #33AEC Chair @mason4233
👏👏👏

[Maria Cavalli @enbraplats]

On my way to Helsinki, to @AlzheimerEurope Conference #33AEC. A very interesting program, I´m especially exited to listen to the European Working Group of People with Dementia in the session titled:
‘Transforming personal experiences into political advocacy and public involvement in dementia research’.

The session is planned, organized, and conducted by the group themselves. A testament to the fact that the old stigmatizing image of people with #dementia can be transformed into a perception where individuals are co-creators in healthcare, policies, research and innovation!

You can still register to watch the session online and listen to @KevinQuaid3, Věra Ryšavá, Nigel Hullah & Pia Knudsen:
https://t.co/Q9ZoE6EXuL

[AlzheimerGuiden @AlzheimerGuide]

Listen to @enbraplats talking about the important work co-creating our guide together with patients!

#Alzheimer #knowledge #recentlydiagnosed

[Maria Cavalli @enbraplats]

"Honored to have been part of @EU_Brain & @Hjarnfonden event "Rethinking Alzheimer’s disease".
I shared our journey creating the @AlzheimerGuide to underscore the importance of involving patients in developing #healthcare and the need for changing the image of living with #Alzheimer. Watch the event film https://t.co/Nf6yPtrpi0

#PatientInvolvement #RedefiningAlzheimers #HealthcareInnovation"

[AlzheimerGuiden @AlzheimerGuide]

Är du nyfiken på Alzheimerforskning från Lunds universitet och Region Skåne?

#Alzheimer #forskning

[Uppdrag granskning @granskning]

Vi har återvänt till Nina Gunke, Mikael Eriksson och Stefan Eriksson - som alla drabbades tidigt av en demenssjukdom. Hur mår de idag - och har de fått det stöd som de behöver?

Se ”När jag inte längre minns dig - vad hände sen?” i SVT Play

https://t.co/KUowOFTLWW

[AlzheimerGuiden @AlzheimerGuide]

Listen to the livestream #DefeatingDementia Afternoon theme: ”Persons with dementia matter” that includes video messages from people living with dementia

Panels about #tech #innovation and the challenge of the ageing society

https://t.co/Rq1AHIZeYk

[Maria Cavalli @enbraplats]

"Hope is becoming reality" and "it is time to step on the gas" @DrMariaALZ @alzassociation leading one of many interesting panels from #DefeatingDementia

Livestream https://t.co/jPnaBHSJO4
Learn about #diagnostics, #treaments and #prevention from a wide range of wise researchers and advocates like :

@MiiaKivipelto @CharlotteTeuni1 @BrusselsDC @PaolaBarbarino @AlzDisInt @AlzheimerAms @UKDRI @UNSW @Psych_Tech @ministerLZS @CharlesScerri @AlzheimerEurope
#alzheimer #EndAlz #dementia