Aniridia Day: June 21st

Worldwide activities to improve understanding of #raredisease aniridia causing visual impairment and light sensitivity

[Aniridia Day: June 21st @AniridiaDay]

What are your plans to celebrate #AniridiaDay 2026 on Sunday 21 June?

[Aniridia Day: June 21st @AniridiaDay]

Learning your child has aniridia brings many thoughts and emotions.
@AniridiaNetUK are exploring this with 3 talks & a discussion online to mark #AniridiaDay #NystagmusDay (by @NystagmusUK) & #FathersDay. Join them at 7.30pm Saturday 20 June.
https://t.co/MiWW3b5TMv

[Aniridia Network @AniridiaNetUK]

Our trustee Andy raising awareness of aniridia at a local school for @AniridiaDay

[Aniridia Europe Federation @AniridiaEurope]

Let’s mark Aniridia Day and create a collective impact ! Here are a few ways you can join us in this campaign: Support AE projects, consider participating in research trials, raise awareness, volunteer. WE CAN DO IT TOGETHER! 👉https://t.co/tttUMz0gn7 #AniridiaDay

[SRSB and RSS @SRSBCharity]

Awareness: Today is #AniridiaDay Aniridia causes a lack of irises (the coloured ring) in the eyes and poor vision from birth. You can read more about this rare medical condition on the Aniridia Network website: https://t.co/K92sHY4VbS

[Martin Collinson #BLM @docmartin2mc]

To mark Aniridia Day #Aniridiaday I doodled a summary of *20 years* 😮of our lab's research showing how PAX6 mutation can lead to corneal opacity (aniridia-associated keratopathy). The 'Triple Whammy Model'. #aniridia @AniridiaEurope @AniridiaNetUK @AniridiaDay @eurordis

[Laura cartmill 💙💛 @LCartmill30064]

I was born with a rare eye condition called aniridia and my right eye is starting to get worse and I am playing football with Torquay United inspirations it is for everyone with all different disabilities anything is possible @AniridiaDay @AniridiaNetUK #aniridiaday

[Aniridia Europe Federation @AniridiaEurope]

On Aniridia Day 2024 we are happy to share news from our fellow association ANA , as they are launching EYEris, the Aniridia Patient Registry !
The registry will foster a better understanding of all aspects of the condition !
More info:
https://t.co/EL3H5gOdyg

[Niveka Asha @Vekachuu]

Today is aniridia day! Aniridia is the eye condition that my family has. It is the condition that makes us low vision/blind.

[Elly Chapple Founder #FlipTheNarrative©💜 @elly_chapple]

Bit touched. Prof Julie Daniels shared the end of the journey that started in 2011. What a journey it was. Believing in the possible. Taking a chance and making life better for those with #aniridia like Ells. Thank you for being wholly human 🙏💜 #AniridiaDay

[Biel Barceló @bielbarcelo86]

Avui és el Dia Internacional de l’Aniridia, una malaltia rara que consisteix en la falta parcial o total d’iris #AniridiaDay. Tot el nostre suport @subterfugge de part de la fam��lia Barceló

[Mary McDonald @MaryMcDonald13]

@AniridiaNetUK @AniridiaDay My gorgeous granddaughter Isabelle loving life in the sun thanks to her glasses. She was born with aniridia

[ConSalud.es @ConSalud_es]

#LoMásLeído | Investigadores trabajan en un #tratamiento genético que podría erradicar la aniridia https://t.co/ipQitw398X

[Eye_INM @Eye_INM]

Today is the international #AniridiaDay
Our team members are working hard to develop new treatments 💊
Because aniridia is not a one day disease, we keep the patients in our mind everyday of the year🙏
@INM_Montpellier @InsermOccMed @CHU_Montpellier @umontpellier @fondationsante

[Frederic Michon @FredericMichon]

I want to take the opportunity of the international #AniridiaDay to thank @fondationsante for their fantastic support in our research for treatment to help patients affected by aniridia 🙏
Our @Eye_INM team is working hard for that
@INM_Montpellier @CHU_Montpellier @InsermOccMed

[AdmiraVisión @admiravision]

Avui es commemora el #diamundialdelaaniridia. L'aniridia és l'absència total o parcial d'iris. La causa pot ser d'origen genètic o motivada per un traumatisme, una cirurgia complicada o algunes malalties poc freqüents.
Fil sobre conseqüències i tractament...

[Pau Tomàs Ramis @subterfugge]

Avui és el Dia Internacional de l’Aniridia, una malaltia rara que consisteix en la falta parcial o total d’iris. La nostra filla petita, na Maria, te ANIRIDIA i per donar visibilitat penjam una foto amb ulleres de sol i el hastag #AniridiaDay. Tu també ho pots fer. Ens ajudes?

[Vista Oftalmólogos @grupo_vista]

Hoy #DíaInternacionalDeLaAniridia, queremos dar visibilidad a esta rara enfermedad de origen congénito y hereditario caracterizada por el desarrollo parcial o total del #Iris, contando algunos de sus principales #Síntomas.
#VistaOftalmólogos #Aniridia

[Ioba @IobaUVa]

Hoy es el #DíaInternacionalDeLaAniridia y desde el IOBA queremos reafirmar nuestro compromiso para seguir con la investigación de ésta y otras enfermedades raras para poder así mejorar la calidad de vida de quien la padecen.
#IOBA #Aniridia #EnfermedadesRaras #Investigación

[Vista Ircovisión @vistaircovision]

Hoy 21 de Junio se celebra el #DíaInternacionalDeLaAniridia, y desde @vistaircovision queremos dar visibilidad a esta enfermedad poco frecuente que suele detectarse en los primeros días de vida y que afecta seriamente a la #SaludVisual.
#SabíasQueVistaIrcovisión #Aniridia