Co-convener #SocialCareFuture @socfuture, OBE, Ex medical Dr, 🧑🦼➡️user. Using my experiences of health & social care to try & improve things.
Fuelled by tea
.... 2/2 'assessment should be what brings you joy' & 'don't let the current system limit what you want'
- Daisy Yates from the Casey commission (brilliant to have the whole team here) 'you are the experts'
- Jess McGregor 'to love is to act'
Now we are having suggestion time!
1/2 An amazing start to @socfuture gathering. Lots of great things already
- SAWN opening with songs of joy and friendship
- Eve Holt welcoming us to Manchester 'joy is resistance'
- Rick Burgess 🍉 reminding us of the urgency & disabled people's movement....
1/4 Benefits 'reform' / cuts
I didn't post last week as I couldn't find the words.
The fear & stress over the past week has had a huge affect on me & I know many others, suddenly panicking that you won't be able to pay bills or afford to feed your dog is such a scary...
4/4...-illness and disability can affect anyone (even you). We talk about a safety net but it's already barely there.
- the rhetoric that people are lazy or scroungers is really damaging and frankly insulting. No one would choose to be this poor or have to fight such systems.
1/4 Benefits 'reform' / cuts
I didn't post last week as I couldn't find the words.
The fear & stress over the past week has had a huge affect on me & I know many others, suddenly panicking that you won't be able to pay bills or afford to feed your dog is such a scary...
3/4...-We face extra challenges (pain, fatigue, lack of access etc etc) every day due to our conditions.
-Cutting my already low income won't mean I can work more, my health won't allow that.
-We are an easy target while those with the broadest shoulders are not suffering...
@juliesharp86 @ameenab2003 I drive from my wheelchair already in my current van so that's thankfully not a problem. It's fully crash tested and has a locking pin on it already.
1/2 Being disabled can feel so degrading & powerless.
My @Motability van is 9yrs so has to go back. But the rules now say I have to need it for work & be the only driver to get one I can drive from my wheelchair....
“I’m having to spend the last days of my life fighting for the right to live”
Read Rosy's story
If assisted suicide became UK law how many dying people would choose it because of the difficulty in accessing scarce NHS, social care & end of life support?
https://t.co/JojP2kVPnF
How we discuss #SocialCare matters, good care's about living! My life is built on social care it means I can work, live in my own home, be a good aunty & have a cat. This commission should not be about solving the problem of care but unlocking it's glorious potential 4/4
I think the stair lift in my parent's house heard me saying I didn't feel very Christmassy this year so has broken down (with me upstairs). Only problem is the good food is downstairs... (and the shower! 😂)
1/2 I'm not 'doing' Christmas this year, I just don't feel festive. But I am taking some time off and at least a month off into the new year to recover from the physical challenges and the emotional toll of loss and pain last year. 2024 was one of the hardest years....
@TheRehn I love the message on it! I don't like decor that tell me to be happy etc but having a nap I can get behind 😂
It is my tree, my PAs put up my usual random collection from over the years. He kept the hat on (it was from a party years ago!) for about 30 seconds!!